newsletter - Cancer Society NZ
Transcription
newsletter - Cancer Society NZ
CanTalk newsletter SUMMER 2012 No. 61 CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa CANTALK SUMMER 2012 Contents Editorial January 9 signalled a different start of the new year for all of us at Cancer Society Wellington as we welcomed our new CEO Michael Smith and CanWork Project Coordinator for Men’s Health (National), Steve Kenny. The karakia that began the mihi whakatau described the Maori belief that a rainbow signals a new beginning. The symbolism of the rainbow is useful to us all as we let go of what has passed in the last year and begin a fresh start with the new year. A Sad Farewell... and a Warm Welcome 2 CanTalk Survey Results 3 Understanding Peripheral Neuropathy 4 Thumbs up for Wellington Hospital 4 Pancreatic Cancer Making Quiet Inroads 5 Dietary Help 5 Developing Genetic Profile 5 Chemotherapy Hope Cancer Connect Calling 6 6 Taste Changes During Cancer Treament 7 Burn Baby, Burn - You Ain’t Got Me Beat 7&8 Prescription to Taste 8 Share a Recipe 8 Our Dad’s a Pirate 9 Poem - Sleight of Hand 10 Book Review 10 Cherry Juice Aids Sleep 10 Library Update 11 What’s On In Our Centres 12 Other Supportive Services 13 Wellington, Hutt, Porirua & Kapiti Groups 14 Wairarapa Groups 15 Letter To The Editor 15 Joke15 CanSupport Programme 17,18 & 19 Free services available Back page Letting go or putting things behind us is easier said than done. Those that have undergone cancer treatment (radiotherapy, chemotherapy or surgery), are facing ongoing challenges with side-effects of their treatment. This issue has some inspiring stories from those that refuse to dwell on what is no longer and face their future with courage and humour. Thank you to all who took the time to respond to the CanTalk survey. The comments people made were especially useful. The main aim of this newsletter is to provide psycho-social support to those people affected by cancer – whether they be patients or carers. Hearing people’s stories, sharing many common emotions and experiences and being inspired by others, whatever cancer you may be coping with, can make a real difference to your own journey. I would be delighted to hear from you if you feel you would like to contribute and share something about your experience. And lastly a warm welcome is extended to you all to support our big purple fundraiser - Relay For Life. A special time to celebrate and acknowledge cancer survivors, remember those lost to cancer and to raise funds to fight back. Wishing you all the best for your year ahead. Sue Corkill - Editor Contact: Sue Corkill, Cancer Society Wellington Division 52 Riddiford Street, Newtown or email: [email protected] regarding any information in (or contributions) to the CanTalk Newsletter. This CanTalk newsletter is compiled and edited by the Cancer Society Wellington Division. Disclaimer Many of the articles in the publication are sourced from overseas. The inclusion of these items does not imply that procedures, treatments, or tests reported herein are approved of, or available in NZ. These articles are for discussion purposes only. The views and opinions expressed here are not necessarily those of the Cancer Society of NZ. 1 CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa CANTALK SUMMER 2012 A Sad Farewell .... Roger Taylor ended his time as Divisional Manager Cancer Society Wellington (CSW) at the end of December 2011 when he was fare-welled from the Executive Committee and all staff of the Division. Roger began his employ with Cancer Society Wellington in July 1994 and remained at the helm until the end of 2011. During his tenure, Cancer Society Wellington made considerable progress across the range of our activity, with programmes and resources that have benefited the wider Cancer Society. Adept at appointing highly competent staff, Roger supported them and their initiatives well, and faithfully and surely represented CSW within the organisation nationally. Staff will miss his eagle eye in checking for accuracy in printed materials; they will miss his prompt attention to concerns they might raise; they will miss his open door, his approachability and attentive listening; they will miss his razor-sharp wit; they will miss his kindness, trust and respect. They will miss him. We wish Roger all the very best in his retirement. ....and a Warm Welcome As one door closes another one opens………… We warmly welcome our new Chief Executive Officer, Michael Smith, who joined Cancer Society Wellington in late December 2011. For the last 7 years Michael has held the position of Chief Executive Officer of Caritas Aotearoa, New Zealand, the Catholic overseas aid and social justice agency. Prior to this he held a senior leadership position with New Zealand Red Cross in the joint functions of Chief Financial Officer and Corporate Services Manager. Michael is regarded as a capable business manager by his peers and a person who really enjoys working in the not-forprofit sector, with a great understanding of the dynamics and challenges of the sector. He is looking forward to the challenge of enhancing the performance of the Cancer Society and is excited about the work he will be doing. Michael is married to Helen and they live in Karori with their 3 young children. We also start the year by welcoming Steve Kenny to the staff. Steve (Ngāti Toa, Ngai Tahu, Ngāpuhi, Taranaki whanui) will be based at Wellington Division and is responsible for introducing the CanWork Men’s Health programme nationally. Fiona Pearson, Assistant Divisional Manager, Manager Information & Suppport 2 CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa CANTALK SUMMER 2012 CanTalk Survey results Thank you to all those who responded to the survey in the last issue of CanTalk. It was wonderful to get your feedback and to hear from many I haven’t had contact with for a long time. A special thank you to Brian Fields, volunteer extraordinaire, who has spent many hours of his own time collating all the material. A quick snapshot of the results: • Of the 587 respondents, 540 (92%) have either had cancer or currently have cancer (with almost half of those, breast cancer survivors). Another thirty respondents (5%) had not had cancer but were supporting someone who had cancer and 6 participants (1%) were health professionals who did not had/have cancer and were not supporting anyone with cancer. Another 10 (2%) who completed the survey were volunteers or counsellors. • The circulation of CanTalk has a wide variation, with nearly half of participants (45%) having received the newsletter for more than three years, and at the other extreme nearly 20% for a year or less. • The number of articles read by respondents is high, with just over half (58%) noting that they enjoy the whole newsletter with 18% reading four or more articles and 17% reading two to four articles in the last three issues of CanTalk. • When asked what articles were of interest, nearly 80% (422) stated that articles which affected themselves or their whanau/family or friends were of most interest. Three-quarters