February 2013 DSPNT News - Down Syndrome Partnership of North

February 2013
Inside this Issue:
DSPNT’s New Intern 2
Boopa’s Walk/Run 3
B-B Ranch RoundUp
4
World Down
Syndrome Day
4
iCan Shine
5
Research
Participants
6
Learning Together
6
Volunteers for
Learning Together
6
NDSC Convention
7
Message from our President, Amber D. Holmes
Happy New Year!
TCU Math Workshop 8
Greg Shapley
8
Club 321
9
Calendar
10
Buddy Walk
Sponsors
10
Special Needs
Pageant
11
Tween & Teen
Coordinators
11
Notices
12
I wanted to say how honored I am to serve as the
Board of Directors, President. I have loved every
moment since I became involved with the Down
Syndrome Partnership. The support, friendship,
knowledge and fun I have experienced since
joining cannot be put into words. Our world would
not have been the same without all of you.
This year is going to be our best yet! We have
exciting events and are putting a large portion of our
efforts into increasing the Partnership’s role in education; not only for those with
Down syndrome. We are planning educational events for parents, loved ones,
teachers, care takers and medical professionals. It is our goal to provide as much
support and education as possible.
We have many projects and committees and would love your participation! If you
are interested in learning more please let us know.
I have met many of you and hope to meet many more this year. Please don’t
hesitate to contact me at any time. The goal of our board is to best serve our
community and families. Your thoughts, ideas; suggestions are greatly
encouraged.
Amber D. Holmes, Chance’s mom :)
Membership Update Survey
Did you know there are over 600 families involved with DSPNT!?
We would like to have your most current information so that we can
better communicate with you our latest and greatest happenings.
Would you be willing to take a few minutes and complete the
survey at the link provided below?
http://www.surveymonkey.com/s/6VP66L7
Enrique Lopez
Thank you for helping us out!
PAGE 2
Welcome, Courtney Knotts!
DSPNT’s New Intern from TCU
Hello my name is Courtney Knotts!
I’m from Chicago; don’t hold it
against me! I’m a freshman Special
Education major at Texas Christian
University and am loving every
minute of it. In high school, I was
president of a club which centered
on volunteering with organizations
that focused on people with
disabilities. This is my passion, and
what I hope to do for the rest of my
life. I can’t wait to get more
involved!
DSPNT Contacts:
Executive Director:
Lindsay Klatzkin
Board of Directors:
President:
Amber D. Holmes
[email protected]
Past President
Marilyn Tolbert
[email protected]
Vice President
Andy Crim
[email protected]
Vice Presidents of Education:
1st—Kristen Adams
[email protected]
2nd—Anisha Glidewell
[email protected]
3rd—Heather Landeros
[email protected]
Treasurer:
Newley Spikes
[email protected]
Secretary:
Holly Pils
[email protected]
VP of Socials:
Mattie Gabbert
[email protected]
Legal Counsel:
Cory Boggess
[email protected]
D.A.D.S. Group Coordinator:
Patrick Bierle
[email protected]
Moms Night Out
Mattie Gabbert
[email protected]
New Parent Outreach:
Barbi Beard-Wolfe, Chair
[email protected]
Playgroup Coordinator-Ages 6-9
Schunda Murphy
[email protected]
Sunshine/Angel Food
Mattie Gabbert
[email protected]
Board Members:
Jessica Brown
[email protected]
Whitney McKimmey
[email protected]
Leigh Weedman
[email protected]
Heather Shults
[email protected]
Heidi Doty
[email protected]
Misty Giles Holmes
[email protected]
Tammy Decker
[email protected]
Shawn Clark
[email protected]
Self-Advocates:
Lyndon LaPlante
[email protected]
Erin Dunn
_______________________
Event/Program Chairs:
Buddy Walk - Amber D. Holmes
[email protected]
Golf Classic - Jared Gabbert
[email protected]
Parents & Schools in
Partnership - Theresa Moffitt
[email protected]
Tween Activities - Ages 10-12
Down Syndrome Clinic:
Rhonda Hawkins
682-885-2181
Hispanic Outreach:
Heather Shults & Hector Pulido
[email protected]
Club 321:
Michelle Pollard
[email protected]
Yahoo E-mail Group:
Theresa Moffitt
[email protected]
Please Note: The content of this newsletter is provided for informational purposes only and is not a substitute for
medical or other professional advice. The opinions, beliefs and viewpoints expressed herein are those of the
individual authors and do not necessarily represent those of the DSPNT directors, members or editors.
DSPNT NEWS
Get Ready to Run, Walk and MINGLE!
Boopa"s Bagel Deli is sponsoring the fourth
annual Boopa"s Family %K2&3K run on
Saturday# March 4th# with proceeds
bene5ting the Down Syndrome
Partnership of North Texas! The three
previous events have raised a total of
6+3#333 for DSPNT! All details can be
found at www!boopasbageldeli!com
To Register: www!boopasbageldeli!com or register in person at Boopa"s Bagel Deli# $%&' N!
Beach Street Fort Worth# Texas ($&'(# )&(*+'+*,((&!
