Children`s Progress - Akron Children`s Hospital

Transcription

summer 2013
children’s progress
serving children through philanthropy
Children’s
Miracle
Network
Hospitals
Celebrates
30 Years!
18
Celebrating 30 Years of
Hope, Generosity and
Miracles
Happy Anniversary,
Children’s Miracle Network
Hospitals
4
Building on the Promise
Breaking Ground
12 Courage for Carina
letter from the executive director
Dear Friends,
Perhaps you’ve heard it from me before: at Akron
Children’s Hospital, we’re building a culture of
philanthropy. At its heart, a culture of philanthropy is
an understanding that we are all united for a common
cause.
We’re grateful to donors like you who truly understand
and support our mission. We’re proud to stand as one
with you. Your belief in the cause sustains us.
This issue of Children’s Progress further documents the many ways
our culture of philanthropy is taking hold.
• It is easy to see within this year’s recipients of our Children’s
Champion awards. Two events, in Akron and the Mahoning
Valley, honored individuals, events and foundations that
represent the best in all of us.
• The story of the 30th anniversary of Children’s Miracle Network
Hospitals explains the symbiotic relationship between hospital
and donor. All the lives we are able to touch through the work
of the hospital is given back to us through the people who come
forward every year to offer their support.
Officers
foundation board members
Philip H. Maynard
Chairman
William H. Considine
President
Michael P. Trainer
Treasurer
Michael E. George
Secretary
John D. Zoilo
Executive Director
Directors
John R. Adams
Wealth Management Advisor
Northwestern Mutual
Susan Berk
President
Women’s Board of Akron Children’s Hospital
James P. Berry
SiebertKeck Insurance Agency (Retired)
Frank Bevilacqua
President/Co-owner
Winer and Bevilacqua
David A. Bouffard
Vice President, Public Relations
Sterling Jewelers Inc.
Madeline Bozzeli
President
Friends of Children’s Hospital
Paul Catania
Senior Vice President
Oswald Companies
• Our Physicians for Philanthropy program has thus far yielded
exciting results. Twelve physicians from a variety of disciplines are
participating in this new endeavor, which aims to educate
physicians about the benefits of creating a culture of philanthropy.
Also in this issue, you will meet a young lady named Kiarah Harris.
Kiarah faced a difficult diagnosis made even more challenging by
her autism, but Akron Children’s Hospital doctors, nurses and staff
deciphered the code to get Kiarah back on the road to better health.
Thanks to you, our culture of philanthropy is coming to fruition. It
takes the work of all kinds of donors – a concerted effort and focus
to develop a mindset within an institution. The stories you’ll see here
demonstrate the steps we’ve taken. Thank you for being a part of it.
Sincerely,
D. Z
Zoilo
JJohn
h D
il
Executive Director
Akron Children’s Hospital Foundation
Robert B. Cooper
Director, Licensed Real Estate
CB Richard Ellis Inc.
Robert M. Littman, CPA, MT
Director
SS&G Financial Services Inc.
John P. Crow, MD
Chairman, Department of Surgery
Akron Children’s Hospital
John T. McBride, MD
Vice Chair, Department of Pediatrics, and
Director, Robert T. Stone MD Respiratory
Center, Akron Children’s Hospital
William W. Cushwa Jr.
Manager
The Braveheart Group LLC
John P. Delaney
Vice President and Co-Owner
G.D.S. Express Inc.
Paul M. Dutton
Member/Partner
Harrington, Hoppe & Mitchell Ltd.
Charles Freeman
First Vice President
Wealth Management Merrill Lynch
Valerie A. Geiger
Senior Vice President, Corporate Banking
PNC Bank
Richard R. Grigg
Chairman, Board of Directors
Raymond Hexamer
CEO
First Communication
Willard T. Holland
Partner
Expand Interactive
Patrick James
Chairman
Hawthorn Manufacturing Corp.
Kara H. Lewis
President/Principal
Winslow Asset Management Inc.
Greg A. McDermott
President
FirstMerit Insurance Group
Gregory J. Michalec
Senior Vice President of Sales and Marketing
Superior Beverage Group
Eveline Nordhauss
President
item North America
Mark W. Oelschlager
Portfolio Manager
Oak Associates Ltd.
Ernest Pouttu
President & Chief Executive Officer
Harwick Standard Distribution Corp.
Walton A. Silver
CEO
Akrochem Corporation
James Sisek, Esq.
President & CEO
Farmers Trust Company
Dennis Weiland
Chief Financial Officer
Summit Racing Equipment
Honorary Director
Willard R. Holland
Chairman and CEO
FirstEnergy Corp. & Pennsylvania
Power Co. (Retired)
features
18Celebrating 30 Years!
Happy Anniversary, Children’s Miracle Network
Hospitals
4
Advances and
Innovations
09
Recent Events
16
Save the Date
24
Of Note
28
Memorial and Tribute
Gifts
Breaking ground!
Akron Chilldren’s Hospital embraces
a philosophy of family-centered care.
We believe that every child has the right
to world-class medical care, regardless
of a family’s ability to pay.
Member, Children’s Hospital Association
(CHA).
Member, Children’s Miracle Network Hospitals
children’s progress is published
quarterly by the Akron Children’s
Hospital Foundation
One Perkins Square
Akron, OH 44308-1062
330-543-8340
An Equal Opportunity Employer
President and CEO
William H. Considine
Executive Director, Foundation
John D. Zoilo
Editor
Anne C. Merchant
Contributing Writers
Becky Badar
Linda Beck
Daryl Dirham
Danielle Hale
Holly Pupino
Nicole Winkleman
Contributing Photographers
Linda’s Lenses Photography
Julie M. Pawlowski
Lew Stamp
Ted Stevens
Tiffany Swift
Graphic Design
Dawn Tindal and Assoc. Inc.
Printing
Star Printing Co. Inc.
©2013 Akron Children’s Hospital
All rights reserved.
Akron Children’s Hospital realizes
that individuals enjoy learning
more about our services, programs
and developments. We also
fully respect the privacy of our
patients. If you do not wish to
receive fundraising materials from
Akron Children’s Hospital, you may
make the request by sending your
name and address to the Akron
Children’s Hospital Foundation,
One Perkins Square, Akron, Ohio
44308. We will use our best
efforts to honor such a request.
departments
06
from our cover
Building on the Promise
Breaking ground
Akron Children’s Hospital celebrated the
expansion of its Akron campus with a
groundbreaking ceremony on May 30 in Perkins
Square Park. The backdrop of the event was the
construction site.
More than 250 hospital leaders, elected officials,
employees and patient families attended the
event, which celebrated the ceremonial beginning
of construction on a $200 million building project
that is expected to be completed in 2015. The
centerpiece of the project, a new patient care
building, will feature:
• A Neonatal Intensive Care Unit (NICU) with
individual rooms for our tiniest patients and
their families
• An emergency department with more room to
accommodate our growing number of patients
• An ambulatory surgery center to accommodate
our growing number of outpatient surgeries,
which accounts for 80 percent of our surgical
volume
• Additional room for future clinical programs
“This $200 million investment will transform
the way we deliver care to the families we are
privileged to serve, allowing us to build upon the
promises made to the people of this community
more than 100 years ago,” said Akron Children’s
CEO and President Bill Considine. “Promises
that to this day, serve as guiding principles in
everything we do.”
Watch
us grow!
Stay up-to-date on the progress
of our campus expansion project
at building.akronchildrens.org,
which features a live web
camera of the construction site.
Photos are taken every 15 minutes.
4
CHILDREN’S PROGRESS | SUMMER 2013
Three generations of the
Beeghly family stand on the
land of their family’s former
homestead in Boardman, which
was donated to the Youngstown
Hospital Association in 1965.
From left: Grandparents Mary
Jane and Joel Beeghly; Lyla,
Dawn and Ted Beeghly.
Generosity comes full circle
Youngest Beeghly family member benefits from great-great-grandparents’ gift
When L.A. and Mabel Beeghly donated their
21-acre family homestead in Boardman to the
Youngstown Hospital Association in 1965, they
hoped that one day a children’s hospital would
be built on their land. Little did they know
that their own family would benefit from their
generosity – four generations later.
The family saw the gift come full circle in
January 2013 when the newest member of its
family – Lyla Jane Beeghly – received care at
Akron Children’s Beeghly campus.
“When my husband, Ted, and I look back at the
last few months, it really is quite extraordinary
in the grand scheme of things,” said Dawn
Beeghly, Lyla’s mother.
Dawn gave birth to Lyla six weeks premature on
New Year’s Eve at St. Elizabeth’s Medical Center
in Youngstown. After a difficult pregnancy and
delivery, Dawn and her family were comforted
with the skilled care Lyla received at Akron
Children’s Neonatal Intensive Care Unit (NICU)
that operates within the hospital.
