Puget Sound Buddy Walk Pazzo`s Pizza Workshop
Transcription
Puget Sound Buddy Walk Pazzo`s Pizza Workshop
January 2013 Puget Sound Buddy Walk Oct. 7, Seattle Center Record-setting attendance. See pages 4-5 Pazzo’s Pizza Workshop SAVE the DATE: Big Time Talent Show, 4:30-6pm, Saturday, Jan. 26 INSIDE THIS ISSUE Self-Advocate Column 2 Bake a Difference Cookbook 3 Buddy Walk Sixteen self-advocates headed to Pazzo’s on Oct. 27 to create their own pizzas from scratch. See page 7 downsyndromecommunity.org 4-5 Conference, Eyeglasses, BT Rush 6 Pizza Party at Pazzo’s 7 DSC Upcoming Events 8 facebook.com/downsyndromecommunity DOWNSYNDROMECOMMUNITY.ORG Page 2 17930 Normandy Terrace SW Normandy Park, WA 98166 downsyndromecommunity.org Our Goals Build a caring, understanding, supportive community open to all individuals and families whose lives include a person with Down syndrome. Share and nurture a climate where every human being is recognized, their strengths appreciated, and their accomplishments respected and valued. Strengthen the network of individuals and groups working with issues affecting the lives of those with developmental disabilities and their families. The Down Syndrome Community is a registered 501(c)(3) non-profit organization whose mission is to improve the lives of individuals with Down syndrome and their families by focusing on education, communication and advocacy. Our service area includes the entire Puget Sound region and Western Washington. Our members include a wide cross section of families and professionals across the United States. You can find more information and make a tax-deductible donation through PayPal by visiting our website at www.downsyndromecommunity.org DSC Board of Directors Sean King, President president@downsyndrome community.org Louise Avery, Vice President, Community Relations Liaison, [email protected] Carla Snyder, Secretary Curtis Thelin, Treasurer [email protected] Anne Mullis, Recording Secretary, Conf. Comm. Chair Nick Kappes, Finance Committee Chair Lynne Palmisano, Buddy Walk Chair Dan Hartung Sue Hartung Jennifer Mullis, Self Advocate Scott Rutledge Laurel Sturges Newsletter editor: Anna M. Jones Upcoming board meetings: January 10 and May 9, 7-9pm, Pacific Market Center. Board Planning Meeting: March 9, location tbd. Board meetings are open to all members. Please let Sean know you are coming: [email protected], 425.228.3391 SELF-ADVOCATE COLUMN GIVING THANKS By Jennifer Mullis Today, I am going to write a poem for giving thanks. Give thanks for family who support me Give thanks for good friends to play with Give thanks for food on the table to eat Give thanks for a place to lay my head at night. Give thanks for puppy dogs and kitty cats to snuggle with Give thanks for television and movies to watch Give thanks for a future bright with hope Give thanks for music to listen to Give thanks for community classes Give thanks for line dancing to dance with the beat of the music. Give thanks for God in my life, when I am sad he lifts me up, and when I am happy he rejoices with me. Give thanks for God’s love because His love shines in us. Give thanks for God’s creation especially the mountains because He sings in the mountains! Give thanks for church members who care about me. Give thanks for alphabet soup! Give thanks for UPSIDE and DSC Give thanks for DDD and DVR Give thanks for ALP, SAW and ITA Give thanks for all the people who support the I/DD community. Give thanks for being me. The End I hope you like this poem. I hope it touches your heart too! DOWNSYNDROMECOMMUNITY.ORG Page 3 Bake a Difference cookbooks can be ordered online The Bake A Difference Family Favorites Cookbook is the culmination of a lot of hard work by our friends at Embassy Suites Seattle Tacoma International Airport. It is full of scrumptious recipes, contributed by DSC members and friends! Sections include: Brownies & Bars, Muffins & Breads, Cakes & Cupcakes, Candy & Desserts, Cookies, and Pies & Tarts. There are 94 pages of fully-indexed recipes and the book is filled with meaningful, professionally-shot photographs of our self-advocate models