of respondents were also most interested in articles about research development with another 70% most interested in articles on cancer prevention. • Once finished reading CanTalk, 52% of participants keep the newsletter for further reference and 29% pass the newsletter on to someone else to read. • The overwhelming majority of the comments were of a positive nature. However, a number of readers commented on the paper used. Cost is crucial and at all times I endeavour to make this newsletter as cost-effective as possible. Converting to our present digital colour format and paper was in fact a significant cost saver (almost $1000/issue) as was the change to our present clear packet mailing system. Like photography, black and white is no longer cheap. • Other requests included more articles on rarer cancers and more articles by men for men - so I would be delighted to hear from more of you to enable this to happen. And remember that CanTalk is available online www.cancernz.org.nz and so for those of you who would appreciate bigger print this option may help. Sue Corkill - Editor 3 CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa CANTALK SUMMER 2012 the damage is no longer present. The nerves become sensitised and thus send dysfunctional signals, resulting in the neuropathic pain. It is possible to manage symptoms in a way that reduces the impact and allows for an optimum level of functioning. Pain management techniques can ‘turn down the volume’ of these symptoms so that they say in the background at a lower sensory ‘sound’ (effect) rather than prominently demanding attention and feeling overwhelming. This can be used in conjunction with pain medication to give optimal benefits. Understanding Peripheral Neuropathy Peripheral neuropathy is the term used to describe damage that occurs to the nerves of the peripheral nervous system. It predominantly affects the hands, arms, feet and legs but sometimes other locations such as the nerves in the face. Symptoms usually begin from the toes then fingers as initial prickling and burning, numbness and pain, and these symptoms progress towards the centre of the body and can include some impairment of temperature and sensitivity to touch. The incidence of peripheral neuropathy is relatively common with chemotherapy, but the severity varies individually so not all patients will be as affected as others or for the same length of time. Many people experience it as a temporary condition. It tends to occur between the first and third cycle of some chemotherapeutic agents, eg vincristine, cisplatin, oxaliplatin,paclitaxel, thalidomide and bortezomib, although some cases can occur after treatment has been stopped (a process called ‘coasting’). Sometimes motor neuropathy can occur (but less so in the early stages) and can cause weakness, muscle wasting, cramps and fasciculation (muscular twitching). With the development of chemotherapy-induced neuropathy, quality of life can be significantly affected. The damage to nerve cells by the chemotherapy means that sensory receptors give either a constant or intermittent and unnecessary signal to the brain that the nerve has been damaged. However, this signal is ‘redundant’, as with the cessation of chemotherapy the cause of Particular anti-depressants may also be effective for treatment in neuropathic pain as well as controlling for depression, which can occur in response to dealing with this condition. Talking with professionals such as counsellors or psychologists about the difficulties experienced and associated emotions is also a positive approach to self-management. Support groups can also be very helpful, with members not only sharing experiences but also sharing ideas on how they manage and reduce the impact within their lives. Kay Cunningham, Clinical Psychologist, Wellington Thumbs Up for Wellington Hospital Dr Abdullah Roofullah recently conducted an audit looking at the incidence and severity of peripheral neuropathy in women diagnosed with early breast cancer who received the chemotherapy drug paclitaxel between Feb 2010 and Feb 2011 at Wellington Hospital. He found the incidence of peripheral neuropathy was slightly less than that found in the large international trials but nevertheless affected a large number of women. ‘You have to juggle the need to give chemotherapy versus the severity of the peripheral neuropathy’, he said. ‘Paclitaxel is tolerated well for the most part, but the peripheral neuropathy, whilst temporary for most women, still takes months to years to disappear’. Dr Roofullah stressed that if you think you may be developing peripheral neuropathy, the important thing is to ensure that you tell your doctor at each visit. Sue Corkill 4 CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa Pancreatic Cancer Making Quiet Inroads ‘What’s out there for me?’ is a common question for those people who get cancers that aren’t in the news every day. Sadly there are many rarer cancers such as pancreatic cancer (which currently ranks 11th among NZ males and 10th among NZ females – Ministry of Health Registration Statistics, 2009), that don’t get the publicity and support that the more common cancers do. This can make people feel very frustrated and alone especially when the prognosis seems grim. But it is important that those affected by pancreatic cancer know that there are many people striving to improve the understanding and outcome of this cancer. The pancreas is an important gland that is found slightly behind the stomach and in front of the spine. The pancreas has two major functions. The first is to produce insulin and glucagon - two hormones that control the sugar levels in our blood. The second function is to produce enzymes that are important for breaking down the food we eat and help with digestion – the so-called digestive enzymes. About 20 different cancers come under the umbrella of the term ‘pancreatic cancer’ and each is treated differently. Adenocarcinoma is the most common type and is found in the lining of the ducts that deliver the digestive enzymes to the digestive tract or duodenum – usually in the head of the pancreas. Steve Jobs, CEO of Apple Computers Inc, who died recently, had another form of pancreatic cancer that is known as a neuroendocrine tumour. His type of cancer begins in the hormone-producing islet cells of the pancreas and is considered very rare, accounting for only 2% of pancreatic cancers. As with most cancers, pancreatic cancer can be treated successfully if found early but unfortunately it is often diagnosed at an advanced stage. The majority (80%) of those affected are over 60 years of age, and smoking is linked in 30% of cases. Treatments include surgery, chemotherapy, radiotherapy, targeted therapies, and immunotherapy. Around the world many people are committed to improving the treatment and support for those affected by pancreatic cancer. Some recent initiatives are highlighted in the following boxes. 