“All the nurses help you emotionally while, at the
same time, they care for your child,” said Dawn.
“They’re wonderful there. We were all anxious
for her to get well enough to be transported to
the Beeghly campus, where we knew that level
of care would continue.”
On Jan. 8, Dawn and her family’s wish came
true when Lyla was transported to Boardman.
There, hospital staff closely monitored their
tiny patient’s condition to ensure she reached
AKRONCHILDRENS.ORG/GIVING
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the necessary developmental milestones for
her to go home, such as gaining weight, eating
and breathing on her own. While Dawn had
served as a hospital volunteer for the past year
and a half, her experience with Lyla gave her a
deeper perspective on and appreciation for the
hospital’s approach to care.
“It’s such a warm and inviting environment,”
said Dawn. “The staff allayed our fears and
made the transition easy. I can’t say enough
about the NICU, the physicians and nurses, and
the rest of the staff. In the midst of everything,
we found the whole experience to be so
positive.”
Today, as Lyla continues to grow and thrive,
Dawn admits that it’s wonderful to see her
husband’s great-grandparents’ dream come
to life.
“Their hearts were
always about
helping children,”
she said. “That’s
why it was so
special to have
Lyla there. All
those years later,
she’s a recipient
of that care they
hoped would one
day be available.
It’s truly come full
circle.”
Because of her great-greatgrandparents’ generosity, Lyla Beeghly’s
life is forever changed.
advances and innovations
Philanthropy on the ‘frontlines’
Akron Children’s forms Physicians for Philanthropy
Philanthropic contributions often mean the difference
between good programs and exceptional programs.
No one is more aware of this than physicians.
“Take, for example, Akron Children’s Hospital’s Haslinger
Family Pediatric Palliative Care Center,” said John
McBride, MD, pediatric pulmonologist and vice
chairman of the department of pediatrics. “It’s one of
the most outstanding programs in the country, and the
Haslinger family support has been critical in making it
happen.”
Since Dr. McBride sees firsthand the difference
philanthropy makes for his patients, he not only gives
of his own resources but also integrates fundraising
into his role as a physician. John Crow, MD, chairman
of the department of surgery, also realized early in his
career the importance of giving back.
“When I started, senior surgeons approached me about
supporting hospital programs,” said Dr. Crow. “I don’t
think it’s hard to sell other physicians on the benefits of
the growth of the institution.”
To fuel that philanthropic spirit, Akron Children’s
formed Physicians for Philanthropy, which encourages
physicians’ involvement in fundraising, both personally
and by working with families who are interested in
giving.
Physicians for Philanthropy Members
Physicians for Philanthropy works to cultivate a culture
of philanthropy at Akron Children’s Hospital. This goal
is becoming realized through the work of the following
individuals:
Physicians:
Anton Milo, MD, DDS
Norm Christopher, MD
Ananth Murthy, MD,
FACS
Bruce Cohen, MD, FAAN
John Crow, MD
Philip Smith, MD, PhD
Sarah Friebert, MD
Staff:
Richard Hertle, MD,
FAAO, FACS, FAAP
Shelly Brown
Jeffrey Hord, MD
Roger Hudgins, MD
Shawn Lyden
John Zoilo
Kerwyn Jones, MD
Foundation Board:
John McBride, MD
Philip H. Maynard
“The physicians at Akron Children’s are on the
frontlines,” said John Zoilo, executive director of the
Akron Children’s Hospital Foundation. “They understand
and appreciate the importance of philanthropy and are
a willing partner with foundation staff to advance the
hospital’s mission.”
Dr. McBride and Dr. Crow currently serve as chairpersons
for the group, which now includes 12 physician
members and four hospital representatives.
Physicians’ involvement in fundraising is always an
individual decision. For some, it’s a deeply-felt call to
give. Others also feel comfortable talking to patient
families who are interested in supporting programs
that benefitted their child or grandchild.
“Many families with the means to be supportive are
not aware of what they can do, so we work as a team
to help them realize how their support can make
exceptional programs possible,” said Dr. McBride.
“We’re all physicians first. There’s absolutely no question
that our primary responsibility is the patients and
families. But we do want physicians to be aware that
if a family expresses interest, we can be instrumental
in helping them find the ways to be most effective with
their contributions.”
Zoilo points out that even prior to forming Physicians
for Philanthropy, many Akron Children’s physicians
were instrumental in working with grateful families who
have stepped forward and provided support for the
hospital.
“Whenever the hospital has needed to improve facilities,
the physicians and community have responded
generously,” said Zoilo.
Now, through the efforts of Physicians for Philanthropy,
the hospital is able to tap into more resources.
Physicians have the information they need to put them
at ease when talking to patient families about giving. Dr.
McBride and Dr. Crow hope that the group continues to
grow, as the hospital is poised for future endeavors.
“This is an exciting time for the institution,” said
Dr. Crow. “Rallying our physicians in support of it is a
great way to build the teamwork necessary to keep our
momentum going.”
6
Akron Children’s named one
of the best children’s hospitals
Akron Children’s Hospital has been ranked in seven
pediatric specialties in U.S. News & World Report’s
2013-14 Best Children’s Hospitals rankings.
Akron Children’s was ranked:
• 22 in orthopedics
• 26 in cancer
• 28 in neurology & neurosurgery
• 29 in pulmonology
• 31 in urology
• 32 in diabetes and endocrinology
• 37 in nephrology
“To be ranked alongside the best children’s hospitals
in the country is really a testament to our pediatric
specialists and the work they do every day in caring
for our patients,” said Shawn Lyden, executive vice
president. “Through their superb clinical care, research
and work in educating future doctors, they have really
put us on the map.”
A highlight of this year’s rankings was seeing Akron
Children’s orthopedics program move up 13 spots to
reach 22nd place.
“This is a great honor, and I credit our higher ranking
with the super specialization we have achieved in
recent years,” said Kerwyn Jones, MD, chairman of the
department of orthopedics. “Specialization has allowed
us to achieve higher quality for the patient and a greater
research interest level for the surgeon.”
Dr. Jones and his seven fellow pediatric orthopedic
surgeons have become known for their expertise in
areas such as surgery of the spine, back, hips, feet,
arms and knees. As they have focused their practices
in these areas, they have been able to delve into clinical
and basic science research, study best practices and
present and publish their findings for peer review.
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The department has the expertise to treat issues ranging
from common fractures to sports-related and traumatic
injuries, as well as highly specialized orthopedic
concerns such as early onset scoliosis, brachial plexus
injuries, ACL tears, spina bifida, skeletal dysplasia, limb
lengthening and hip reconstruction.
Akron Children’s also saw its neurology and
neurosurgery and childhood cancer and blood disorder
programs each move up nine places to 28 and 26 place,
respectively.
“Our goal is simply to be the best we can be for the
children of our region,” said Lyden. ”Our growth, our
quality and safety initiatives, and our desire to recruit
top medical talent all come back to that.”
For families of sick children, the Best Children’s
Hospitals rankings provide quality-related information,
such as survival rates, adequacy of nurse staffing and
procedure volume. Since their 2007 debut, the rankings
have put an increasing emphasis on data that directly
reflect the hospitals’ performance over the opinions of
physicians.
This year, U.S. News surveyed 178 pediatric centers to
obtain data such as availability of key resources and
ability to prevent complications and infections. The
hospital survey is made up of 75 percent of the rankings.
A separate reputational survey in which 1,500 pediatric
specialists – 150 in each specialty – were asked where
they would send the sickest children in their specialty
made up the remaining 25 percent.
The Reinberger Family Center turns 5!
This spring, the Reinberger Family Center celebrated
its 5th anniversary of providing a place of comfort
and relaxation for our patient families. The center,
which is located on the second floor of the hospital
near the Neonatal Intensive Care Unit (NICU), opened
in 2008 as a place where family members can find
rest, relax or escape. To mark the occasion, patient
families and friends, employees and donors were
invited to an open house and celebration.
“The center is definitely a stress reliever for families
and an important addition to this hospital,” said
Cindy Duncan, supervisor for the center. “Nurses
care for our patients, and we care for the patients’
families.”
“I saw a need for the families of the babies that are
in critical care,” said Bouffard. “There was nowhere
comfortable for the families to relax.”
Out of this thought, the Sterling Jewelers Family Area
was created, which has five, home-like rooms with
double beds, a private phone and bathroom.
“The center, and the support we’ve received for it, is
important because the center gives families a chance
to get away from the clinical side of the hospital,” said
Duncan.
Nearly 97,000 guests have used the center’s
facilities and services since it opened.
