july 2013 E-News

News
Inside this Issue:
BIKE CAMP
for individuals with disabilities
July 29-August 2, 2013
UTA Mavericks Activities Center
Our Special Heroes 2
iCan Bike
Upcoming Events
3
4-5
Green Oaks School 6
Club 321
7
Calendar & Events
8
Buddy Walk
Sponsors
9
Notices
10
SAVE THE DATE!
North Texas
Buddy Walk
October 19, 2013
University of Texas at
Arlington
www.dspnt.org/events/
buddy-walk/
JULY 2013
How it Works
iCan Bike uses adapted bicycles, a specialized program, and trained staff. Riders will a9end the same 75‐minute session for 5 consecu.ve days (M – F) where they are physically assisted & encouraged by 2 volunteer “spo9ers”. Rider Requirements
iCan Bike riders are children 8 & up, teens, and adults who have a diagnosed disability but are able to walk without assisEve devices & step from side to side. The cost is $125 for riders with Down syndrome and $150 for all other disabiliEes. A limited number scholarships are available. How to Register
To parEcipate as a rider or volunteer, please visit www.dspnt.org & fill out the Rider RegistraEon form (under Events tab). Please email or call with any quesEons. Se habla español. Phone: 817‐390‐2970, Email: [email protected] Join Us for the Annual DSPNT Swim Party!
Saturday July 13, 2013 from 6:30pm-8:30pm
Chisholm Aquatics Center 2200 Norwood Drive Hurst, Texas 76053
Summer Snacks!
(No flotation devices or pool toys are allowed)
RSVP by email to:
[email protected]
or call 817-390-2970
Extended family & friends
are welcome to join the fun.
Please bring $5 admission
fee for additional guests.
PAGE 2
12TH ANNUAL OUR SPECIAL HEROES GOLF CLASSIC
The 12th Annual Our Special Heroes Golf Classic at Texas Star Golf
Course in Euless was a complete success! This year’s Golf Classic
grossed $50,000 thanks to our passionate volunteers, devoted
committee, generous sponsors and welcoming community.
These funds will support programs at DSPNT, including the Fourth
Annual iCan Bike Camp (July 29-August 2).
This year’s sponsors
The 2012 Our Special Heroes Committee
include:
Frost Insurance
Members:
Moritz Dealerships
Railroad Controls Limited
Modern Heat Treat
Blue Mesa Grill
Co-Chairmen, Jerad Gabbert & Newley
Data Center Systems, Inc. Blue Glo Home Media
Spikes
Arco Contractors Supply
Charter Communications
Graham Robbins, Barney Wiley, Chris
Trinity Bank
Karla & Brent Klum
Fuzzy’s Taco Shop
Miner, Denver Dahlke, Ruben Guerra, Matt
Henry House Foundation
Squeaky Moose
Texas Motor Speedway
Stadler, Patrick Bierle, Stephen Moore, J.R.
Integra Funding Solutions
Dean Oram
McLaughlin, Tommy Johnson , Jason
Roy & Nancy Rimmer
Jason Robertson
Littlejohn, Wess Peterson, Craig Holmes ,
Shannon & Stephen Nolan House of Blades
Don LaPlante, Lyndon LaPlante, Cory
Royer & Schutts
First Tee
Boggess, Brock Brandenberg, Hector
Teague Lumber Co.
The Thompson Group at
Pulido,
Shawn Clark, Michael Rothwell,
Nestle Waters
Classic Chevrolet
Mark Gabbert
FFE Transportation
In
addition
to
the
2013
Our
Special
Heroes
Committee
Members, we
Services, Inc.
Boopa's Bagel Deli
had over 50 volunteers come out to help on tournament day!