and their families. The cookbook was funded by a grant from Embassy Suites, so every dollar we collect from cookbook sales goes directly to support DSC communication, education and advocacy efforts. Please support us by enjoying and sharing our cookbook! You can order online, by visiting downsyndromecommunity.org or you can call 425.228.3391 or email [email protected]. Books cost $20 each or two for $30, plus $5 shipping and handling per book ordered. The books will also be available for purchase at this year’s social events. Thank you! Books are $20, or two for $30, plus $5 S&H per book DOWNSYNDROMECOMMUNITY.ORG Buddy Walk of Puget Sound Oct. 7, Seattle Center Photos courtesy Tom Ellis For more photos, please go to: tinyurl.com/DSCWalk2012 Page 4 Thank you to everyone who contributed to the success of the 2012 Buddy Walk The Down Syndrome Community and the 2012 Puget Sound Buddy Walk® committee members would like to express our deepest thanks for those who partnered with us to make the 2012 Buddy Walk a truly spectacular event! This was our biggest Buddy Walk ever, with more than 1,200 people attending. Please thank all these wonderful people and organizations for their support. SPONSORS Alex Toys Philip Heier, Windermere Sun Press Printing Tim’s Cascade Chips DONORS Adriatic Grill Anthony's Restaurants Argosy Cruises Bellevue Civic Theatre at Meydenbauer Camaloch Golf Course Children's Museum Coach Comedy Underground Consolidated Foods Costco Creative Cupcake Parties Dick Yamane and Associates Dimitriou's Jazz Alley Doubletree Hotel Seattle Airport Doubletree Spokane City Center Embassy Suites Portland Downtown Fred Meyer HiLine Lanes Hilton Bellevue Hilton SeaTac Hilton, Vancouver WA Hoodsport Winery Hyatt at Olive 8 Imagine Children's Museum Ivar's, Inc. J.P. Frame and Tim Cundiff Jillian's Linda Jordin Majestic Bay Theatre Mount Si Golf Course Museum of Flight Neal & Betty Nelson Ride the Ducks of Seattle Seattle Art Museum Seattle Children's Theatre Seattle Musical Theatre Seattle Seahawks Seattle Sounders FC Sky City at the Needle SpringHill Suites Seattle South/Renton Storybook Theater The Pacific Science Center Top Ten Toys Toyology Woodland Park Zoo GUESTS, ENTERTAINERS AND COMMUNITY PARTNERS Amerigroup Community Care Aneeta Lonkar, ASL Arc of King County Arc of Snohomish County Athletes for Kids Can Bike/NW Special Families Center for Pediatric Dentistry, UW Clara Link—Photography Diamond Designs Dustin Bean & Aca. of Kung Fu, Longview Dustin Bean, Self-advocate speaker Dylan Kuehl—Painting Eliza Schaaf, Self-advocate speaker Ellensburg HS Key Club Embassy Suites Garrison Titan, 501st Legion Highline Com. College, ACHIEVE Program Jae Chung, Kettle corn Jagatjoti S. Khalsa, author Jennie Reed, Olympic Medalist, Emcee Joani Bishop, ASL Kristy Yawman— Drawing Lupita Cano—Painting Mike Roth, photography My ID Club, King County Police Union Outdoors for All Phillip Thelin, bagpiper Rat City Roller Girls Reece’s Rainbow Sue and Sean Adelman The Boeing Klown Klub The Nowhere Men Tom Ellis Photography Univ. of Puget Sound Physical Therapy U.S. Navy and Marines, Naval Base Kitsap UW Sleep Study Wahluke HS Key Club Young Life Capernaum A special thank you to the many volunteers. Greeters, face painters, registration table, those who set up and those who take down; and those who work for months behind the scenes to make the Buddy Walk, the raffle and the FirstGiving site come together. Please thank all these wonderful sponsors and volunteers for their support The Buddy Walk Committee: Lynne Palmisano; Chair. Linda Engen, Adrienne Fraley-Monillas, Mayumi Frame, Lisa Hurlimann, Leanne Lengle, Linda Michael, Justine Nelson, Barbara O’Kelly, Brian O’Kelly DOWNSYNDROMECOMMUNITY.ORG Page 6 Savvy Estate Planning Thank you to the DSC Conference Committee for a great day of learning on Saturday, Oct. 20 More than 50 people joined us at the Blackriver Training and Conference Center on Saturday, Oct. 20. After a welcome by our President, Sean King, the audience was given a preview of the day by DSC Board member Nick Kappes, who then introduced our speakers, attorneys