Helping families
Any patient family can use the center, but
priority for sleep rooms goes to families
who have loved ones in the neonatal and
pediatric intensive care units, and have
traveled the greatest distance.
Angela Austin stayed in the Reinberger
Family Center while two of her children
were admitted to the NICU.
“The ability to walk a few short steps
across the hall [to the Reinberger Center]
was physically, mentally and emotionally
amazing. Knowing that my babies were so
close made getting rest, breast feeding and
communicating with staff so much easier.”
Instrumental part of the project
The Reinberger Center’s success was in
part because of the generosity of its donors,
including the Reinberger Foundation and
Sterling Jewelers.
Sterling Jewelers donated $250,000 to the
center after David Bouffard, vice president
of public relations, spent some time in
the NICU while completing the Leadership
Akron program.
8
recent events
Diamond Classic
The 7th annual Diamond Classic for Kids, a charity baseball
game between Kent State University and The University of
Akron, was held May 16 at Canal Park. More than 1,700
people attended the game, and $21,000 was raised for
School Health Services at Akron Children’s Hospital.
Wine & Wishes
Greg and Tiffany Michalec, along with their twins, Katie
and Cory, presented Bill Considine, president and CEO
of Akron Children’s Hospital, with a check for $1 million
at the 8th annual “An Evening of Wine and Wishes” in
April. Katie and Cory were born at 26 weeks, and to show
gratitude for the care the twins received in the NICU, the
Michalecs created Wine and Wishes and pledged to raise
$1 million in 10 years.
9
American Girl
The American Girl Fashion Show® was
held April 20 and 21 at the Stambaugh
Auditorium in Youngstown. One hundred
and seventy girls, including Caris Collins
and her doll, Addy, modeled matching
clothing that resembled what American
Girl characters may have worn. This year,
the event raised more than $22,500 for
Akron Children’s Hospital Mahoning Valley.
recent events
Saying thank you to the ‘Champions’
Four join the ranks of Children’s Champion award-winners in Akron and Mahoning Valley
Three recipients received the Children’s Champion award at the 8th Champions for Children’s dinner. Pictured from left: John Zoilo,
executive director of the Akron Children’s Hospital Foundation; WKDD’s Mark Boarman; Philip H. Maynard; Bill Considine, president
and CEO of Akron Children’s Hospital; and Leigh Gerstenberger, representing the Walter W. Born Foundation.
Each year, we recognize the hospital’s distinguished donors
during special evenings in Akron and the Mahoning Valley.
The
T Children’s Champion and Champion for Our Valley’s
Children awards honor donors who not only generously
support the hospital’s mission and fundraising efforts,
but also serve as champions for all children throughout
the community.
“These
events are an opportunity for us to shine the
“
spotlight and say ‘thanks’ to our special donors,” said
John
Zoilo, executive director of Akron Children’s Hospital’s
J
Foundation. “These are individuals, businesses and
foundations who have demonstrated remarkable longevity
in supporting us. We wouldn’t be here without them.”
10
CHILD
The 3rd annual Champion for our Valley’s Children dinner recognized Clear Channel Youngstown for their support of
Akron Children’s Hospital’s Mahoning Valley programs. Pictured from left: John Zoilo, executive director of the Akron
Children’s Hospital Foundation; Clear Channel representatives Bill Kelly, Mark French, Dan Rivers and Bob Hotchkiss;
and JoAnn Stock, director of development for Akron Children’s Hospital Mahoning Valley.
Eighth annual ‘Champions for Children’s’
Fairlawn Country Club in Akron bustled with
excitement and celebration on June 4 as the hospital
celebrated its 8th annual Champions for Children’s
donor appreciation dinner. It was an evening filled
with thanks and gratitude to our hospital donors as
we bestowed three special awards to a deserving
individual, business and foundation.
Individual Champion: Philip H. Maynard
Philip Maynard has been a dedicated supporter and
volunteer for more than 20 years and truly sets the
standard of service above self. He has served in many
leadership positions including Chair of the Hospital
Board of Directors from 2003 to 2007. Since 2007,
he has served as Chair of the Hospital Foundation
Board of Directors. And, in 2012, Phil stepped up
once again when called upon to assume the Chair
of the Building on the Promise capital campaign.
Additionally, Phil and the Maynard Family Foundation
have provided leadership support for many operating,
programmatic and capital initiatives for more than
two decades.
Event Champion: “Have a Heart, Do Your Part”
Radiothon
The “Have a Heart, Do Your Part” radiothon began
in 2000 with a modest fundraising goal of $50,000.
Fourteen years later, it has grown into the hospital’s
largest fundraiser, and our results are viewed within
the Children’s Miracle Network Hospitals radiothon
community as “Best in Class.” The popular event has
generated more than $8 million in needed unrestricted
support, thanks to the great team at 98.1 WKDD.
Importantly, the radiothon also has generated widespread
publicity and recognition for the hospital and the
excellent care it provides.
11
Foundation Champion: The Walter W. Born
Foundation
The Walter W. Born Foundation has been extremely
generous to Akron Children’s Hospital, with gifts
totaling nearly $1 million during the last 10 years.
Their most recent gift of $50,000 purchased
specialized equipment for patients with cystic fibrosis.
Other grants from the Foundation include $80,000
in 2011 for the purchase of specialized ventilator
equipment for infants in our Neonatal Intensive
Care Unit (NICU). In 2008, the Foundation made a
three-year, $240,000 commitment for the expansion
of the Family Child Learning Center (FCLC) Integrated
Preschool for Children with Autism Spectrum Disorders.
Third annual ‘Champions for our Valley’s
Children’s’
On May 14, hospital staff and supporters gathered
at The Lake Club in Poland, Ohio, to celebrate the
hospital’s progress in the Mahoning Valley and honor
those who made it possible, including our donors,
volunteers, staff and community partners. Special
recognition was given to this year’s winners, as well
as our Children Advocate Award nominees.
Champion for our Valley’s Children:
Clear Channel Youngstown and Bill Kelly
Since 2009, Clear Channel Youngstown and program
director Bill Kelly have hosted the “Miracles & Promises”
radiothon on Mix 98.9, with the help of the five other
Clear Channel Youngstown stations. They have raised
more than $540,000. Beyond funds, Clear Channel
Youngstown and Kelly have raised awareness of our
Mahoning Valley programs and services through their
donation of countless hours of airtime. Kelly is a
member of the Akron Children’s Hospital Mahoning
Valley Community Leadership Council and a charter
member of the Kids Crew.
recent events
Tables at the “Wine-Tasting with a View” event display stories and photos of pediatric palliative care
patients. The event raised more than $34,000 for the Haslinger Family Pediatric Palliative Care Center
at Akron Children’s Hospital, bringing the four-year total to more than $100,000.
Courage for Carina
Event honors the legacy of brave little girl
Picture a beautiful little girl, delicate
smile on her face, holding a baby doll.
This is the Carina Ruth-Ann Britz people
meet on the website for the foundation
bearing her name. Her mother, Ann Britz,
hopes others will remember her and be
inspired by her courage.
Though her time was short, Carina left
a huge mark on our world. Ann has
persevered through unspeakable tragedy
to further her daughter’s legacy – one
of caring, paying it forward and taking
comfort in the small things.
A grim prognosis
After trying for 11 years to have a child,
and putting their plans for a baby on hold
after her husband, Joe, was diagnosed
with a rare cancer, Ann became pregnant
at the age of 39. During her 25th
week, tests revealed that the baby had
hydraencaphaly. The two main arteries
to her brain had failed to carry adequate
blood supply to the cortex, inhibiting
development. There was fluid where the
cortex was supposed to be. The child
would likely live only a few days, possibly
up to one month.
Carina Ruth-Ann Britz
passed away just months
before her second birthday.
Her parents found comfort
and guidance from the
staff at Akron Children’s
Haslinger Family Pediatric
Palliative Care Center.
Today, a foundation in her
honor helps raise money to
assist other families going
through the stress and
sadness of palliative care.
After canceling baby showers and
returning nursery furniture, the Britzes
began the difficult task of planning for
their child’s expectedly short life.
12
“We learned about pediatric palliative care and hospice for
children, which I’d never even heard of,” said Ann. “We met
with a palliative nurse, a counselor, and that’s also when
we met Dr. Sarah Friebert and Dr. Catherine Kelly-Langen at
Akron Children’s Haslinger Family Pediatric Palliative Care
Center. They were right along with us for the next 10 weeks.”
The couple also had the unnatural experience of completing a
hospice plan for their unborn child, knowing that they didn’t
want her to go through aggressive treatments.
Carina was born June 25, 2007. Defying all odds, she went
home five days later.