5 CANTALK SUMMER 2012 This video (in our library and also available online) is an initiative developed by the New South Wales Cancer Council and the NSW Pancreatic Cancer Network to help those coping with pancreatic cancer. It is informative, hopeful and practical. www.pancreaticcancer.net.au Dietary Help The Study for Survival research undertaken by the Pancreatic Cancer Network UK has given new rise to commitment of this group to improve outcomes for pancreatic cancer patients. They are determined to commission research in this area, starting this year, to increase funding to attract scientists and researchers to this field. Their new website www.pancreaticcancer.org. uk has been launched which includes updated, easy-to-read dietary information to help patients cope better with minimising weight loss and loss of appetite. It covers topics such as pancreatic enzyme supplements, nutritional supplements, and diet tips for managing symptoms. www.pancreaticcancer.org.uk/diet. Developing Genetic Profile The Australian Pancreatic Cancer Genome Initiative (APGI) co-led by Professor Sean Grimmond, Brisbane, and Professor Andrew Biankin, Sydney, is determined to improve the outlook for pancreatic cancer patients. These two men have brought experts from medical and scientific areas across all of Australia together and are particularly focused on determining the genome profile of pancreatic cancer. They have linked with the International Cancer Genome Consortium (ICGC) and aim to collect tissue and blood samples from 400 pancreatic cancer patients across Australia and study them to see the changes in DNA. The genetic changes will then enable them to better determine who gets the disease, what treatments are best, and to develop ‘personalised cancer medicine’. www.pancreaticcancer.net.au Continued on page 6 CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa CANTALK SUMMER 2012 Continued from page 5 Chemotherapy Hope Last year a new drug regimen called FOLFIRINOX (5-FU, leucovorin, irinotecan and oxaliplatin) was found to have produced the longest improvement in survival in a phase III clinical trial of people with pancreatic cancer that had spread or metastasized.Those that received the regimen lived approximately four months longer than those treated with the current standard of care, gemcitabine. This is a tough chemotherapy regimen with serious side-effects and obviously not suitable for many patients, but it finally gives researchers something positive to build upon. New England Journal Med. 2011;364:1817-1825 Other resources: www.cancernz.org.nz – Booklet on pancreatic cancer : Pancreatic Cancer; for people with cancer, their family and friends. Cancer Council Victoria. http://www.pancan.org/section_facing_pancreatic_ cancer/ - Informative information especially around treatment for pancreatic cancer. Sue Corkill Cancer Connect Calling Many of you have welcomed the opportunity to be linked with a Cancer Connect volunteer to discuss issues around your particular cancer and treatment. The ability to talk to someone who has been through a similar experience is often very reassuring and can assist in helping to make difficult decisions. However, as many of you will also know, with new treatments constantly emerging we are constantly needing to add to our group of Cancer Connect volunteers. We ask for your help in filling our gaps. The Cancer Society is offering a new training for potential volunteers in the first quarter of 2012. We are particularly keen to hear from those of all nationalities who have been treated for prostate, oesphageal, lung, stomach, thyroid, breast (reconstruction and those with experience of latest drugs) or gynaecological cancers. Also melanoma, multiple myeloma, mesothelioma, sarcoma, or brain tumours. Not everyone will meet our criteria but we would appreciate your interest. All costs are met once selected. Email Ann Hodson, Volunteer Manager [email protected] ‘Taste’ changes during cancer treatment Most people receiving treatment for cancer report at some point that the taste of food changes. If this does occur, eating and drinking may become a negative experience. This has implications for diet and nutrition as well as for practical and social aspects of shopping, cooking and dining. Many things affect how flavour is experienced – taste is just one of them. The sense of taste refers only to what is perceived by the taste buds on the tongue when food molecules come into contact with them. There are five basic taste qualities – sweet, salty, sour, bitter and savoury (also known as umami). These basic tastes act a bit like the primary colours – they are the building blocks of all other flavours. The sense of taste interacts with other senses such as smell and touch (texture) to make up the whole flavour experience. Taste, smell and touch can all be affected by cancer treatment as can thermal sensations (being more or less sensitive to hot or cold foods). In addition to these components of flavour, some patients describe oral sensations such as offensive or metallic ‘tastes’ in the mouth which get in the way of the true flavour of food. Some patients describe going in search of specific foods or drinks to try and get rid of ‘the bad taste’. If the taste buds are affected by chemotherapy, radiotherapy or surgery, one or more of the basic taste qualities may be perceived as more or less intense. For example, it may be difficult to pick up the taste of salt in food or sweet foods may become overpoweringly sweet. This may result in a stronger preference for some foods (e.g. savoury or sweet foods) rather than others. Continued on page 7 6 CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa CANTALK SUMMER 2012 Continued from page 6 Food enjoyment can be affected not just by sensory qualities but by mood, memories or a reduced appetite. Food might taste the same as it always has but that taste is no longer enjoyable during cancer treatment. Some people say they go off their favourite foods or have aversions to foods such as coffee, Food tasting dull? tea, alcohol, chocolate, red meat or citrus fruits and juices or to foods they make have eaten on treatment Try being more creative with your seasoning: days. ‘Taste changes’ can be quite temporary during the period of treatment (for example during • Worcestershire sauce chemotherapy) or can be much longer-lasting (in the • Fresh or pickled ginger case of radiotherapy or surgery to the mouth region). • Asian flavours such as soy and fish sauce with lime, palm sugar and chilli. Unfortunately there are no complete remedies for altered flavour perception – it is a matter of trying different strategies to see what works best for you. Maintaining good oral hygiene during cancer treatment is always important to try and keep saliva flow, taste buds and teeth in the best shape they can be to avoid mouth problems which can interfere with food enjoyment. Managing nausea well (usually through maximum doses of medication) can promote a good appetite. Finally, know that you are not alone – changes to the eating and drinking experience are common and can understandably be frustrating and disappointing. Often it is just a matter of time until food can be fully enjoyed again. Anna Boltong, PhD