Larry Jones, Karen Thompson and Stephen Waltar. The DSC would like to extend our deepest appreciation to the Conference Committee, which was co-chaired by Anne Mullis and Sharon Dommermuth. The Committee would like thank Kasey, from the Conference Center, as well as the DSC Board and volunteers for making the day run so smoothly. Special thanks to Christina and Brian, as our greeters and door monitors, and to Bobby at the registration table. Our most sincere thanks also goes to our talented presenters who took time out of their schedules to share their expertise and provide invaluable information. Thanks to our attendees, the reason for our efforts! Watch for information regarding our next conference on Saturday, Oct. 19, 2013, and plan to join us. Jones Thompson Waltar Thank you to Larry Jones, Karen Thompson and Stephen Waltar for sharing their time, energy and vast knowledge with the DSC. Eyeglass frames for special kids SPECS4US (Superior Precision Eyewear for Children Who Are Special) has a line of eyeglass frames for children with Down syndrome that the company says eliminates the problems commonly associated with traditional eyeglasses. The Erin’s World line of frames is engineered with a flatter bridge and specially curved frames to fit the unique facial features of children with Down syndrome. Adult sizes and sunglass clips are also available. The line was created by an optician who has a child with Down syndrome. Among local locations listed at specs4us.com: Marysville Vision Source, Woodlawn Optical of Bothell, Roosevelt Vision (Seattle), Woodlawn Optical (Redmond), Sammamish Vision Center, Visual Connection (Bremerton). For more information, visit specs4us.com or call 1.800.586.1885. Big Time Rush is a Big Time Thrill Megan Schiedler enjoys opportunity of a lifetime to meet her favorite boy band First there was the sound-check, where Megan was chosen to ask one of the many questions from their fan club. Then we were whisked away to the front of the line to meet them backstage before the Big Time Tour concert for a private photo shoot. Megan spent 10 glorious minutes with the four young men: Kendall, James, Logan and, of course, her No. 1 crush, Carlos (standing to her right). They asked Megan all about her life and were very engaging. It was an evening full of music, laughter, dancing, singing and fun—a night that she will never forget. I know I won’t, and neither will her mommy (Paula Schiedler), who drove all the way from Lake Oswego, Ore., on that sunny day in September to DO THE PUYALLUP and Get Your Happy On! Megan with BIG TIME RUSH at the Puyallup Fair Submitted by: Louise Avery, Megan’s Aunt WeeZy DOWNSYNDROMECOMMUNITY.ORG Pizza Party at Pazzo’s! On Oct. 27, Pazzo’s on Eastlake hosted their first DSC Pizza Workshop. Sixteen DSC self-advocates made their own pizza creations from scratch to share with their families and learned some of the mechanics about how a restaurant works. Special thanks to Laurie, Missy, Jay and Jeremy of Pazzo’s for making this fantastic afternoon a memorable success! Page 7 PRESORTED STANDARD U.S. POSTAGE PAID SEATTLE, WA PERMIT NO. 4037 17930 Normandy Terrace SW Normandy Park, WA 98166 We are on Facebook! facebook.com/downsyndromecommunity SAVE the DATE: Big Time Talent Show, 4:30-6pm, Saturday, Jan. 26 Down Syndrome Community early 2013 Calendar 4:30-6pm, Saturday, Jan. 26 DSC presents: The 1st Big Time Talent Show Saturday, Feb. 16 Saturday, May 18 Sweetheart Dance, Pizza, Silent Dessert Auction Spring Fling Dance and Annual Meeting Highland Community Center 14224 Bel-Red Road, Bellevue [email protected], 206.285.6128 Sharing Library Event Sharing Library Event Highland Community Center 14224 Bel-Red Road, Bellevue Highland Community Center 14224 Bel-Red Road, Bellevue, [email protected] [email protected], 425.228.3391 Thursdays, Jan. 10, May 9, July 11 Board Meetings (Open to all members) Pacific Market Center 6100 4th Ave. S., Seattle, 98108 Board Planning Meeting, March 9, details tbd Wednesday, March 6 Wednesday, March 21 Day to End the R-Word Campaign World Down Syndrome Day r-word.org worlddownsyndromeday.org