July - TriState MS

971-C S. Kenmore Drive
Evansville, Indiana 47714
Phone: 812-423-5943 Toll-free: 1-866-514-4312
www.tristatems.org
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July 2016 Newsletter
Offering support, care, and hope…right here at home!
Indiana Support Group Meeting Dates
Evansville, IN support group will meet Saturday, July 9th, at 10:00 a.m. at the TSMSA Office,
971-C S. Kenmore Drive. Speaker: Cindy Goodwin. Cindy is a retired RN from Evansville.
She enjoys teaching the Eastern medicine and Complementary Therapy classes at USI. She
incorporates Reiki, massage, yoga, Tai Chi, aromatherapy and many others into her life and is a
certified practitioner of Reflexology and Healing Touch. Cindy will talk and answer questions
about the basics of energy as it applies to complementary therapies, and she will introduce you
to your own energy biofield and how to influence it for better health.
Contacts: Nita Ruxer / 812-479-3544 or Sharon Omer / 270-333-4701.
Princeton, IN support group will NOT meet in July or August. Have a great summer!!
Contact: TSMSA Office 1-866-514-4312.
Tell City, IN support group will NOT meet in July or August. Have a great summer!!
Contacts: Terri Hasty / 812-649-4013 or Gayle Taylor / 812-719-2417.
Washington, IN support group will meet Saturday, July 16th, at 10:00 a.m. at Daviess
Community Hospital. Join us for an open discussion and refreshments.
Contacts: Cindy Kalberer / 812-254-6735 or Fran Neal / 812-259-1565.
Kentucky Support Group Meeting Dates
Henderson, KY support group will NOT meet in July or August!! Have a great summer!!
Contacts: Meg Burnley / 270-826-9507 or Debbie Whittington / 270-827-8298.
Owensboro, KY support group will meet Monday, July 11th, at 6:00 p.m. at HealthPark Owensboro Health, 1006 Ford Ave, Owensboro, KY.
Contact: Susan Reynolds / 812-228-6100.
Illinois Support Group Meeting Dates
Fairfield, IL support group will meet Saturday, July 2nd, at 11:00 a.m. at Fairfield Memorial
Hospital in the Board Room of Horizon Clinic. Join us for an open discussion.
Contacts: Kathie Hill / 618-847-8452 or TSMSA / 1-866-514-4312.
We would like to sincerely thank St. Mary’s Health System for their
continued support of the Tri-State MS Association’s monthly newsletter.
Shared Solutions: 1-800-887-8100
www.copaxone.com/shared-solutions
Thank you to Teva Neurosciences for sponsoring our monthly newsletter.
Calendar of Events
Now through July 30, Holy Hoops H.O.R.S.E. Shootout for Multiple Sclerosis
Play basketball for a cause! Visit www.holyhoops4ms.com for a list of available
times and call Jay Stockman: 812-774-3963 to schedule. Games will be played
through July 17 at Wesselman Park and July 18-30 at American Baptist East.
Check out the great prizes on the website. Participants of all ages are welcome to
take on the challenge of playing the designated shooter. Individuals who have
signed to play collegiate basketball cannot participate. Make a tax-deductible
donation of $20 to play, and an additional $10 to re-enter if you lose your game.
All participants who beat the designated shooter will win a prize. All donations will
benefit TSMSA! Tell your family and friends and schedule your game today!
July 10, Sunday, Give Back Day At Texas Roadhouse
Join us at Texas Roadhouse on July 10 for a Give-Back Night! 10% of all proceeds
will be donated back to TSMSA! Bring the attached flyer into Texas Roadhouse
any time on July 10 and present it to your server!
July 12, Tuesday, Teva (Copaxone) Educational Dinner Program
Speaker: Dr. Randy Cox, Neurologist, Tell City, IN / Hardinsburg, KY
Time: Registration 5:30 p.m.; Program 6:00 p.m.
Location: Moonlite Bar-B-Q, Owensboro, KY
RSVP: You and 1 (one) guest: Shared Solutions 1-800-887-8100
July 18, Monday, Teva (Copaxone) Educational Dinner Program
Speaker: Dr. Rod Warren, Neurologist, Evansville, IN
Time: Registration 5:30 p.m.; Program 6:00 p.m.
Location: Haub Steak House, 101 E Haub Street, Haubstadt, IN
RSVP: You and 1 (one) guest: Shared Solutions 1-800-887-8100
July 21, Thursday, Monthly Newsletter Stuffing
Time: 11:30 a.m.