Candidate (Dietitian), Peter MacCallum Cancer Centre. Anna recently presented her research at the COSA conference in Perth, Nov 2011. Burn baby, burn - you ain’t got me beat When I was diagnosed with tongue cancer I had a large section of my tongue cut out and replaced with a muscle from my forearm. Once installed, my ‘new tongue’ helped me speak and chew, but of course it hadn’t come fitted with taste-buds… so I’d expected a loss of taste. But even with substantially less of the ‘old tongue’ left after surgery, I still found had an complete range of taste sensations, including sour, sweet, savoury, salty and bitter. I’d been warned that chemotherapy could create unexpected changes in tastes, like making some foods taste metallic, but I didn’t have that problem. The biggest impact from chemotherapy for me was loss of appetite at the time. ‘Not feeling hungry’ may sound like a minor issue, but it was a serious problem for my wellbeing; I was relatively thin and my doctors were concerned about me losing more weight. I knew I had to eat to keep up my energy and bodyweight, but through times where I just couldn’t face food. After my chemo infusions, the smell and taste of cheesy or creamy food would make me feel sick (and I love cheesy food!). So, I knew I had to eat, but during chemo my body seemed like it was against the idea. That created a sense of frustration and despair. However, it only lasted the duration of the chemotherapy cycles; after a few days I’d get my appetite back. While chemotherapy had temporary effects on my taste, radiation treatment created permanent changes. Instead of having less taste, my mouth and tongue have become extraordinarily sensitive to spiciness. I think of it like a superpower revealed. Just as a dog can detect high-frequency sounds that ordinary humans can’t hear, I can detect a pinch of chilli in a seemingly innocuous cheese muffin. Unfortunately my body’s response to chilli or pepper is less than heroic: there’s an instant and pervasive burning pain in Continued on page 8 my mouth, making my eyes stream and puff up. 7 CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa Continued from page 7 This has been a permanent, not a temporary, sensitivity for me and hasn’t waned over time. Beer, wine and alcoholic drinks create a similar hot burn in my mouth. In my experience, beer is warm but wine is like breathing fire. I assume that the higher the alcohol content, the higher the pain. I tested that once, trying a shot of whiskey, with an immediate conclusion: yes, higher alcohol content meant greater pain and streaming eyes. I didn’t need to test that theory again! It’s not just spices and vices. Toothpaste, tomatoes and fruit juices all generate a strong burn for me. Over time I’ve learned to find variations of types and brands that generate a lighter reaction: acid-free tomatoes, red grapefruit juices instead of orange juices. The trick is to experiment and explore; never write off one food group altogether. It’s an adventure in finding new recipes. I used to loathe peanut butter, but I now love peanut butter smoothies! Initially, I was reluctant to go out to a restaurant or café. I felt embarrassed to ask staff about the food; not wanting to seem picky or annoying as a customer; and not wanting to draw attention to myself if I was among others. But waiters and staff are well used to fielding questions, for example about allergies. Be polite and specific. Asking ‘Is the food quite spicy?’ invariably gets me a ‘Not really’ answer; so it’s much better to ask ‘Does this contain chilli or pepper?”. Occasionally I get a craving for a food that I used to love, but now can’t eat comfortably. I’m amazed at the power of these cravings to overcome good sense and experience. For example, pre-cancer, I used to love eating curries. Since my treatment, more than once I’ve been at a café and ordered a deliciouslooking Thai green curry, thinking ‘Mmm…that looks good, I’ll have that’ and then only realise once I’ve started eating ‘Oh damn – I remember now – I can’t eat this’. I call these my ‘food failures’ – you’ve got to laugh at your own stupidity sometimes! I’ve met other patients who have the reverse problem, from the same treatment regime as me. They’ve lost taste, rather than gained sensitivity; and they need to add chilli or spices, rather than remove it. I think the principle is the same – keep trying new foods and recipes; don’t despair and settle on a limited diet. CANTALK SUMMER 2012 Tips • • • • Be open-minded about trying new foods. After treatment, your body changes and improves over time – what didn’t work in the past might in the future, or it might work in a different combination or recipe. Try one different food adventure per week! When eating out, proactively check about ingredients in the meal. Ask staff (or your host) a specific and polite question about what’s in the food. It’s no different from checking about allergies or intolerances, and perfectly acceptable. Smile at your failures! It’s much better to test out new foods, and discover your limits, than write yourself off. Seek out new substitutes and adapt your recipes to suit. What might sound like alien food may actually be delicious. It’s all a matter of taste! Nick White Prescription to Taste Dr Luis Pineda, a USA haematologist and oncologist was a man used to seeing his patient’s nutritional needs deteriorate due to the effects of their chemotherapy and radiotherapy. In 2000 he enrolled in a culinary school to combine his knowledge of medicine with the art of cooking. The result is this free booklet: Prescription to Taste; a cooking guide for cancer patients. It aims to provide recipes for food that will assist in re-stimulating their affected taste buds. Ingredients are not necessarily available in NZ but there are many recipes that can be easily made or adapted with many useful comments. Free download at: www.cookingwithcancer.org Share a recipe We would like to create our own online recipe book by collecting your recipes that help you/ helped you cope with loss of appetite, sore mouth, dry mouth, difficulty in swallowing or needing to gain weight. Please email [email protected] or send to Sue Corkill, 52 Riddiford St, Newtown, Wgtn. 8 CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa Our Dad’s a Pirate! September the 14th 2011 is a day that I will never forget. I was asked to go to Wellington Hospital for an eye examination to confirm what I thought was simply an eye infection. After many tests the Eye Doctor said, ‘I need to talk to my boss as I’ve found a lesion’. Ten minutes later she broke the news, ‘You’ve got a melanoma on the back of your left eye’. Next, the Surgical Consultant gave us the news that, given its location, the only viable remedy was to remove the eye completely’. And on top of that he then said I would need to have various other tests to make sure the melanoma hadn’t spread anywhere else in my body. CANTALK SUMMER 2012 It hasn’t been easy on my family either. Our two boys, aged 7 and 5yrs, were pretty scared about what was happening to their Dad but now with