-Our little run has taken on a life of
its own#. Pils said! -It"s more than just a
memorial race or a / fundraiser! We are
spreading awareness about Down
syndrome and giving our neighbors a
way to show support!.
*Holly Pils
0Boopa"s Owner and DSPNT Board
Member1
DSPNT NEWS
PAGE 4
3rd Annual B-B Ranch Round-Up
Promoting Awareness for Down Syndrome
Saturday, May 18, 2013 from 3:00-6:00 PM
Join us for hayrides, pony rides, petting zoo, tractors, games and more!
Food and drinks are provided
To RSVP and learn more, email Barbi Beard-Wolfe at [email protected]
Scoot Your Boots & Cut a Rug!
Save the Date!
3.21.13
World Down Syndrome Day Celebration
in the Fort Worth Stockyards
DSPNT NEWS
PAGE 5
DSPNT GEARING UP FOR ITS
4TH ANNUAL BIKE CAMP!
iCan Bike (formerly Lose the training Wheels™) is set
for July 29-August 2 at UTA with a parent meeting
and volunteer training on July 28. To receive
application materials (when they become
available) and/or volunteer registration information,
e-mail Lindsay Klatzkin at [email protected]
Kayla’s “Lose the Training
Wheels™” Story
We adopted Kayla when she was three
weeks old. Kayla has slow brain processing
and autistic characteristics. We had worked
with her for YEARS on riding a two-wheel bike.
I, as her mom, was ready to give up on the
idea and chalk it up as something she would
never do. Nothing ever worked until Lose the
Training Wheels™ (LTTW) came along. By the
end of the week, Kayla only needed slight
assistance taking off on her bike!
!!!
Camp ended on Friday; on Saturday
evening, Kayla was riding in the school
parking lot. On Sunday morning, she started
going up and down our neighborhood street.
On Monday morning, she was starting herself
with NO assistance and by Wednesday
evening, we took the assistance handle off
the back of her bike and she began doing it
on her own 100%!!!!
!!!
LTTW gave Kayla the confidence she needed
and the step-by-step support. We will forever
be grateful for this program that opened up a
whole new world for her. To see the smile on
her face while riding side by side WITH her
says it all. --Lynn Murray
Kayla leads the way, riding with a sister and their dad
Kayla
DSPNT NEWS
PAGE 6
TCU Nursing Student
Seeking Research
Participants
Who can participate:
Special Olympic Athletes and non- Special
Olympic Athletes are invited to participate in
a study examining the relationship between
physical activity, body fat and health.
Details:
•Individuals ages 18-40 with Down
syndrome and also participate in Special
Olympics.
•Individuals ages 18-40 with Down
syndrome and do not participate in Special
Olympics and are apparently healthy.
Contact:
For more information please contact:
Lisa Allen at 817-257-6866 or
[email protected]
Texas Christian University Harris College of
Nursing and Health Science
Learning Together
Series:
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Learning Together Needs YOU!
Do you attend Learning Together workshops and would be willing to help?
The Learning Together team is looking for volunteers to help with
day-of logistics: greeters, sign-in and clean up, etc.
Please email Jennifer Jordan [email protected] or Heather Landeros [email protected]
DSPNT NEWS
Featuring: The Down Syndrome Center of LeobenHinterberg, Austria“Leben Lachen Lernen” (“Live
Laugh Learn”)
Presenters: Bernadette Wieser & Anita Hotter
Who: Educator, Administrators, and Parents
What: A hands-on, two-day interactive workshop
of math instruction for students with Down
syndrome and cognitive disabilities.
Two-Day Workshop:
YES WE CAN!
“Calculating with
Left and Right”
When: March 20-21, 2013
8:00 am-3:00 pm
Breakfast and Lunch Provided
Where: Kelly Center at TCU 2820 Stadium Drive,
Fort Worth, TX 76109
Cost: $25 per attendee:
Includes 3x21= From Root to Blossom, a workbook
and DVD.
Registration: Email Jacqueline D’Angelo at
[email protected] or call 817-257-5884
Registration deadline: March 8, 2013.
Sponsored in part by The Morris Foundation of Fort
Worth and The ANSERS Institute Together with a
gift in memory of Keith & Linda Reimers Mixson
Thank you Greg Shapley!
Greg Shapley, a member
of DSPNT, ran the
Houston Marathon on
January 13, 2013
His time for this
26.2 mile race was
3:43.27!!
Greg ran in support of the
Down Syndrome
Partnership of North
Texas, and his son, Ben.
Greg and his supporters
raised over $700 for
DSPNT!
PAGE 9
ADULT SOCIAL CLUB!
Club321 is on Facebook!!
Upcoming Club321 Events
Friday, February 8, 2013
Valentine Celebration
6:30pm-9:00pm
Green Oaks School
5508 Chaperito Trail
Arlington, Texas 76016
Dinner provided
Saturday, February 23, 2013
50's Sock Hop
6:30-9:00pm
Lockwood Center
(behind Grace Street Church)
1516 West Pioneer Pkwy.
Arlington, Texas 76013
Dress in 50’s attire and come ready to
dance! We will have refreshments and
ice cream floats. Dinner not provided.