Location: TSMSA Office – Come help, while you make new friends!
July 28, Thursday, Genzyme (Lemtrada) Educational Lunch Program
Speaker: Nancy Heckler, RN, MSCN Associates in Neurology, Lexington, KY
Time: 12:00 p.m. (noon)
Location: Moonlite Bar-B-Q, Owensboro, KY
RSVP: You and 1 (one) guest: Lemtrada.com or 1-866-682-7502
July 28, Thursday, Genzyme (Lemtrada) Educational Dinner Program
Speaker: Nancy Heckler, RN, MSCN Associates in Neurology, Lexington, KY
Time: 6:00 p.m.
Location: Biaggi’s Ristorante Italiano, 6401 E Lloyd Exp, Evansville, IN
RSVP: You and 1 (one) guest: Lemtrada.com or 1-866-682-7502
Upcoming August Events

August 4, Thursday, Mallinkcrodt (Acthar) Educational Dinner Program
Speaker: Dr. Kristi Nord, Neurologist, Memorial Hospital, Jasper, IN
Time: 6:00 p.m.
Location: Moonlite Bar-B-Q, Owensboro, KY
RSVP: You and 1 (one) guest: 812-423-5943 or 1-866-514-4312
August 18, Thursday, ‘Girls Night Out’ Fundraising Event
Time: 6:00 p.m.
Location: Evansville Country Club, 3810 Stringtown Road, Evansville, IN
Cost: $25.00 prior to event; $30.00 at the door.
Come support TSMSA, and enjoy some time with the girls!
August 23, Tuesday, Genzyme (Lemtrada) Educational Dinner Program
Speaker: Nancy Heckler, RN, BSN, CBN Associates Neurology, Lexington,KY
Time: 6:30 p.m. EST (5:30 p.m. Evansville time)
Location: Schnitzelbank Restaurant, 393 Third Ave, Jasper, IN
RSVP: You and 1 (one) guest: Lemtrada.com or 1-866-682-7502
August 29, Monday, EMD Serono (Rebif) Educational Dinner Program
Speaker: Dr. Harold Moses, Neurologist, Vanderbilt, Nashville, TN
Time: 6:00 p.m.
Location: Biaggi’s Ristorante Italiano, 6401 E Lloyd Exp, Evansville, IN
RSVP: You and 1 (one) guest; 1-877-969-1722
August 31, Wednesday, Biogen Idec Educational Dinner Program
Speaker: Dr. James Winkley, Baptist Neurology Center, Nicholasville, KY
Time: Registration 5:30 p.m.; Program 6:00 p.m.
Location: Patti’s Restaurant, 1793 J H O’Bryan Ave, Grand Rivers, KY 42045
RSVP: You and 1 (one) guest to Active Source: 1-866-955-9999
Please Read!!
Important information regarding the continuation of your monthly newsletter!!
The Tri-State MS Association is proud to provide many services to individuals living with MS and
their families, one being a free monthly newsletter. For us to provide this service, St. Mary’s has
generously provided the envelopes and underwritten the cost of mailing the monthly newsletter
since 2001. However, due to recent budget cuts, St. Mary’s will no longer be able to continue to
underwrite this cost. We would like to take this opportunity to thank St. Mary’s. We are truly
appreciative of their support for so many years!
We are grateful that Teva Neuroscience will continue to help sponsor the newsletter, but we will
need to make adjustments to our mailing list. We mail monthly newsletters to 1,400 individuals
each month, some of which may be sent to outdated addresses. In order to update the mailing list,
we need your help!
If you would like to continue to receive the monthly newsletter by mail, you MUST contact us
by either e-mail: [email protected], phone: 812-423-5943 or 1-866-514-4312, or
by returning the survey included in this newsletter, and indicate your newsletter preferences.
Zinbryta, (Daclizumab) Recently Approved for Relapsing MS
Susan M. Reynolds RN MSCN
Debbie and I just returned from Washington, DC for the Consortium of MS Center’s annual
meeting. Every year it is held in a different area of the U.S., so that it will be more accessible to
professionals from different regions. I hope to share some of the topics that I thought were the most
interesting in the next few months.