my new glass eye I’m in hot demand with their friends all eager to see and touch my eye. My wife has been my rock, and in fact if she hadn’t been so persistent in making sure I went to the Doctor and subsequently the hospital, the prognosis might not have been so good!!!!!!!! Words cannot begin to describe the support I have received from my family and friends both before and after my surgery, and the professional support I have had from the Wellington Cancer Society and the Eye Department at Wellington Hospital has been amazing. A Big Thank You to Fiona Pearson at the Cancer Society who spent a lot time helping my wife and me work through a lot of the worry and fear, and Doctor Keith Small at Wellington Hospital for being so professional, caring and empathic to myself and my family. My head was spinning out of control by then. All I could think was that ‘I have Cancer and I’m going to die’. The next few weeks were a blur of waiting; waiting for radiography bookings and then waiting for the results. It was like With my peripheral vision and ‘It is all fun and games until Chinese Water Torture and I think I just depth perception changed – I someone loses an eye’. about drove my poor wife mad with my have a lot of challenges ahead worry. Thankfully the melanoma was to face with driving, working and localised to the eye only and had not daily tasks. This time has been hugely scary, sad metastasised or spread anywhere else…… and frustrating but it’s great to be coming out the other end. To all of my fellow Males out there; So now the focus shifted from my entire body don’t put off going to the Doctor and having being at risk to losing an eye. My favourite saying things checked out as the life it could save may now is that ‘It is all fun and games until someone be yours!!. loses an eye’. While it is not easy losing an eye Have a great 2012 everyone.....I know I will!!!!! the experience of having this cancer has taught me what is really important in my life - my family Neville Carswell (One-Eyed Wellingtonian) and friends and most importantly my own health and well-being. Unfortunately, like many, until now I have taken this for granted. I have had lots of really frustrating moments. Early after my surgery I decided that I would try and be as self-sufficient as I could hope to be. My first challenge, as easy as it may sound, was to make my own cereal....empty bowl (check), cereal poured into bowl (check), milk on cereal and not all over bench (check),yoghurt on top (perfect!!)...Wow and no spillages...how happy could I be!!!....Walking towards the dining room table I forgot about the fish tank on my left which my missing left eye would have normally seen and the contents of the cereal bowl were thrown all over the fish tank.... Oh well, tomorrow is another day I guess!!. 9 Neville seen here with his two sons, Caleb and Robbie. Ed’s note: At time of print Neville is successfully back at work and has just started driving again. CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa CANTALK SUMMER 2012 Book Review After Breast Cancer : Answers to questions you’re afraid to ask, by Musa Mayer (2003) This book is a wee gem. A writer by trade, Mayer was diagnosed with a Stage 2 breast cancer which did not show up on a mammogram. She writes about many of the technical aspects of breast cancer (studies and treatments), interspersed with her own perspective and weaving in information and communication she had had with friends and colleagues, including those on an international mailing list for Breast Cancer. Her information is most relevant to those with a diagnosis of invasive breast cancer, but don’t let the title put you off if your cancer was not invasive breast cancer, because Mayer has the knack of writing in a way that acknowledges many issues that are not specific to breast cancer, including fears about recurrence, about secondary cancer not being picked up early enough, about worrying you are not having enough follow-up checks, about over-reacting when you find another lump or bump - and about dealing with the loss and grief that will occur if you stay connected with other cancer patients and some don’t survive. Her book is informative, interesting and sometimes fun - I laughed as she related how what she thought was a full-blown cancer recurrence scare turned out to be an attack of gas! And, for me it was comforting. She starts off by reminding the reader that some of us have to survive. Why not you? Indeed, I thought. Why not me? Nicci Page Sleight of hand by Jo Hanley Some cancer patients wore a wig and so did I a silver cap to replace the hair fallen in clumps upon my pillow. It came with me everywhere gardening, cycling, concerts and walks and cheerful coffees with supportive friends always there. Without it, I felt old and sick which I was which I am that is not denied. But my wig gave me choice to conceal or reveal to shield those I love from too much pain to be all that I was and would be again. Then..... slowly..... my hair grew again soft and vulnerable as a baby’s down. And today I am washing my wig gently soaping and rinsing it ready to be put away for the next time. Incurable they say but I feel no despair my wig lets me choose to be me ....with hair! Cherry Juice aids sleep A recent small study shows that taking tart Montmorency cherry juice may offer slight assistance with sleep. All 15 volunteers had a small improvement in their sleep when they drank 30ml of cherry juice concentrate twice daily for 7 days. Tart cherry juice contains substances that lead to increased levels of melatonin, which is the hormone responsible for getting us to sleep. However, it is also very high in anti-oxidants and so not advisible for those on chemotherapy. Tart cherry juice is found in most health shops. http://www.ncbi.nlm.nih.gov/pubmed/20438325 10 CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa CANTALK SUMMER 2012 Library Update with Julie Holt Breast Cancer: The facts by Christabel Saunders and Sunil Jassal, Oxford University Press, UK, 2009. Concise guide to breast cancer written by two Australian breast surgeons. Writing Your Self: Transforming personal material by Myra Schneider, Continuum, UK, 2010. A comprehensive resource for exploring personal literature and life writing. My One Night Stand With Cancer by Tania Katan, Alyson Books, USA, 2005. Katan, who describes herself as ‘a lesbian and an optimist’ is diagnosed with breast cancer aged 23 years then again aged 31. This very well written memoir filled with ‘rage and humour’ tells her story of survivorship. 