In her first year, Carina did many things the Britzes had been
told she would never do. Each simple accomplishment was
another milestone in her miraculous life. She developed a
personality, she laughed, smiled, rolled over, reached for toys.
Ann and Joe were overjoyed.
“We had waited so long to have her, and I knew she was my
last chance to have a child of my own, so to see her thrive
and defy expectations taught me so much about life and
myself,” said Ann.
The second year was more difficult. Carina was sick much of
the time and frequently had pneumonia. Her hospitalizations
occurred more frequently. Ann and Joe could tell their
courageous little girl was tiring of the fight.
They regrouped with the hospice team, and nurses were in
the Britz home around the clock. “Carina got to stay in her
own clothes, in her home, with her family, her dog, her music.
It was hard and sad, but there was also beauty in it.”
Ann Britz thanks
the crowd of guests
attending the fourth
annual “Wine-Tasting
with a View.” The event
is the largest fundraiser
for Courage for Carina,
a foundation Ann
established in honor
of her daughter, Carina,
who passed away in
2009.
13
Carina passed away at home March 31, 2009, three months
shy of her second birthday. The little girl who had been given
no more than a month to live had beaten the odds 21 times over.
Hope in helping and healing
During the months following Carina’s death, Ann found
comfort in the guidance of Dr. Friebert and Dr. Kelly-Langen.
“They came to our home and answered every question we had,
calming all our fears – they were unbelievable,” said Ann.
“I knew I would be connected to them forever.”
Out of a desire to help other families going through the
stress and sadness of palliative care, the Britzes founded a
foundation called Courage for Carina. The foundation buys
gift cards these families can use to buy gas, groceries or
perhaps pay a utility bill – small things that have a big
impact, much like Carina.
One of the foundation’s largest fundraisers is its annual
“Wine-Tasting with a View” event at the Skyview Lodge in
Brunswick. This year’s, held May 10, was the biggest one
yet. Three hundred people attended and raised more than
$34,000 for the Haslinger Family Pediatric Palliative Care
Center, bringing the four-year total to more than $100,000.
This year, though, Ann held the event without Joe. He passed
away in November after a 13-year battle with carcinoid
disease. “Joe was an amazing man. He was content to be
in the background, but he was always by my side at each
event,” said Ann.
She thought about canceling this year’s fundraiser. But people
started calling her, unsolicited, to offer assistance or donate
services. Ann took it as a sign to keep it going. “It was almost
as if Joe was telling me he would be upset if I stopped the
momentum now.”
Ann says she even felt Joe’s presence at this year’s event.
His entire family came in from out of state to attend. Her
family was there. The DJ was an old friend of Joe’s. “We
could feel Joe’s spirit in the room. It was electric,” said Ann.
“I think it was his way his way of telling me I did a good job.”
Through the loss of her only child and now her husband,
Ann continues to draw on the lessons Carina taught her as
a source of strength. “She taught me a lot,” said Ann. “To
celebrate the little milestones in life. How to slow down and
embrace the moment. She taught me unconditional love.
There’s nothing like loving a child; I didn’t know what that
bond was like. I still have it. I hope somehow she can still
feel that from me.”
Curing Kiarah
During Kiarah’s stay in the hospital, her mother, Margaret (right) appreciated the care and generosity her family received from Akron Children’s.
“They’re so caring; they want to make sure you and your child receive the best care possible… I couldn’t imagine taking her anywhere else.”
Akron Children’s unravels the mystery behind
patient’s complicated illness
There’s a quiet calmness that surrounds 13-year-old
Kiarah Harris. It envelopes you the moment you
meet her.
However, last year, Kiarah’s life was anything
but calm as she fought a life-threatening case of
pneumonia at Akron Children’s Hospital. It was
during this time that doctors discovered that she
suffered from an undiagnosed, chronic, autoimmune disorder, a disorder that would irrevocably
change her and her family’s lives.
A complicated case
On Nov. 29, 2012, Margaret Harris heard her
daughter call out to her in the hallway of their
family’s Youngstown home. When Margaret found
Kiarah, she became worried.
“She was extremely dizzy, holding onto the wall for
support,” said Margaret. “I took her to the hospital
right away, and they found out she had pneumonia.
Her left lung was filled with fluid.”
Doctors placed Kiarah on antibiotics, and for
almost three months, she and Margaret made
frequent trips to their pediatrician to monitor her
condition. But Kiarah wasn’t improving. An X-ray
on Jan. 23 revealed that the fluid had not only
remained in her left lung, but collected in her right
lung, as well.
Margaret and Kiarah soon found themselves at
Akron Children’s Hospital’s Beeghly campus, and
after a battery of tests, doctors determined that
Kiarah needed to undergo surgery at the hospital’s
campus in Akron. There, surgeons would insert
chest tubes to drain the fluid from her lungs.
After surgery, nearly two quarts of fluid was
drained from Kiarah’s right lung while her left lung
contained between a half and a full quart of fluid.
It was a stressful time for Margaret and the rest of
the family. Throughout her illness, Kiarah had lost
12 pounds, and she still wasn’t feeling well after
surgery.
“She wasn’t progressing as she should have
been,” said Mary Bratovich Toth, MD, director of
pediatric rheumatology at Akron Children’s. “She
wasn’t exhibiting the recovery signs that a typical
pneumonia patient would show.”
14
Kiarah also has autism. With limited verbal capabilities,
it was difficult for her to communicate when she wasn’t
feeling well. One day, Margaret’s sister Christine, who
was staying with Kiarah, asked the child if something
hurt.
“Yes,” came her small reply.
When Christine asked Kiarah to show her where it hurt,
Kiarah pointed to her chest. Christine immediately
called in members of the medical team, and an X-ray
revealed a critical discovery: there was now fluid around
Kiarah’s heart.
An unexpected diagnosis
During an emergency procedure, surgeons inserted a
tube to drain the fluid around Kiarah’s heart, resulting
in a five-day stay in the Pediatric Intensive Care Unit
(PICU). While her doctors expected her health to
improve, Kiarah began to spike fevers. The antibiotics
she took also began affecting her kidney function.
Physicians from multiple divisions were called in to
consult on her case, including nephrology, cardiology
and Dr. Toth from rheumatology.
A biopsy of Kiarah’s lung tissue showed that there was
no sign of cancer or fungal infection. However, a reinserted chest tube showed that she still had drainage
in her lungs.
“While the fluid was draining, the fluid production wasn’t
decreasing. That made us believe that something else,
like an auto-immune disorder, was to blame,” said
Dr. Toth. “Since her verbal skills aren’t like that of
other children, it was difficult to find the symptoms
we typically use to clue us in on a diagnosis. It took
deductive detective work to figure out what was going
on.”
Finally, Dr. Toth and the rest of the medical team made
a discovery when they ran another round of clinical
tests: Kiarah had lupus.
“Lupus is a chronic, auto-immune disorder that affects
skin, joints, kidneys and other organs,” said Dr. Toth.
“On average, I see four to five patients a year with the
condition. It can be difficult to diagnose, because it
can look like something else, mimicking conditions like
infections and arthritis.”
for Christine and gave me gas cards for all the trips
I made back and forth. They found out that Kiarah
loves computers, so they loaned her one during her
admission so she could watch her favorite shows. It
really helped make our time there a lot easier.”
Kiarah continued to improve, and on Feb. 23, after a
long, strenuous month, she was well enough to return
home.
A strong recovery
Throughout Kiarah’s stay, Dr. Toth and the rest of the
medical team marveled at how well she handled her
time in the hospital.
“Kiarah is a sweet little girl,” said Dr. Toth. “She was
always pleasant and cooperative. She never once
complained, even during the hardest times.”
It’s a demeanor she maintains today as she continues
to recover. The fluid around her heart has completely
cleared, and she gained back all of the weight she lost.
Physical therapy helped her regain her strength after
being in a hospital bed for such an extended period of
time, and she’s slowly coming off her steroid regimen,
visiting Dr. Toth every two weeks.
“She’s progressing very well,” said Toth. “We’re keeping
a close eye on her to watch for other complications that
could result from lupus, such as rashes, seizures and
low blood count, to make sure that none of those other
things take place. But, she’s responding very well to her
treatment.”
Margaret remains grateful to the hospital for how well
the staff took care of her and her family during Kiarah’s
stay.
“They’re so caring; they want to make sure you and your
child receive the best care possible,” she said. “They
took the time to explain things to me and answer any
and all questions. Under the circumstances, it was a
nice place to be. I couldn’t imagine taking her anywhere
else.”
Dr. Toth immediately placed Kiarah on a steroid
regimen to control the inflammation in her lungs. The
medication worked, and they were able to stabilize
Kiarah’s condition. Throughout the ordeal, Margaret
was comforted by the support the hospital provided to
her daughter and her family.