There is so much new research going on for people with MS. There are now 14 different Disease
Modifying Therapies to treat the disease. Daclizumab (Zinbryta), the newest therapy, was approved
on May 27, while we were at the CMSC meeting. Daclizumab is for the treatment of adults with
relapsing MS. The US Food and Drug Administration approved Biogen’s new, long-acting
injection as a self-administered monthly therapy.
Daclizumab is a genetically engineered monoclonal antibody that binds to CD25, a receptor on Tcells that is thought to become activated in response to MS. Daclizumab is believed to work by
selectively targeting these activated T-cells without causing general T-cell depletion. Further,
Daclizumab is thought to work by decreasing abnormally activated T-cells and pro-inflammatory
lymphoid tissue inducer cells and increasing CD56 natural killer cells, all important cells that help
regulate the immune system.
Daclizumab’s (Zinbryta’s) efficacy was demonstrated in two clinical trials. The most recent trial,
the DECIDE trial, compared Zinbryta and Avonex in 1,841 participants for 144 weeks. Results
showed that patients on Zinbryta had a 45 percent reduction in annualized relapse rates, a 54
percent reduction in new and newly enlarging T2 lesions, and a 65 percent reduction in new active
lesions in comparison to Avonex. Seventy-three percent of the patients in the Zinbryta arm were
relapse free compared to 59 percent in the Avonex arm.
The most common side effects in the Zinbryta vs. Avonex trial were: cold symptoms, throat pain,
upper respiratory infection and enlargement of the lymph nodes. Risks associated with Zinbryta
include infections, rash, dermatitis and liver enzyme abnormalities, some of which are serious.
More than 1/3 of the people on Zinbryta reported subcutaneous skin issues.
Daclizumab’s drug label carries a “boxed warning” of serious safety risks. Among the risks are
severe and potentially life threatening liver injuries and immune conditions that include
inflammation of the colon, skin reactions, and depression. Patients taking Daclizumab must have
tried and failed two other disease modifying therapies before trying this therapy. Your neurologist
will get blood tests, including tests for liver function, before you start taking this therapy. Your
liver function will be monitored before every dose and then up to six months after the last dose is
given. Daclizumab has been used to treat Rheumatoid Arthritis and other autoimmune diseases.
The safety and tolerability profile has been well demonstrated in clinical studies for periods of up to
six years.
Qigong Classes
In May, we welcomed Richard Ogilvy as a guest speaker at the Evansville support group meeting.
If you are interested in taking Qigong classes with Richard, they are held on Tuesdays at 6 pm on
the 2nd floor of Zion Evangelical United Church of Christ, 415 NW 5th Street, in downtown
Evansville. If you have questions, contact Richard: 812-430-5808.
Schwan’s Cares Fundraiser
We are half way through our Schwan’s Cares fundraiser! You have until July 7, 2016 to place an
order to benefit TSMSA. Go to Schwans-Cares.com to order from Schwan’s Home Delivery and
help our organization meet its fundraising goals. When you order thru July 7th, 20% of all product
sales and 40% of eGift Card sales will go back to TSMSA! Schwan’s Home Delivery offers over
350 delicious foods, flash-frozen at the peak of freshness! You will find the perfect meal ideas for
parties and events, all delivered right to your door! There are two ways to support us:
Order Online:
1. Visit http://www.schwans-cares.com/c/26514
2. Click “Shop to Give”
3. Start shopping!
Order by Phone:
1. Call 1-855-870-7208 and provide
Campaign ID: 26514
Existing Schwan’s customers need to follow one of the ordering steps above to create your
fundraising affiliation and have your order contribute to our campaign. Your order will be delivered
on your existing route day. New customers need to choose a delivery date & time during checkout.
We have Schwan’s catalogs available at the TSMSA office, so stop by and pick one up!
In Memory of……
In Honor of……
This is a wonderful way to acknowledge those individuals in our lives that have made a
difference. Please include a note of who the donation is ‘In Memory of’ or ‘In Honor of’.
In Honor of Tri-State MS Association
Dr. Rick Yeager
Stacy Little
Kanesta Downs
Mary Rueger
Open Door UU Fellowship
Denise Love Orrick
Mr. Kevin Beck
Michael Clauson
Catherine Stevers
Lucas Oil
Mr. & Mrs. Steve Sanner
In Honor of Brenda Floyd
Laura Weibush
In Memory of Richard Gooch
Carol & Roger Ashenbremer
Janice Gooch
James Sheraden
In Memory of Joni Gentry
Bruce Adler
In Memory of Von Sloan
Vonda Templeton
HAPPY BIRTHDAY TO YOU!!