100 Questions and Answers About Men’s Health: Keeping you happy and healthy below the belt by Pamela Ellsworth Prostate Cancer Survivors Speak Their Minds by Arthur Burnett and Norman S Morris, John Wiley and Sons, USA, 2010. The authors, a prostate cancer surgeon and a prostate cancer survivor describe the medical facts about treatment options, side effects, and outcomes along with practical advice and moral support. What’s Up With Lyndon? Medkidz Explain Osteosarcoma by Kim Chilman-Blair and John Taddeo, American Cancer Society, USA, 2011. Another in this excellent series of graphic novels for teenagers explaining different types of cancer. The Cancer Nutrition Center Handbook by Carolyn Katzin, The Cancer Nutrition Center, USA, 3rd edition 2006. The author is a nutritionist with over twenty years’ experience working with people with cancer and their families. Writing My Way Through Cancer by Myra Schneider, Jessica Kingsley Publishers, UK, 2003. Poet and author Schneider describes how creative writing helped her through diagnosis, treatment and recovery from breast cancer. 11 Caring for a Loved One with Cancer by June Hunt, Crossway, USA, 2011. The author, a cancer survivor and spiritual counsellor, has written a really useful book for carers. Each brief single-topic chapter is full of helpful tips. The Weeping Willow by Lynne Dale Halamish and Doron Hermoni, Oxford University Press, USA, 2007. A collection of stories from the author’s extensive experience in counselling people about loss. CDs/DVDs Relaxation for People With Cancer, Their Families and Friends, Cancer Council NSW, Australia, 2010, and Mindful Meditation for People With Cancer, Their Families and Friends, Cancer Council NSW, Australia, 2010. These two CDs narrated by psychologist Dr Lisbeth Lane guide you through the basics of relaxation and mindfulness. Cancer: A positive journey. Auckland Deaf Society, Auckland, New Zealand, 2011. A DVD for the deaf community narrated in New Zealand Sign Language. Describes the journey of two women who talk about their personal experiences with cancer and gives information about support services available. CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa CANTALK SUMMER 2012 What’s on in our centres Wairarapa • Grief Recovery Programme starting in March • Living Well with Cancer Course starting in March • Look Good Feel Better - bookings essential • Contact the Centre if interested in Art Therapy, Carers Workshops, and Lymphoedema management Contact Cancer Society Wairarapa 06 378 8039 or email: enquiries@ cancersoc.org.nz for these and all other supportive initiatives. Blenheim / Marlborough • Next Look Good Feel Better - 13 February • Marlborough Skin Awareness Clinics - doctor-led clinics that give advice on moles, freckles, skin changes and sun damage. Picton - Friday 24 February - Parish Hall, 3pm - 7pm Blenheim - Friday 23 March - Civic Theatre, 2pm - 7pm • Yoga Classes will recommence in early February • GRAPERIDE Cycling Event - Saturday 24 March - www.graperide. co.nz. Contact office if interested in joining a small group training for the 19km survivor’s ride. For futher information about these and other CanSupport programmes, talks and the local newsletter contact Margot Wilson 03 579 4379. Nelson • Look Good Feel Better • Living Well with Cancer Programme • Public Education Seminars • Relay For Life starting 3 March at 4pm - www.relayforlife.org.nz. If you have had a cancer diagnosis, whether recently or not, we invite you to join us at our upcoming fabulous Relay For Life event. For futher information about these and other CanSupport programmes, talks, ongoing support groups for those with prostate cancer, breast cancer, lymphoedema, Lost Chord club and more; Contact Linda Lucre: 03 539 3662 or email: [email protected] 12 CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa Other supportive services CANTALK SUMMER 2012 CanNow - Moving Forward Look Good ... Feel Better Leigh Renai - Coordinator A free programme for women with cancer. Learn, through hands-on experience, techniques to help restore your appearance and self-image during chemotherapy and radiation treatment. Contact us at the Cancer Society 04 389 8421 Information nurses offer a one-on-one programme to promote wellbeing for women after early breast cancer. Discuss your concerns, regain direction and energy after cancer. Contact us: 04 389 8421 or [email protected] Art Therapy Silky Pillows Not to be missed – this is a real treat! With Mary Brownlow An opportunity for cancer patients or those close to them to express their feelings or fears through drawing, painting or working with clay. Art Therapy is particularly good for children who have a parent with cancer. It allows them to express their fears and feelings in a very safe, supportive way. Fee: $25.00 waged or $10.00 if unwaged. Call Fiona Pearson on 04 389 0053 Art therapy also offered in the Wairarapa Contact Cancer Society 06 378 8039 Massage Bobbie-Joe Wilson Tuesdays between 9am-3pm Fees on a sliding scale of $15-$40 Relaxing, soothing massages to help both mind and body. Subsidised by the Cancer Society and offered at the Cancer Society Rooms, 52 Riddiford St, Newtown. Contact us at the Cancer Society on 04 389 8421 to make an appointment. The Silky Pillow is a soft kidney-shaped satin pillow which can be worn under clothing to protect your body from knocks and assist with a comfortable night’s sleep after surgery or radiotherapy. Also excellent in providing a little extra support under the car seatbelt when in the car. Silky Pillows are made by women of various Inner Wheel clubs for those who have had breast surgery or treatment. We would like to offer them also to others who may like additional comfort following abdominal, chest or bowel surgery. Free of charge. Contact us at the Cancer Society – 04 389 8421 Lymphoedema Assessment & Management Clinic – Loam Learn how to successfully manage your lymphoedema with expert assessment and education. This is a subsidised service offered by the Cancer Society, with clinics run in Newtown, Lower Hutt, Kapiti and the Wairarapa. A medical referral is required – contact your GP, surgeon or cancer care team. Cost: $15.00/session. Contact us at the Cancer Society Wgtn – 04 389 8421, or Wairarapa 06 378 8039 13 CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa Wellington, Hutt, Porirua & Kapiti Groups All these groups below invite support people as well as anyone who has had an experience with any type of cancer. New members please contact Virginia Lee on 04 389 0084 or email [email protected] before attending. CanX 2nd Wednesday of each month, 5.30pm - 7.30pm, Cancer Society, 52 Riddiford St, Newtown. This lively group caters for those under 50yrs affected by cancer. Facilitated by Gay Dungey & Mel Higson Upper Hutt Evening Support Group 2nd Wednesday of each month, 7.30pm - 9.00pm, Silverstream, Upper Hutt Facilitated by Claire Laurenson 04 970 1222 Porirua Cancer Support Group 1st Friday of each month, 10am - 12 noon 20 Ngatitoa Street, Elsdon, Porirua Facilitated by Natalie Kini Contact Natalie: 04 237 0110 or 04 237 6778 Kapiti CanSurvive Group 4th Tuesday of each month, 6.30pm - 8.30pm Kapiti Rotary Room, Community Centre, Paraparaumu Contact Judy Dickie: 04 298 8514 CANTALK SUMMER 2012 Multiple Myeloma Support Group This warm group hold informal lunches 4-6 weekly in rotation at Kapiti, the Hutt Valley and Wellington. Next one Sat 11 Feb in Kapiti. All those coping with Multiple Myeloma and support people are invited. Members are also willing to talk to any newly-diagnosed patient by phone or individual meeting. Contact