“With my family being in Youngstown, Christine stayed
with Kiarah the entire time she was in the hospital,”
said Margaret. “Akron Children’s provided meals
15
Kiarah relies on the support of her siblings (from left) Tia and Abdul, mother
Margaret and sister Ashanti.
save the date
Teddy bears are coming to
Akron Children’s – by the thousands
“It’s amazing the stuff they ask for,” said Penny Martin,
founder of Teddy Bear Run. “Usually around 30 kids
are able to come down.”
Martin and her family started the Teddy Bear Run to
show thanks to the hospital and to help patients like
her son, David, who is a patient at Akron Children’s.
Martin said the focus of the event is the kids; the toys
give them someone to hold.
“Teddy bears provide comfort and courage to the kids,”
said Martin. “It gives them someone to talk to.”
“It’s quite a sight to see hundreds of burly guys
dressed in leather with rainbow-colored stuffed
animals,” said Sara Lundenberger, special events
coordinator at Akron Children’s Hospital. “It makes
you laugh, and it really is so sweet.”
Nearly 20,000 bears and stuffed animals are collected and
given to the patients at Akron Children’s during the Teddy Bear
Run each September.
Usually teddy bears and motorcycles have nothing in
common, but thanks to the Children’s Caravan Teddy
Bear Run, each September, they both bring smiles to
the faces of the patients at Akron Children’s Hospital.
The 2013 Children’s Caravan Teddy Bear Run will
be held on Sunday, Sept. 15. Registration begins at
8 a.m. on the day of the event at Adventure Harley
Davidson.
“Whether you ride with us that day, or in spirit,
it’s really a special day for the kids,” said Martin.
For more information, contact Martin at
330-401-2858 or [email protected].
Since 1996, thousands of motorcycles have rolled
onto Bowery Street and the Akron campus with
stuffed animals and generosity in tow.
By the time they reach our campus, they’ve
already traveled the more than 40 miles from
Adventure Harley Davidson in Dover, Ohio, where
their ride begins.
Last year 1,200 motorcycles gathered and were
police escorted northbound on I-77 to Akron
Children’s Hospital.
Once the motorcycles arrive, patients or their parents
come down to the playground and ask the bikers for a
stuffed animal of their choice.
16
Radiothon making promises –
and miracles
Mark your calendars for the 5th annual Miracles &
Promises radiothon, which will broadcast live on Mix
98.9 and 570 WKBN, from the Main Lobby of Building
D on the Beeghly campus Sept. 18 – 20 from 6 a.m.
to 6 p.m.
The radiothon is a 36-hour radio broadcast featuring
patient stories, as well as interviews with hospital
leadership, doctors and staff from Akron Children’s
Hospital Mahoning Valley’s programs.
The Miracles & Promises radiothon began in 2009
and has raised more than $541,000 for the programs
and services of the hospital.
“This is a key event because it not only raises funds,
but it also increases awareness of the programs and
services in the Valley,” said JoAnn Stock, director of
development at Akron Children’s Hospital Mahoning
Valley. “It’s a good way to raise
awareness of the mission –
through our patient stories.”
In order to raise funds prior to radiothon, Akron
Children’s Mahoning Valley will be looking for Miracle
Maker Change Bandits. The Change Bandit campaign
is a grassroots fundraising effort designed to turn
spare change into miracles for patients of the
hospital.
“Change bandit campaigns will take place all summer
long,” said Stock. “You can raise funds prior to
radiothon and then present the donation, on air, at
radiothon.”
To learn more about the Miracles & Promises
radiothon, contact Stock at 330-746-9122
or [email protected].
Walk with the animals at Walk for Babies
“It’s really a homecoming for NICU families and
staff to say thank you,” said event founder Sam
Snellenberger.
Sam and his wife, Shelby, founded the Walk for Babies
after their daughter, Amelia, spent the first 26 days
of her life in the NICU. The Snellenbergers were so
grateful for the care Amelia received that they set a
goal to raise $1 million for the NICU.
Since it began, the event has raised $400,000.
Walk for Babies founders Sam and Shelby Snellenberger
are pictured in 2012 with their children Amelia and Sammy.
Amelia was treated in the NICU, and the event was created to
say thanks for the care she received while in the hospital.
The Akron Zoo will turn into a one-mile walking path
for families and friends of Akron Children’s on Sept.
22 when the 7th annual Walk for Babies takes place.
The family-friendly walk is a reunion of sorts, as most
of the walkers have been treated or know someone
who has been a patient in the Neonatal Intensive Care
Unit (NICU) at Akron Children’s.
17
“Walk for Babies is a wonderful way to give back to the
NICU and a hospital that does such a wonderful job
here in Akron,” said Snellenberger.
Last year, more than 1,500 participants attended
the event which also features a raffle, refreshments,
family-friendly activities and give-a-ways for the kids.
“Walk for Babies is different than our other events
because so many NICU families participate,” said
Sara Lundenberger, special events coordinator at
Akron Children’s. “It’s an inspiring day because we
get to see former patients, who are NICU graduates.”
Community members can register for the walk, learn
more about the event, or donate at www.walk4babies.com.
Celebrating
30
Years
of Hope,
Generosity
and Miracles
Happy anniversary,
Children’s Miracle Network Hospitals
18
19
Thirty years ago, Children’s Miracle Network
Hospitals began with a telethon and a dream: to
help sick and injured children by raising funds for
children’s hospitals. It’s a dream that continues to
this day, with even greater aspirations on the horizon.
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And Akron Children’s Hospital has been there every
step of the journey.
“Our partnership with Children’s Miracle Network
Hospitals is something we need to celebrate, and
what better time than during its anniversary year?”
said Bill Considine, president and CEO of Akron
Children’s Hospital. “It’s a relationship that’s
developed deep bonds within our community, making
quite an impact on our hospital, our patients and
their families, and northeast Ohio.”
It all began with a Telethon
Bill Considine, president and
CEO of Akron
Children’s, and his wife Bec
ky, work the phone
banks at the 2001 Telethon
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years.
Children’s Miracle Network Hospitals was founded
in 1983 through the Children’s Miracle Network
Telethon that carried a simple goal: to raise money for
a network of children’s hospitals across the U.S. and
Canada, including Akron Children’s.
Mr. Considine was on the board of the National
Association of Children’s Hospitals and Related
Institutions when the idea of the fundraising Telethon
was pitched. It was a revolutionary proposal, and Mr.
Considine and his fellow board members quickly saw
merit in it.
“From the get-go, we were supportive,” said Mr.
Considine. “In fact, I attended the first Telethon in
Utah, even though it didn’t air on any stations here in
the Akron area. It created a lot of energy, and I knew
we were onto something.”
Partnering for 30 years
1983
1984
1986
1987
1990
1991
1994
1995
Children’s
Miracle Network
Hospitals was
founded after a
Telethon aired
from Osmond
Studios in Orem,
Utah, which
raised nearly
$4.8 million for
22 children’s
hospitals
nationwide.
Dairy Queen
became a
Children’s
Miracle Network
Hospitals
sponsor. In
2012, Dairy
Queen locations
in our region
raised $69,496
for Akron
Children’s.
Akron Children’s
Hospital begins
participating
in the CMN
Telethon,
which raised
$220,000 for
hospital patients
and programs.
Walmart and
Sam’s Club join
the Children’s
Miracle Network
Hospitals
family. Last
year, they raised
$454,931 for
Akron Children’s.
Akron Children’s
Hospital CEO
Bill Considine
is elected to
the Children’s
Miracle Network
Hospital Board
of Trustees.
Speedway
becomes a
Children’s
Miracle Network
Hospitals
sponsor.
In 2012,
participating
locations raised
$317,647 for
the hospital.
Rite Aid
becomes a
Children’s
Miracle Network
Hospitals
sponsor;
$57,826 was
collected for
Akron Children’s
in 2012.
Telethon holds
its 10th annual
broadcast at
Akron Children’s.
20
He felt that the opportunity to collaborate with other
children’s hospitals around the country was a good
idea, as the network would be built on the hospitals’
common threads while furthering the missions of all.
In fact, he believed so strongly in Children’s Miracle
Network Hospitals’ mission that he served on its
board for 10 years and as chairman of the board from
1996-1998.
“Mr. Considine helped set the pace for where we are
today,” said Shirley Rogers, chief hospital relations
officer for Children’s Miracle Network Hospitals.
“There were some tough decisions that had to be
made when he was on the board, and he was willing
to do the right thing. He is one of the reasons that
32 million children are being helped each year. His
leadership had a national impact.”
Finding a home in Akron
As one of the earliest pediatric healthcare systems
involved with Children’s Miracle Network Hospitals,
Akron Children’s relationship with the organization
has grown stronger over time, and Rogers said that
the Akron community has always been a leader in its
fundraising efforts.