DSPNT Contacts:
Program Specialist:
Maria Montes
Board of Directors:
President:
Amber D. Holmes
[email protected]
Vice President:
Misty Giles Holmes
[email protected]
Past President
Marilyn Tolbert
[email protected]
Director of Education:
Barbi Beard-Wolfe
[email protected]
Treasurer:
Newley Spikes
[email protected]
Secretary:
Holly Pils
[email protected]
Legal Counsel:
Cory Boggess
[email protected]
D.A.D.S. Group Coordinator:
Patrick Bierle
[email protected]
Moms Night Out
Mattie Gabbert
[email protected]
New Parent Outreach:
Barbi Beard-Wolfe, Chair
[email protected]
Playgroup Coordinator-Ages 6-9
Schunda Murphy
[email protected]
Sunshine/Angel Food
Mattie Gabbert
[email protected]
Learning Together Coordinator
Heather Landeros
[email protected]
Board Members:
Andy Crim
[email protected]
Jessica Brown
[email protected]
Whitney McKimmey
[email protected]
Leigh Weedman
[email protected]
Heather Shults
[email protected]
Heidi Doty
[email protected]
Tammy Decker
[email protected]
Shawn Clark
[email protected]
Heather Landeros
[email protected]
Anisha Glidewell
[email protected]
Self-Advocates:
Lyndon LaPlante
[email protected]
Erin Dunn
_______________________
Event/Program Chairs:
Buddy Walk - Amber D. Holmes
[email protected]
Golf Classic - Jared Gabbert
[email protected]
Parents & Schools in
Partnership - Theresa Moffitt
[email protected]
Tween Activities - Ages 10-12
Down Syndrome Clinic:
Rhonda Hawkins
682-885-2181
Hispanic Outreach:
Heather Shults & Hector Pulido
[email protected]
Club 321:
Michelle Pollard
[email protected]
Yahoo E-mail Group:
Tammy Decker
[email protected]
VP of Socials and Events
Mattie Gabbert
[email protected] Please Note: The content of this newsletter is provided for informational purposes only and is not a substitute for
medical or other professional advice. The opinions, beliefs and viewpoints expressed herein are those of the
individual authors and do not necessarily represent those of the DSPNT directors, members or editors.
DSPNT NEWS
PAGE 3
Bike Camp
for Individuals with Disabilities
July 29-August 2, 2013
How it Works
iCan Shine, Inc., along with the Down Syndrome Partnership of
North Texas, will be at UTA in Arlington to teach individuals with
disabilities how to become lifelong independent riders!
Travis’ Story
Christmas 2012, Santa brought
Travis a bicycle with all the
trimmings. He was so thrilled,
he immediately went out to try
and learn. It was a nightmare
and he retired his bike after 3
failed sessions. Later, his family
heard about (Lose the Training
Wheels), now iCan Bike &
signed him up! The first day
Travis was greeted by Ben, who
also has Down syndrome. After
5 long days of encouragement,
patience, and sore legs, Travis is
now able to ride a bike with his
mom just holding the handle bar.
We will return this year to “lose
the handle bar” so he can “do it
all my himself!” Camp was a
huge blessing to Travis and me!
-Tammy Decker, Travis‘ mom &
DSPNT board member
iCan Bike uses a fleet of adapted bicycles, a specialized
instructional program and a trained staff. Riders attend the same
75-minute session each day for 5 consecutive days (M – F)
whereby they are physically assisted and encouraged by 2
volunteer “spotters”. Over the course of the camp the adapted bike
is adjusted to gradually introduce more instability in an effort to
challenge riders at their own individual pace. The week is
concluded with a touching and inspiring award ceremony!
iCan Bike riders are children ages 8 and up, teens, and sometimes
adults who have a diagnosed disability but are able to walk without
assistive devices and sidestep from side to side.
How You Can Help
Be a Volunteer
Be a “spotter” for the same rider
for each of the 5 days and
experience the thrill of giving
the gift of riding a bike! 75
invigorating minutes per day!
it just may be the most
rewarding exercise and
emotional experience you’ve
ever had! To volunteer to be a
spotter for a rider
email: [email protected]
Teach them to ride and
see where they go....
How to Register
To participate as a rider or volunteer,
visit www.dspnt.org, email:
[email protected], or call
817-390-2970.
DSPNT NEWS
Be a Donor
Sponsor one child by making a
donation of any kind! To
support this endeavor contact
our Program Specialist at
(817) 390-2970, or email
[email protected]
.