Audrey Swallow: 04 298 3117 (Kapiti). Prostate Cancer (PALS) 4th Tuesday of each month, 7.30pm - 9.00pm, Cancer Society, 52 Riddiford St, Newtown. The group regularly invites speakers and enjoys discussion, sharing experiences, gaining of perspective and support. Contact Paul Kane: 021 029 88258 Spirited Women 1st Wednesday of each month, 12 noon 2.00pm, Cancer Society, 52 Riddiford St, Newtown. Bring some lunch to share. Speakers invited every 2nd month. Facilitated by Elva Phillips and Martina Cziharz Hutt Valley Breast Friends 1st Tuesday of each month, 7.00pm - 9.00pm, St Mark’s Church, 58 Woburn Road, Lower Hutt Facilitated by Laurie Lawler & Claire Laurenson Spirited Women - Kapiti Breast Cancer Shared Lunch 3rd Wednesday of each month,12.30pm -2.00pm Kapiti Community Centre, Paraparaumu. Bring some lunch (sharing it is optional). Contact Judy Dickie: 04 298 8514 or email [email protected] Mareikura Support Group for Maori & Whānau 3rd Friday of each month, 10am - 12 noon Mary Potter Hospice, Warrimoo St, Paraparaumu Contact Miriama: 04 902 7095 or email [email protected] 14 CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa CANTALK SUMMER 2012 Letter to the Editor As someone who has twice been diagnosed with early breast cancer (in 2000 and 2006) I was very interested to read the article on pages 5-6 in the Spring 60 issue of CanTalk by Lynn Harwood. However, I was left wondering if any research has been done on why women do not complete their oral hormone therapy. One was left with the impression that women who don’t complete their therapy were neglectful and perhaps foolish. In my own case, I had to discontinue Tamoxifen after 18 months (with the consent of my surgeon, oncologist and GP) as it was affecting my liver. In my later ‘adventure’ I had to discontinue using another brand after 3 weeks because of the extreme side-effects on my nervous system. Again, the medical professionals were in agreement this was necessary. Wairarapa Groups Jacinta Buchanan co-ordinates and facilitates all the Wairarapa Networking/Support Groups. For any information about any group: Contact: 06 378 8039 Womens Support Group 3rd Wednesday of each month, 11am - 1pm Cancer Society - 140 Dixon St, Masterton Co-facilitated by Ngaire Potangaroa I wonder how many other women have been affected as I was and have had to discontinue their therapy. Diane Grant. Mens Support Group A group for men coping with any type of cancer. Every 4th Wednesday, 12.30pm-2.30pm. Cancer Society - 140 Dixon St, Masterton. Co-facilitated with Brent Matthews. South Wairarapa CanSupport In partnership with Family Works Every 2nd Wednesday 1-3pm. Turrett House, 42 Fox Street, Featherston. Co-facilitated by Robyn Burns Myeloma & Blood Cancer Support Luncheon Meeting with speaker. 6th November, 12-2pm - 140 Dixon St, Masterton Partners and Carers Support Group 1st Wednesday of each month, 1-3pm Cancer Society - 140 Dixon St, Masterton Independent groups in Masterton supported by Cancer Society Wairarapa Wairarapa Breast Cancer Support Group 1st Monday of each month, 10am - 11.30am Facilitated by Doff Simmonds 06 304 9748. Wairarapa Prostate Cancer Support Group 1st Tuesday of each month, 1.30pm-2.30pm Facilitated by Robert Brader 06 370 8699. 15 Ed’s reply: Thank you for raising what is a very important point - namely that there are many women who would have continued taking their oral hormone therapy had they not suffered side-effects leading them to discontinue their therapy.This article and research was based on prescription uptake and so the reasons contributing were not understood. Joke A strong young man at the construction site was bragging that he could outdo anyone in a feat of strength. He made a special target of one of the older workmen. After several minutes, the older worker had enough. ‘Why don’t you put your money where your mouth is?’ he said. ‘I will bet a week’s wages that I can haul something in a wheelbarrow over to that outbuilding that you won’t be able to wheel back.’ ‘You’re on, old man,’ the braggart replied. “Let’s see what you’ve got.’ The old man reached out and grabbed the wheelbarrow by the handles. Then, nodding to the young man, he said, ‘All right, get in!’ CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa CanSupport programme February - April 2012 Attendance is open to anyone who is currently in treatment or those who have received treatment anytime in the last 3 years and any whānau or family of those affected by cancer. In Wellington: Carers and Partners of those with Brain Tumours with Fiona Pearson and Virginia Lee Date: Starting Tuesday 6th March 2012 for 4 weeks Time: 12.30-2pm (Lunch provided) Venue: Cancer Society Rooms, 52 Riddiford St, Newtown To enrol: Contact Virginia Lee - 04 389 0084 or [email protected] This is a group for partners and family members of someone who has a brain tumour. It is run as a four week course held over the lunch hour. Its purpose is to discuss common concerns, to gather information and to learn strategies to help carers and partners manage this difficult time. Fiona Pearson is the Manager of Support Services and a counsellor at the Cancer Society, Wellington. What am I entitled to? CANTALK SUMMER 2012 Most sessions are FREE but occasionally costs apply. Enrolment is required for all programmes. Each workshop has a minimum and a maximum limit. To enrol: Contact Virginia Lee on 04 389 0084 or email: [email protected] In Lower Hutt: Nordic Walking with Leanne Toledo Cortés Date: Starting Tuesday 21st February 2012 for 6 weeks Time: 10am – 12.00 Venue: Lower Hutt walkway, to be advised or for transport, meet at the Cancer Society Rooms Riddiford St Newtown at 9.30am To enrol: Contact Virginia Lee 04 389 0084 or [email protected] Nordic walking offers great exercise in a scenic environment. A minimal level of fitness required- if you can stand/walk for 45 minutes - you can Nordic walk. Walking with poles is a great way to build or maintain a degree of fitness for those in treatment, recovery and beyond. Also open to whānau, family and carers. The Cancer Society provides poles (limited numbers) and some transport to the walking venue. To get specific details of walk track or to arrange transport to the walking route please call or e-mail Virginia. Lee Toledo Cortés works as a Health Promoter at the Cancer Society and is a Nordic Walking instructor. An information session is offered as an individual appointment with Virginia Lee. This 50 minute session will cover entitlements and how to access health and social services. Questions welcomed. To enrol: Contact Virginia Lee 389 0084 virginia. [email protected] 16 CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa CANTALK SUMMER 2012 In Porirua: Relaxation for mind body and wellbeing with Mr Bobbie-Joe Wilson Living Well - education programmes Our Living Well programmes are for anyone affected by cancer wherever you are in your cancer journey. Family/ whānau, partners, carers or friends are all welcome. Living Well offers practical ways of living well, building self-knowledge, self-confidence and selfhelp