“Last year, Akron Children’s Hospital raised $1.3 million
for the children in that community,” said Rogers.
“For a market that size, that’s a lot of money. It’s all
because of the community. Everyone should be very
proud of what they’ve done.”
One of the unique foundations of Children’s Miracle
Network Hospitals is that the dollars raised through
its fundraising efforts stays in the communities in
which they were raised. This philosophy, and the
growing popularity of the organization’s Telethon,
paved the way for other Children’s Miracle Network
Hospitals’ fundraising initiatives to take shape.
Companies including Dairy Queen, Walmart, Sam’s
Club, and Ace Hardware signed on to become
corporate partners, helping to raise money through
company-sponsored programs. In the early 1990s,
the Telethon hit the airwaves through local radiothon
programs. Indiana University launched the Dance
Marathon program in 1991, and its popularity
continues to build today.
“It’s gone from telethons and radiothons to other
year-round events that enable hospitals to tell their
stories, engage communities and raise dollars for the
missions of those organizations,” said Mr. Considine.
“It’s phenomenal when you think about it.”
The Change Bandit campaig
n is a popular
fundraising effort designed
to turn spare
change into miracles for our
patients.
Change Bandits have raised
nearly $1.2 million
as part of the “Have a Heart,
Do Your Part”
radiothon.
1996
2000
2000
2005
2008
2009
2011
2013
The first-ever
Forest Heritage
Festival is held
in the parking
lot of the New
Philadelphia
Walmart.
Akron Children’s
partners with
WKDD to hold
the first-ever
“Have a Heart,
Do Your Part”
radiothon,
which raises
$327,045 for
the hospital –
one of the top
10 largest in the
country.
Children’s
Miracle Network
Hospitals
campaign raises
more than
$1 million for
Akron Children’s
Hospital, the
first time the $1
million mark was
reached.
New Philadelphia
Walmart raises
$107,000, the
highest amount
for any Walmart
or Sam’s Club
store in the
U.S. or Canada,
during the 2005
CMN campaign.
The “Have a
Heart, Do Your
Part” radiothon
raises a recordbreaking $1
million.
Sarah Friebert,
MD, Director
of Pediatric
Palliative Care at
Akron Children’s
Hospital,
receives
the annual
Children’s
Miracle
Achievement
Award for her
commitment to
children’s health.
Former patient
Bradford Harris
chosen to
represent Ohio
for the Children’s
Miracle Network
Hospital’s
Champion
program.
The first-ever
Flash-a-thon,
Kent State
University’s
dance marathon,
raises $14,000
for Akron
Children’s
Showers
Family Center
for Childhood
Cancer and
Blood Disorders.
21
Children’s
Miracle Network
Hospitals
expands
partnership
to include the
Mahoning Valley
after the opening
of the Beeghly
campus in
Boardman.
Long-standing Children’s Miracle Network Hospitals
fundraisers have made a huge impact on the level
of care Akron Children’s provides, such as the
Forest Heritage Festival, Dairy Queen’s Free Cone
days, and the “Miracle Balloon” campaigns at local
Walmart stores, IHOP restaurants and other area
organizations. The annual “Have a Heart, Do Your
Part” and “Miracles & Promises” radiothons also
remain some of the hospital’s largest fundraisers.
nders
itals fou
ork Hosp d hosted
tw
e
N
le
ed
’s Mirac
e Osmon
Children neider and Mari 983, which rais als
1
it
h
c
p
in
s
S
o
n
n
tho
Joh
n’s h
ever Tele
2 childre
the first- .8 million for 2
4
nearly $ e.
id
nationw
The highlight of
ou
the Hanselman r radiothons are the patient
family, Akron
stories. In 2005
Ch
shared their re
,
markable journe ildren’s first set of sextuple
ts,
y in the NICU
with listeners.
“Our radiothons have exceeded everyone’s expectations,”
said Mr. Considine. “So much so that five years ago
we raised $1 million. It’s dwarfed anything else we’ve
ever done beforehand.”
New fundraisers also are making an impact, such as
the first-ever Flash-a-Thon dance marathon organized
by Kent State University students this past spring,
which raised $14,000.
While the hospital community helped raise funds,
Children’s Miracle Network Hospitals also recognized
Akron Children’s individuals for their dedication to
their field, and for their perseverance in the face
of adversity. In 2009, Sarah Friebert, MD, director
of Haslinger Family Center for Pediatric Palliative
Care, received the organization’s prestigious annual
Achievement Award. And in 2011, one of the hospital’s
former patients, Bradford Harris, was chosen to
represent the state of Ohio for the Children’s Miracle
Network Hospitals’ Champions program.
“Year after year, I’ve seen the Akron community come
together in such an amazing way,” said Rogers.
“We’re honored to be associated with them.”
Bright hope for the future
Three decades later, $4.7 billion has been raised
through Children’s Miracle Network Hospitals. Its
network has grown to 170 hospitals, and last year’s
fundraising efforts raised a record-shattering
$300 million.
But its future goals are even bigger. Children’s Miracle
Network Hospitals wants to start raising $1 billion a
year. And it wants to start doing it soon, because the
number of kids needing help continues to rise.
“More than 32 million children are being treated
each year,” said Rogers. “Each day, 16,000 kids
visit an ER; 2,200 kids undergo cancer treatments;
2,300 surgeries are performed on children. Every
dollar we’re able to raise does make a difference.”
began in
e Festival, which
The Forest Heritag re than $1 million for
mo
1996, has raised
event
This family-friendly ,
Akron Children’s.
es
ag
all
of
ts
es
gu
for
features activities
r pull for kids.
including a tracto
22
Mr. Considine forecasts a healthy future for
the hospital’s partnership with the Children’s
Miracle Network Hospitals, a future in which new
opportunities will be explored and work will continue
to grow. He views it as another way to engage the
communities the hospital is privileged to serve.
“We want to give back and keep our doors open
regardless of ability to pay, and Children’s Miracle
Network Hospitals is a vehicle that helps makes it
happen,” said Considine. “I see it continuing to thrive.”
Rogers has her own hope for the future of the
partnership.
“Our partnership with
Children’s Miracle Network
Hospitals is something we
need to celebrate, and what
better time than during its
anniversary year?” - Bill Considine
“My hope is that Akron Children’s Hospital never has
to worry about having the money they need to take
care of those children. That they always have what
they need. I love that they are very cutting edge and
very innovative, unique, ahead of their time with
surgeries. Their research department is going to
influence the world. My hope is that by what we do,
they are able to make their thoughts and dreams
become possible,” added Rogers.
This fall in Florida, members of Children’s Miracle
Network Hospitals will gather for its annual meeting.
A miracle child from every state will attend. There will
be a massive celebration, but this year will be a little
different.
“We’re going to reflect on what we’ve accomplished
in the past 30 years,” said Rogers. “We’re bringing
in some champions from 30 years ago. We’re going
to get excited about what we’ve done. But then we’ll
move forward, because the need is still great, and
there are things to be done.”
23
Who is Children’s
Miracle Network
Hospitals?
Children’s Miracle Network Hospitals is a nonprofit
organization dedicated to saving and improving
the lives of children by raising funds for children’s
hospitals. The money raised through its fundraising
efforts stays in the local communities, benefiting
those who raise it.
Akron Children’s Hospital continues to benefit
from the hard work and dedication of its community
and its sponsors. We are extremely grateful for the
$1.3 million donated to Akron Children’s Hospital in
2012 by our local sponsors and corporate partners:
Ace Hardware Corp.
American Legion
Bruegger’s
Circle K Midwest
Chico’s FAS Inc.
CO-OP Financial Services
Credit Unions for Kids
Dairy Queen Corp.
Golden Corral Corp.
Greek Partners - Phi Delta Epsilon
Greek Partners - Phi Mu
Greek Partners - Sigma Alpha Epsilon
IHOP Restaurants
Log A Load
Lone Star Steakhouse
Long John Silver’s
Love’s Travel Stops
& Country Stores
Marriott International Inc.
Miss America Organization
ation
Ollie’s Bargain Outlet
RE/MAX
Rite Aid Corp.
Speedway
Walmart Stores Inc.
of note
Presentations
Rahul Biyani, MD, presented “MRI-based
computational analysis: A new technique to identify
factors influencing patellar tracking in the unstable
patellofemoral joint” with A. Saranthan, F. Hao, L.
Guseila, M. Morscher, K. Jones, and J. Elias at the
Cleveland Orthopedic Society Resident Essay Contest
in Cleveland, OH, 2013.