..a milestone in life that
creates confidence,
independence
& friendship
PAGE 4
Upcoming Family Events and Opportunities!
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A graduate student at TCU needs
your help! We are looking for
individuals with Down syndrome
Study Aims
to participate in a research thesis.
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• Between the ages of 7 and 15
• Uses verbal language to communicate
• Able to tell a story when asked to do so
Please contact Alison Hessling at [email protected] or 817.773.9953
with any questions, or if you are interested in participating.
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Save the date and print the coupons for
Hawaiian Falls Champions Day
August 17, 2013
individuals with special needs get in FREE at any
Hawaiian Falls location, and their family members are
only $5! Visit http://hfalls.com/championsday/
DSPNT NEWS
Open Volunteer Position for
DSPNT:
Tween Group Coordinator (ages 10-12)
Duties: Identifying a location and organizing a fun,
monthly event. Corresponding with parents of the
group via DSPTC yahoo group and individual emails as
necessary to send invites and coordinate rsvp's.
Monthly Time Commitment: 6-8 hours
Mattie Gabbert [email protected]
JOIN A COMMITTEE!
What interests you?
Buddy Walk?
Adult Options?
10-12 year olds?
Swim Party?
Holiday Party?
Not on this list?
[email protected]
New Play Group!
Infant-24 Months (and anyone else!)
Stay tuned for our next infant/toddler playgroup
in August 2013!
Location: TBD
More Info: Anne Henshaw [email protected]
BIENVENIDOS!
Tenemos un nuevo contacto
La Asociacion Syndrome de Down de Tarrant County prove
recursos y apoyo para gente con syndrome de down y sus
familias. Mas informacion: Favor de llamar a Heather y
Hector Pulido, [email protected].
Ages 6-9 Playgroup!
We will resume our play group in August!
See you at the July 13 DSPNT Swim Party!
For 6-9 Play group info contact:
[email protected]
Buffalo Wild Wings in Arlington is doing a monthly fundraiser
for the Down Syndrome Partnership of North Texas called
“Eat Wings, Raise Funds.” Simply mention the DSPNT when
you dine on a designated fundraising date and 10% of your
bill (excluding tax and alcohol) will be contributed to the
DSPTC. Thank you, Buffalo Wild Wings!
DSPNT fundraising dates are the first Wednesday of the month, unless otherwise indicated:
July 10~August 14~September 11~
October 16~November 13~ December 11~
PAGE 6
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PAGE 7
ADULT SOCIAL CLUB!
Club321 is on Facebook!!
Upcoming Club321 Events
DSPNT Swim Party
Saturday, July 13 from 6:30-8:30 PM
Chisholm Aquatics Center
2200 Norwood Dr. Hurst, TX 76054
Dinner will be served. We will take vans from Green Oaks School to
the event. Members riding in the van should be at Green Oaks
School no later than 5:30 the day of the event. The van will be
back to the school for pick up around 9:30.
Members must RSVP to [email protected] by
Monday, July 8th in order to attend this event. With your RSVP
please let me know if your member will be riding in the van or
meeting us there.
Summer Movie Night
Friday, July 26
6:30-9:00 PM
Location TBD
Dinner Provided,
Bring a snack
Members, please be sure to RSVP by email for every event you will be attending. Please also remember to bring $5.00 each time we
get together. Club321 membership is by application. Membership and events are for adults, ages 18 and older, who have
intellectual disabilities, such as Down syndrome. Club321 is a collaborative project of the DSPNT and Green Oaks School.
An RSVP for each participant is required. For additional information or to RSVP, call 817-496-5100 or email
[email protected].
DSPNT NEWS
July 2013
July 4
July 9
Jul 10
July 13
July 19
July 19-21
July 22
Jul 29-Aug 2
July 26
Happy July 4th!