skills.Topics such as: understanding what cancer is, nutrition, managing personal reactions, living with uncertainty, relaxation skills, communicating with your healthcare team and dealing with family stress are all discussed. i) Living Well - For those treated for Mouth, Nose or Throat Cancers - Wellington with Hazel Neser and Rita Klus Date: Starts Monday 20 February for 6 weeks Time: 6.00pm-8.00pm (Light meal provided) Venue: Cancer Society, 52 Riddiford St, Newtown. To enrol: Contact Hazel Neser - 04 389 8421 or email [email protected] ii) Living Well - Kapiti with Judy Dickie and Sue Jamieson Date: Starting Monday 26 March for 6 weeks to 7 May - (excluding Easter Monday) Time: 6.30pm-8.30pm Venue: Kapiti Health Centre, Warrimoo St, Paraparaumu. To enrol: Contact Judy Dickie 04 298 8514 or email [email protected] Wellington: Prostate Cancer Information Forum Date: Saturday 10th March 2012 Time: 12.30-4pm Venue: Cancer Society Rooms, 52 Riddiford St, Newtown To enrol: Contact Virginia Lee 04 389 0084 or [email protected] This 3 hour forum aims answer your questions and provide information about diagnosis, treatment and side effects of prostate cancer. Lunch will be served, followed by guest speakers and a panel of health professionals. 17 Date: Starting Monday 20th February for 6 weeks, ending Monday 26th March 2012 Time: 10am-12midday Venue: Ora Toa Medical Centre, Bedford St Porirua To enrol: Contact Virginia Lee 04 389 0084 or [email protected] Numbers definitely limited. Attendance at all 6 sessions strongly advised. This course is open to all those with cancer and/or family or whānau. Bobbie-Joe is the massage and relaxation therapist with the Cancer Society in Newtown. In Wellington: Mindfulness with Stephen Archer Date: Starting Thursday 16th February for 6 weeks – ending Thurs 5th April with a 2 week break from classes on 8th &15th March 2012 Time: 4.15-4.45pm Venue: Pa Maria 78 Hobson St, Thorndon To enrol: Contact Virginia Lee 04 389 0084 or [email protected]. Numbers definitely limited. Attendance at all 6 sessions strongly advised. Koha suggested. ‘Mindfulness is a self-management wellness approach which assists us to change the way we think, feel and act. The sessions will be divided between practical exercises and teaching and reflection time. Notes and an instruction CD are available to assist with home practice. Repeated mindfulness practice can lead to positive life changes including reducing stress and anxiety, reducing chronic physical pain, boosting the immune system, coping with difficult life events such as change, dealing with negative emotions, reducing insomnia, helping to improve concentration, induce a sense of happiness and wellbeing’. (Stephen Archer’s information) Stephen Archer is a Wellington teacher and practitioner of Mindfulness Based Stress Reduction techniques, his website is www.mindfulnesstraining.co.nz CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa CANTALK SUMMER 2012 Wellington: Complementary Therapies with Professor Shaun Holt Date: Tuesday 27th March 2012 Time: 7-8.30pm Venue: Cancer Society Rooms, 52 Riddiford St, Newtown To enrol: Contact Virginia Lee 04 389 0084 or [email protected] Prof. Shaun Holt will present an evidence-based overview of the use of complementary therapies for cancer. His book, Complementary Therapies for Cancer, has been written for anyone with cancer and for health care professionals. Prof Shaun Holt lectures at Victoria University of Wellington, holds Pharmacy and Medicine degrees, has been the Principal Investigator in over 50 clinical trials. He is an Honorary Research Fellow at the Medical Research Institute of New Zealand, and is the author of 6 books. Men’s Evening with Edmund Salem and Grant Wattie For men who have a family member with a lifethreatening illness. Rally for Relay For Life Cancer Society Wellington Division’s tenth Relay For Life will be held at Frank Kitts Park, Jervois Quay, over the weekend of 31st March – 1st April. The waterfront park will once again become a marquee city and temporary home to over 1,500 Relay participants and visitors in this actionpacked FUNdraiser. Our second Relay For Life – Porirua will be held at Te Rauparaha Arena on 25th – 26th February and promises to be an amazing day and night for all! The Cancer Society’s Relay For Life is a remarkable community event that helps communities: and acknowledge cancer survivors Date: Wednesday, 29 February Time: 6.30pm - 8.30pm Venue: to be confirmed To enrol: Contact Elva Phillips 021 328 835 This event is hosted by Mary Potter Hospice and Sweet Louise. Healthy-Steps moving you to better health with the Lebed Method Saturdays, 9.15am - 10am, St John’s Church Hall Johnsonville Mondays, 6pm-7pm, 52 Riddiford St, Newtown Thursdays, 10.00-11.30am, DanzPort, Upper Hutt Costs: (Negotiable on individual basis) $40.00 for 8 weeks. Free trial lesson offered Contact: Di Graham 04 934 3083 (Johnsonville) Naena Chhima 04 389 8421 (Wgtn) Kathryn Clark 04 526 7370 (Upper Hutt) loved ones lost to cancer against cancer, which affects one in three New Zealanders Relay For Life is more than just a fundraiser. It’s a life-changing experience. Everyone’s reason to participate in Relay is as unique as their own personal story. At Relay, people can find healing, comfort and support from others who have faced cancer, or who have lost a loved one to the disease. For more information about Relay For Life or to register a team contact the Cancer Society on (04) 389 8421 or visit www.relayforlife.org.nz Rachael Hadwen 18 CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa CANTALK SUMMER 2012 Wellington (04) 389 8421 Kapiti (04) 298 8514 Nelson (03) 539 3662 The Cancer Society’s free support services can help you or someone you care about • understand cancer • talk with others • understand treatment • find support ANY CANCER, ANY QUESTION 0800 CANCER (226 237) Cancer Information Helpline Marlborough (03) 579 4379 Wairarapa (06) 378 8039 Visit the Wellington Division at 52 Riddiford St, Newtown Wellington 6021 Email:info@ cancersoc.org.nz www.cancernz.org.nz CanTalk Please add me to the CanTalk Newsletter mailing list Please remove me from the CanTalk Newsletter mailing list I have some questions/would like some more information - (supply daytime phone number or contact) I would like to receive my CanTalk Newsletter by email. ( Insert email address below) FIRST NAME:SURNAME: ADDRESS: PHONE:EMAIL: Please tick one of the following options Patient Caregiver Other (please state) Cancer diagnosed with or cancer/s interesed in:______________________________________________ Any comments on this issue: Send to Cancer Society - Wellington Division, PO Box 7125, Wellington 6242 ; Visit 52 Riddiford Street, Newtown, Wellington; phone 04 389 8421 or email Sue Corkill - [email protected] Newsletters with local content are available in Nelson, Wairarapa and Blenheim Please contact your local Cancer Society office. Nelson: 03 539 3662 Blenheim: 03 579 4379 Wairarapa: 06 378 8039 For Cancer Information and Support phone 0800 CANCER (226 237) or go to www.cancernz.org.nz