Prasad Bodas, MD, MHS, Director, Sickle Cell
program, presented “The first case of a solitary, mixed
histiocytic tumor in the skull containing both juvenile
xanthogranuloma and langerhans cell histiocytosis: A
case report and review of the literature” with D. Pettee
and M. Steele at ASPHO Annual Meeting, April 2013.
Blaise Congeni, MD, Director, Pediatric Infectious
Disease, presented “Immunization Update” at Union
Hospital Pediatric Update, May 2013; “Immunization
Update: New CDC Guidelines” at 16th Annual
Infectious Diseases Update at ProMedica Toledo
Hospital, Toledo, OH, May 2013; “Hot Topics in
Pediatric Infectious Diseases,” at Akron Children’s
Hospital Pediatric Update, Akron, OH, April 2013;
“Impact of Vaccine Refusal” at Summit County
Immunization Coalition, Akron, OH, April 2013; “2013
Immunization Update” at Aultman Hospital Pediatric
Update, Canton, OH, April 2013; “Preceptor for clinical
project Meningitis” at Akron Public Schools to 9th
grade STEM, Spring 2013.
Joseph Congeni, MD, Director, Sports Medicine
Center, presented “Concussion and Protocols to
Protect Athletes” at University of Akron Law School,
February 2013; “What’s New in Concussion 2013” at
Sports Medicine Update, Akron Children’s Hospital,
March 2013; “Spondylolysis and Low Back Pain: A
Practical Approach,” “Sports Hernia: What is Gilmore’s
Groin?,” and Spine and Hip Examination” (workshop)
at 10th Annual Current Concepts in Primary Care
Sports Medicine, Chicago, IL, March 2013; “Hand,
Finger, Wrist Injuries and Ankle Injuries Including
Stress Fractures” at Akron Children’s Pediatric Update,
Dover, OH, May 2013; “Concussion and Brain Injuries”
at NEOMED Internal Medicine Update, Ravenna, OH,
May 2013.
Cassandra Hirsh, DO, presented “Walking through the
Valley” with J. Dower, MD, Dower is also a graduate
of the palliative medicine fellowship program at Akron
Children’s, at the West Virginia Hospice and Palliative
Care Pediatric Summit, Flatwoods, WV, June 2013.
Jeffrey Hord, MD, Director, Childhood Cancer and
Blood Disorders, presented “Reducing Central LineAssociated Bloodstream Infections (CLABSIs) among
Pediatric Hematology-Oncology (PHO) Inpatients:
Results from the Children’s Hospital Association
National Collaborative” with A. Billet, E. Werner, et
al at ASPHO Annual Meeting, April 2013; “Ongoing
Professional Practice Evaluations in Pediatric
Hematology Oncology” during Practice Management
Workshop at ASPHO Annual Meeting, April 2013;
“Professional fees only constitute the tip of the iceberg
when it comes to Pediatric Hematology/Oncology
Clinical Revenue” with Kelly Gramata, and Jeff
Hale at ASPHO Annual Meeting, April 2013; “AML1
Amplification and Outcomes in Eight Patients with
Acute Lymphoblastic Leukemia: A Case Series and
Review” with D. Pettee at ASPHO Annual Meeting,
April 2013; “High Dose Methotrexate (HD-MTX) in
Treatment of Extra-Renal Rhabdoid Tumor (ERRT) with
Diffuse Leptomeningeal Spread” at ASPHO Annual
Meeting, with H. Saeed, April 2013; Healthcare
Utilization in Persons with Hemophilia B – Hemophilia
Utilization Group Study, part Vb (HUGS Vb) at
Hemostasis and Thrombosis Research Society Annual
Meeting in Charlotte, NC, April 2013; Longitudinal
Changes in Health-Related Quality of Life for Chronic
Diseases: An Example from the Hemophilia Utilization
Group Study, part Va (HUGS Va) at International
Society of Pharmacoeconomics and Outcomes
Research, May 2013; Cost to Society Due to
Underemployment in Persons with Hemophilia A and
B – Hemophilia Utilization Group Study V (HUGS V)
at International Society of Pharmacoeconomics and
Outcomes Research, May 2013.
Jeffrey Johnson, MD, presented “Gene expression
differences in young male and female ruptured anterior
cruciate ligament tissue” with S. Moen, M. Morscher,
C. Klonk, K. Jones, R. Jacquet, and W. Landis at the
in Euclid, OH, 2013.
Kerwyn Jones, MD, Chair, Department of Pediatric
Orthopedics, presented, “Practice Management
Symposium, Use of LEAN Principles in Orthopedic
Practice” at the Pediatric Orthopedic Society of North
America annual meeting in Toronto, Canada, 2013.
24
Mohamed Khalifa, MD, presented “Exome sequencing
identifies a novel EP3000 frame shift mutation in
a patient with features reminiscent of Cornelia de
Lange syndrome” at European Conference of Human
Genetics 2013, Paris, France, June 2013.
Steven Kuerbitz, MD, presented “WT1 regulation of
Cyclin A1 in leukemia” with M. Moazam, D. Snyder,
S.Pandey, and G. Fraizer at AACR, Spring 2013.
Eleni Lantzouni, MD, Associate Professor of Clinical
Pediatrics at NEOMED, Medical Director of Eating
Disorders Program, presented “Eating disorders: food
intolerance, allergies, or just restriction?” at Society of
Adolescent Health and Medicine Annual Conference,
Atlanta, GA, March 2013 and at Academy of Eating
Disorders Annual Conference in Montreal, Canada,
May 2013.
Todd Ritzman, MD, Director, Pediatric Orthopedic
Education, presented “Evaluation of limited screwdensity pedicle screw constructs in posterior fusions
for adolescent idiopathic scoliosis” with J. Kemppainen,
M. Morscher, M. David Gothard, and M. Adamczyk
at the Pediatric Orthopedic Society of North America
annual meeting in Toronto, Canada, 2013.
Sarah Rush, MD, Director, Neuro-Oncology, presented
“The role of support groups in the well-being of
pediatric hematology-oncology fellows: Essential
components and perceived benefits” with K. Dovel,
J. Scandlyn, J. Whistler, T. Garrington at ASPHO
Annual Meeting, April 2013; “Pediatric gangliogliomas
including those in the brainstem show BRAF V600E
mutation in a high percentage of cases” at Pediatric
Neuro-Oncology Basic and Translational Research
Conference,” Fort Lauderdale, FL, May 2013.
Haleema Saeed, MD, presented “Infliximab treatment
for refractory idiopathic thrombocytopenic purpura
(ITP) associated with Crohn’s disease (CD),” with
S. Savelli, at Hemostasis and Thrombosis Research
Society Annual Meeting in Charlotte, NC, April 2013.
Jason Tank, MD, presented “Operative management
of the severe genu valgum deformity in the Ellis-van
Creveld syndrome” with D. Weiner, M. Morscher,
A. Krahe, W. Schrader, and D. Jonah at the
Mid-America Orthopedic Association annual meeting
at Amelia Island, FL, 2013.
25
Dennis S. Weiner, MD, Co-Director, Regional Skeletal
Dysplasia Center, presented “Non-union after triple
arthrodesis in children—does it really matter?” with
E. Wicks, M. Newton, and M. Morscher at the
Pediatric Orthopedic Society of North America annual
meeting in Toronto, Canada, 2013.
Eric Wicks, MD, presented “Non-union after triple
arthrodesis—does it really matter?” with M. Newton,
M. Morscher, and D. Weiner at Mid-America
Orthopedic Association annual meeting at Amelia
Island, FL, 2013.
Steven Widmer, MD, presented “Physeal gene
expression and structure from different anatomic
regions in two species” with R. Jacquet, M. Shasti,
R. Steiner, W. Landis, D. Weiner, M. Morscher, and
M. Adamczyk at the Mid-America Orthopedic
Association annual meeting at Amelia Island, FL, 2013
and at the American Academy of Orthopedic Surgeons
in Chicago, IL, 2013.
of note
Publications
Mark Adamczyk, MD, Co-Director, Brachial Plexus
Treatment Center, wrote “Cranial nerve IX and X
impairment after a sports-related Jefferson (C1)
fracture in a 16-year-old male: A case report” with S.
Dettling, M.Morscher, and J. Masin in Pediatr Orthop,
Spring 2013 33(3): 23-7.
Samuel Albert, MD, wrote “Current guidelines for
tonsillectomy in children” in MD News, Spring 2013.
Michael Bigham, MD, wrote “Quality Metrics in
Neonatal and Pediatric Critical Care Transport: A
Consensus Statement” with H. Schwartz in Critical
Care Medicine, July 2013, 14(5):518-24; “The
Impact of Postintubation Chest Radiograph during
Pediatric and Neonatal Critical Care Transport” with N.