Kris Holder
Kathy McGlothlin
Terri Hasty
Andrea Slack
Becki Unfried
Windy Whitaker
Jon Perryman
Ethel Schuster
Susie Sims
Kurt Tretter
Paula Elpers
If you would like to have your birthday included in our newsletter, please send a note that includes
your name, your date of birth, and your signed permission for us to print it in our newsletter.
Congratulations to the winners at the Ted Donosky MS Golf Scramble!!
Closest to the Pin:
John Kaufman
Longest Drive - Men:
Gilles Paradis
Longest Drive - Women: Lisa Loehrlein
Golf Scramble Men’s Team Winners: BK Flooring
Golf Scramble Mixed Team Winners: Old National Wealth Management
Putting Contest:
Scott Schmitt
2016 TSMSA Golf Scramble in Memory of Ted Donosky
THANK YOU to our Outstanding Sponsors!
Event Sponsor:
Cart Sponsor:
Beverage Sponsor:
Food Sponsors:
Printing Sponsor:
Signs / Banner Sponsor:
Media Sponsor:
Hole In One Sponsor:
Lucas Oil Center
The Diamond Galleria
Miller / Coors, Steve Peters
Rally’s, Frito Lay, RC, Cleo’s Bakery
Schutte Lithograph
Signs by design
Evansville Courier
Romain Automotive
Sponsors:
Brandies Machinery & Supply Co.
D-Patrick
German American Bank
Hebron Leasing
International Brotherhood of Electrical Workers #16
Mulzer Crushed Stone
New York Life Insurance, Roger Ziliak
Old National Wealth Management
Optimization Prime / Chad Schmidt
Schultheis Insurance
Traylor Brothers, Inc.
Silent Auction Donors:
AACO Golf Carts & Parts, LLC
Archie & Clyde’s
Cork ‘n Cleaver
Dunn Hospitality Group
Escalade Sports
Evansville Massage Specialists
Fiesta Acapulco
J.E. Shekell, Inc.
Knob Hill Tavern
Longhorn Steakhouse
Lucas Oil Golf Course
Miller / Coors
Morris Knight
Rolling Hills Country Club
Sharon Omer
Stein Mart
The Diamond Galleria
The Pacetre’
Victoria National Golf Club
Walmart
Hole Sponsors:
Steve Evans
Brad & Cynthia Weathers
Corressell Landscaping
Dean Bosler’s Furniture
The Rug Gallery of Newburgh
Harding, Shymanski, & Company
Head’s Construction
Home Instead Senior Care
In Memory of Charlie Omer
John & Ginny Schrode
Kappell Wealth Strategies
Lefler Collision & Glass
LNB Chandler National Bank
Logan’s Roadhouse
Mel-Kay Electric Co., Inc.
Mr. & Mrs. Thomas Gulley
Pet Food Center
Raben Tire & Auto Service
Southern Indiana Tire
SYM Financial Advisors
Special Thanks To:
Jody Donosky, Jennifer Jones, Rick Tanner, Andrea Fisher, Rolling Hills Country Club, and Angie Wargel / Fire & Rain!
Thank you to Terry Bethel for his generous donation.
Thank you to our wonderful volunteers: Diane Whipkey, Bob Shipman, Barb Heacock, Amy Miller, Sharon
Omer, Chris & Maria Hillenbrand, Sandy Bitter, Carson Bitter, Patty Given, Brenda Floyd, Pam Jutzi, Nancy Carlson, Jim
Whipkey, Jim Mumford, Brian Jones, Fred McCool, Steve Skibo, Castle Golf Team, John Copeland, & Connie Romain!
Thank you to everyone who came out and supported us at
Texas Roadhouse on June 12! We appreciate our supporters!
We hope to see you on July 10 for the next one!
Gengelbach Pumbing, Tell City, IN
812-547-7346
Thanks for helping out a client with her plumbing issues!!
Please cut and mail back to:
Tri-State MS Association, 971 C. South Kenmore Drive, Evansville, IN 47714
OR fill out the survey on our website at www.tristatems.org!
-------------------------------------------------------------2016 Newsletter Survey
Name: _________________________________________________________________________
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Zip: _________
Cell (____) ____-________
Email: __________________________________________________________________________
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If you have multiple sclerosis, please provide the following information:
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