Comedy Night!
to celebrate World Down Syndrome Day
Get ready for the biggest event yet!
Friday, March 22, 2013
Time & Location: to be announced
Club321 has invited other local groups for an
evening of laughs and fun!
Friday, March 8, 2013
Club321 Birthday Celebration
Club321 Turns 2!
6:30pm-9:00pm
Green Oaks School
5508 Chaperito Trail
Arlington, Texas 76016
Dinner provided
Members, please be sure to RSVP by email for every event you will be attending. Please also remember to bring $5.00 each time we
get together. Club321 membership is by application. Membership and events are for adults, ages 18 and older, who have
intellectual disabilities, such as Down syndrome. Club321 is a collaborative project of the DSPNT and Green Oaks School.
An RSVP for each participant is required. For additional information or to RSVP, call 817-496-5100 or email
[email protected].
DSPNT NEWS
PAGE 10
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PAGE 11
February 7-9
February 8
February 12
February 13
February 15
February 23
February 2013
Inclusion Works! Conference (www.thearcoftexas.org)
Club321 Event: Valentine’s Party
D.A.D.S. (Dads Appreciating Down Syndrome)
Eat Wings, Raise Funds @ Buffalo Wild Wings
Mom’s Night Out
Club321 Sock Hop
Austin, Texas
Green Oaks School
Cooper's BBQ
1301 N. Collins, Arlington
Abuelo’s in Hurst
Lockwood Center, Arlington
A LOOK AHEAD
March 2
March 8
March 9
March 20-21
March 21
March 22
March 23, 2013
May 18, 2013
July 19-21, 2013
Learning Together
Club321: Birthday Celebration
4th Annual Boopa’s Family 5K/10K Run/Walk
Calculating with Left & Right: The Down Syndrome Center
World Down Syndrome Day
Club321 Comedy Night
Smart Start: Placements & Individual Education
3rd Annual B-B Ranch Round-Up
National Down Syndrome Congress Annual Convention
(http://convention.ndsccenter.org)
July 29-August 2 iCan Bike (formerly Lose the Training Wheels™)
Stayton- Fort Worth
Green Oaks School
Boopa’s Bagel Deli
Texas Christian University
Fort Worth Stockyards, Details to come
TBD
TCU 10 am-12 pm
Weatherford, TX 3-6pm
Denver, CO
University of Texas at Arlington
Open Volunteer Positions for
DSPNT:
Tween Group Coordinator (ages 10-12)
&
Teen Group Coordinator (ages 13-17)
3rd Annual Miss
Sweetheart
Special Needs Pageant
Duties: Identifying a location and
organizing a fun, monthly event.
Corresponding with parents of the
group via DSPTC yahoo group and
individual emails as necessary to send
invites and coordinate rsvp's.
Monthly Time Commitment:!6-8 hours
Date has been postponed.
Please stay tuned for
updates.
Email Rhonda at [email protected] for
information, sponsor packets or contestant applications.
DSPNT NEWS
Please email Lindsay Klatzkin
[email protected] or call 817-390-2970.
NEED TO KNOW...
D.A.D.S.
(Dads Appreciating Down Syndrome)
Dual Diagnosis Group!
This group is for moms (or dads) whose child
with Down syndrome also has a second
diagnosis under the autism umbrella (Autism,
ASD, PDD). The purpose of the group is to
network with and support each other in our
unique challenges. Contact Robyn Hardison
at 817-905-6546 or
[email protected] for more
information. !
D.A.D.S. is a community of fathers of children who
have Down syndrome who come together to share
insights and experiences, and who want to help
create a better environment for their children with
Down syndrome as well as for their typically
developing children. The group meets monthly on
Tuesdays at Cooper’s BBQ. For more information or
to RSVP, contact Patrick Bierle at [email protected].
NEXT MEETING:
February 12, 2013 6:30 p.m.
Cooper’s BBQ
(in the Fort Worth Stockyards)
301 Stockyards Boulevard
Fort Worth, Texas 76164
817-626-6464
BIENVENIDOS!
Tenemos un nuevo contacto
La Asociacion Syndrome de Down de Tarrant
County prove recursos y apoyo para gente con
syndrome de down y sus familias. Mas
informacion: Favor de llamar a Heather y Hector
Pulido, [email protected].
Mom’s Night Out
February 15, 2013, 6:30 pm
Abuelo’s
824 Airport Freeway
Hurst, Texas 76054
RSVP to [email protected]
Homeschooling?
We have a wonderful group of home schooling families
who share lots of information, ideas and support for
those who are homeschooling a child with Down
syndrome. We welcome other families who would like to
join in our discussions and find answers to questions,
who are considering homeschooling or who would like to
share resources about homeschooling in Texas. There is
lots of learning taking place in this dedicated group of
parents.
Please email Amy Powers at [email protected].
Also, check out the DFW Ds Homeschool Yahoo Group
at http://groups.yahoo.com/group/
dfwdshomeschoolsupport/.