D.A.D.S. Understanding Down Syndrome Webinar
Eat Wings, Raise Funds (Benefitting DSPNT)
DSPNT Swim Party
Mom’s Night Out
National Down Syndrome Congress Annual Convention
(http://convention.ndsccenter.org)
ANSERS Institute: “Writing IEPs”
iCan Bike (formerly Lose the Training Wheels™)
Club 321- Movie Night
Aug 14
Aug 16
Aug 17
Sept 12
Oct 19
Eat Wings, Raise Funds (Benefitting DSPNT)
Mom’s Night Out
Champions Day
D.A.D.S Poker Tournament
NORTH TEXAS Buddy Walk
A LOOK AHEAD
Understanding the Basics of Down Syndrome Research Webinar ‐ and how you can help
Join D.A.D.S. at Cooper’s Barbecue as we view the webinar
Tuesday July 9, 2013, 6:00‐7:30 CST
We know what it means to have a person with Down syndrome in our lives, but what does it mean to have Down syndrome? Even though we’re aware of the definiEon — three copies of chromosome 21 instead of two — there’s a lot sEll to learn about why this “triplicaEon” occurs. What kind of therapies, medicaEons or strategies may be on the horizon to help improve the lives of people with Down syndrome? Office Closed
Cooper’s Barbecue
Buffalo Wild Wings Arlington
Hurst Aquatic Center
PF Changs, Grapevine
Denver, CO
Birdville ISD
University of Texas at Arlington
TBD
Buffalo Wild Wings Arlington
Uncle Julio’s Fort Worth
Hawaiian Falls Water Park
Sendera Center
UTA
We would like to extend our sincere
gratitude to Malyn Bannister for the
Special Needs Pageant donation to
DSPNT. Their generosity allows us to
provide events & support for our
family members free of charge.
Join D.A.D.S. and the Global Down Syndrome FoundaEon as we cut through the complexity of the science to show what’s going on in the world of Down syndrome research and how it can affect your family. This informaEve webinar will feature two leading scienEsts from the Linda Crnic InsEtute for Down Syndrome: Tom Blumenthal, Ph.D., ExecuEve Director & HunEngton Po9er, Ph.D. , Director of Alzheimer’s Research
Sign up for you or your D.A.D.S. group now by going to h9ps://
www1.gotomeeEng.com/register/794287609 We would also like to thank Aledo
Yoga & Wellness for their Summer
Kickoff Party on June 7. Our families
truly enjoyed this free event!
PAGE 9
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DSPNT NEWS
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Down Syndrome Partnership of North Texas
1300 West Lancaster Avenue, Suite 227
Ft. Worth, Texas 76102-3490
817-390-2970
CHANGE SERVICE REQUESTED
July 2013
D.A.D.S.
(Dads Appreciating Down
Syndrome)
Dual Diagnosis Group!
This group is for moms (or dads) whose
child with Down syndrome also has a
Mom’s
Night Out
July 19, 2013
6:30 pm
PF Chang’s
650 TX 114
Grapevine, TX
D.A.D.S. is a community of fathers of
children who have Down syndrome who
come together to share insights and
experiences, and who want to help create a
better environment for their children with
Down syndrome as well as for their
typically developing children. The group
meets monthly on Tuesdays at Cooper’s
BBQ. For more information or to RSVP,
contact Patrick Bierle [email protected]
For July D.A.D.S. will be hosting a group
at Cooper’s Barbecue in the Fort Worth
Stockyards at 6:00 pm to participate in
the webinar, Understanding the Basics of
Down Syndrome Research- and how we
can help.
RSVP to
[email protected]
second diagnosis under the autism
umbrella (Autism, ASD, PDD). The purpose
of the group is to network with and support
each other in our unique challenges.
Contact Robyn Hardison at 817-905-6546 or
[email protected]
Have you liked us on Facebook?
Find out whatʼs happening
at DSPNT!
www.facebook.com/dspnt
Homeschooling?
We have a wonderful group of home schooling families who
share lots of information, ideas and support for those who are
homeschooling a child with Down syndrome. We welcome other
families who would like to join in our discussions and find
answers to questions, who are considering homeschooling or
who would like to share resources about homeschooling in
Texas.
Please email Amy Powers at [email protected].
Also, check out the DFW Ds Homeschool Yahoo Group
at http://groups.yahoo.com/group/dfwdshomeschoolsupport/.