Sanchez-Pinto, J. Giuliano, H. Schwartz, L. Garrett, D.
Gothard, and A. Kantak in Critical Care Medicine, July
2013, 14(5):518-24.
Bruce Cohen, MD, FAAN, Director, Pediatric
Neurology, wrote “Alpers-Huttenlocher Syndrome”
with R. Saneto, W. Copeland and R. Naviaux.
Pediatric Neurology 2013, 167-178; “Practice
patterns for intraoperative neurophysiologic monitoring
Neurology” with M. Nuwer, K. Shepard, February
2013; “Neuromuscular and systemic presentations
in adults: diagnoses beyond MERRF and MELAS”
Neurotherapeutics 2013, 10:227-242; “The
neurologist as a medical home neighbor” with
D. Hoch, M. Homonoff, M. Moawad, G. Esper,
A. Becker, and N. Busis. Neurol Clin Pract 134,
P3, 2013.
Center, wrote “Sports Medicine in Pediatrics” with H.
Benjamin, and G. Landry in Pediatric UPDATE, March
2013, 33(9).
Blood Disorders, wrote “Surveillance of HospitalAcquired Central Line–Associated Bloodstream
Infections in Pediatric Hematology-Oncology Patients:
Lessons Learned, Challenges Ahead and Children’s
Hospital Association Hematology-Oncology Quality
Transformation Collaborative Project” with A. Gaur,
D. Bundy, C. Gao, E. Werner, A. Billett, J. Siegel, D.
Dickens, C. Winkle, and M. Miller in Infection Control
and Hospital Epidemiology March 2013 34(3):31620; “Hematopoietic Growth Factors” in Supportive
Care in Pediatric Oncology, 1st edition.
Orthopedics, and K. Bono, MD; P. Riley, MD; T.
Ritzman, MD; W. Schrader, MD, Clinical Co-Director,
Center for Orthopedics and Sports Medicine; A.
Adamczyk, MD, Co-Director, Brachial Plexus Treatment
Center, wrote “A prospective comparison of computernavigated and fluoroscopic-guided in situ fixation of
slipped capital femoral epiphysis” with; M. Rubin; P.
Fleissner, M. Morscher; R. Steiner in J. Pediatr Orthop.
March 2013 33(2):128-34.
26
Marc Nelson, MD, wrote an article published in New
England Journal of Medicine, May 2013; “Congenital
Tracheal Anomalies” Journal of Otolaryngology and
Neurotology.
Sarah Rush, MD, Director, Neuro-Oncology, wrote
“Brainstem Ganglioglioma Successfully Treated With
Vemurafenib” with N. Foreman, and A. Liu in J Clin
Oncol, January 2013; “Insulin-like growth factor 2
mRNA binding protein 3 expression is an independent
prognostic factor in pediatric pilocytic and pilomyxoid
astrocytoma” with V. Barton, A. Donson, D. Birks,
B. Kleinschmidt, M. Handler and N. Foreman in J
Neuropathol Exp Neurol. May 2013 72(5):442-9.
Awards and Honors
Amy Maneker, MD, was named to the national
Healthcare Information and Management Systems
Society (HIMSS) Physician Committee in recognition
of her outstanding efforts in Medical Informatics, July
2013.
Blood Disorders, was ranked as a 2013 Top Doctor
by Castle Connolly- among the top one percent in the
nation in specialty; ranked among 2013 U.S. News
Top Doctors- among the top ten percent in the region;
named one of the 2013 Best Doctors in America.
Jeffrey Johnson, MD, award nominee at the 2013
in Euclid, OH, 2013.
Steven Kuerbitz, MD, was named one of the 2013
Best Doctors in America.
The Partial Hospitalization Program (PHP), was
awarded the C.A.R.E. Community Award for
Appreciation for 2013 by the C.A.R.E. Committee of
the Six District Educational Compact. Staff members
from PHP accepted the award April, 2013.
Stephanie Savelli, MD, was named one of the 2013
Best Doctors in America.
Steven Widmer, MD, First place poster winner in
classification: pediatrics, at the American Academy of
Orthopedic Surgeons in Chicago, IL, 2013.
27
Other Activities
Center, is a member of BS/MD Admissions Committee,
since 1990; member of Ohio American Academy
of Pediatrics Home and School Health Committee,
since 2007; member of Sports Medicine Examination
Committee, since 2009; a board member of the
American Board of Pediatrics, since 2009; member of
America’s Best Children’s Hospital Orthopedic Working
Group (2012-2013 U.S. News and World Report),
since 2011.
Blood Disorders, is co-investigator for Hemophilia
Utilization Group Study V, part Va and Vb (HUGS V,
Va, Vb) at International Society of Pharmacoeconomics
and Outcomes Research, May 2013.
Orthopedics, Instructor at American Academy of
Pediatrics practical pediatrics CME course, Vail, CO,
January 2013.
Eleni Lantzouni, MD, Associate Professor of Clinical
Pediatrics at NEOMED, Medical Director of Eating
Disorders Program, is an Eating Disorders SIG (Special
Interest Group) leader at Society of Adolescent Health
and Medicine (SAHM).
Marc Nelson, MD, was voted in as active member of
American Society of Pediatric Otolaryngologists.
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Mrs. Janice L. Spadone
Leonard C. Spicer
Ms. Shari Schneider & the
Jackson-Schneider Family
Danielle Stewart
The Golec Family
Kay Stiles
Joseph Swarcz
Stephanie J. Tarajcak
Jingle Bell Run
St. Charles Church
Curtis Thomas
Mrs. Wendy Vanderneut
Michael R. Tople
Mr. and Mrs. Mark A.
Ohlinger
Ruth Trainer
Women’s Board of
Tyler Truesdale
Mrs. Kristen Belopoptosky
Annie Ward
Mr. Charles Slaybaugh
Everett L. Warren
Patricia Weber
Mrs. Patricia B. Zeigler
Leslie Whitt-Williams
Mr. and Mrs. Roy Whitt
Mary E. Wiles
Mr. and Mrs. Russell Brown
Cameryn J. Wilson
Ms. Katie J. Bennett
Richard B. Wollam
Anonymous
Mr. and Mrs. Dennis Hill
Mr. and Mrs. Michael Hill
George Wuchnick
Mrs. Josie M. Wuchnick
Nedra Yamokoski
Ella F. Young
Mr. and Mrs. Donald E. Baney
PNC Matching Gifts Program
Non-Profit
Organization
U.S. Postage
PAID
ONE PERKINS SQUARE
A K R O N , O H I O 4 4 3 0 8 -1 0 6 2
Akron, OH
Permit No. 202
Have you signed up for Developments,
our electronic newsletter, which
features the latest hospital news and
links to relevant podcasts and videos?
Scan the tag below or register online
at akronchildrens.org/developments.
calendar of events
august
september
Wednesday, August 7
Wednesday, September 4
Quaker Steak and Lube Give Back Night
Boardman Quaker Steak and Lube
5 - 9 p.m.
5 - 9 p.m.
Thursday, August 8
Sunday, September 15
Miracle Treat Day
Participating Dairy Queen Locations
All day
Children’s Caravan Teddy Bear Run
Adventure Harley Davidson, Dover
8 a.m.
Sunday, August 11
Wednesday - Friday, September 18-20
Mahoning Valley Scrappers Family
Fun Day Game Eastwood Field, Niles
5:05 p.m.
“Miracles & Promises” radiothon
Beeghly Campus, Building D
6 a.m. – 6 p.m.
Saturday - Sunday, August 17 - 18
Sunday, September 22
National Hamburger Festival
Lock 3
Times vary
Walk for Babies
Akron Zoo
9 a.m.
Sunday, August 25
Monday, September 23
Mahoning Valley Scrappers Family
Fun Day Game Eastwood Field, Niles
5:05 p.m.
27th Annual Children’s Benefit Invitational
in memory of Bruce Rothmann, M.D.
Fairlawn Country Club, Akron
11 a.m.
october
Wednesday, October 2
For more information about these events or
how you can become a special event coordinator,
contact: JoAnn Stock, director of development
at Akron Children’s Hospital Mahoning Valley,
at 330-746-9122 or Sara Lundenberger, special
events coordinator at Akron Children’s Hospital,
at 330-543-8037. For a complete listing of
all Akron Children’s Hospital events, visit
akronchildrens.org/events.
5 - 9 p.m.
Friday and Saturday, October 18 -19
Forest Heritage Festival
Tuscarawas County Fairgrounds
9 a.m. – 5 p.m.
Friday, October 25
Dancing for the Kids
Civic Theatre, Akron
6 p.m.
Get the free mobile app at
http://gettag.mobi

Children`s Progress - Akron Children`s Hospital

Transcription

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