September 2015 - The Compassionate Friends, Wake County Chapter
Transcription
September 2015 - The Compassionate Friends, Wake County Chapter
September 2015 If this is your first Newsletter Inside this Issue: Love Gifts A Grandparent’s Point of View Sibling Loss Workshop 2 Message from Executive Director 3 The Final Flight Things to Avoid with Friends 4 When Suffering Visits My Child Still Has a Name There is a Grief 5 Another School Year Begins Healing Grief Through Laughter 6 TCF’s Transformation 7 TCF’s Transformation (cont’d) 8 TCF Closed Facebook Pages 9 Permission to Laugh Telephone and E-Mail List 10 Our September Children 11 From the Ashes of Grief by Lana Golembeski If you are receiving this newsletter for the first time, it is because someone has told us it might be helpful for you. We hope it is. We also invite you to our monthly meetings at Hayes Barton Baptist Church. At these meetings you may talk or choose not to say a word. There are no fees or dues. We are sorry you have had to experience the death of a child (or children) but we are here for you. We, too, are on this journey of grief and extend our hearts and arms to you. Attention: Our TCF meetings are now held in Room 224. Go left past Information Desk and at end of the long hallway turn right. Then half way down this hallway take elevator on the right to 2nd floor. Meeting room is across from the elevator. The Wake County Chapter meets every second and fourth Tuesday of the month at Hayes Barton Baptist Church, 1800 Glenwood Avenue, at the corner of Glenwood Avenue and Whitaker Mill Road at Five Points in Raleigh. Enter from Whitaker Mill Road into Main Entrance of the Family Life Center which is attached to and behind the church. Ask directions to TCF meeting room at desk just inside the entrance door. Tuesday, September 8th — The meeting will start at 7:30 pm. Tuesday, September 22nd — The meeting will start at 7:30 pm. In the early morning fog of a spring day The sunlight drifts slowly across the lake Lifting the dark shadows of night. The honking geese frolic in the early morning rays of sunshine While the birds sing of promises yet to come. Through the dark clouds of grief, Slivers of sunlight filter down. The pain and fear residing in my heart Is starting to give way To the hope of finding joy once again in my life. The warmth of the sun flows through my body And I now feel and see flickers of that joy. It is but a fleeting moment in my thoughts. But it fills me with the hope of perhaps Finding peace once again. The forever tears cleanse my heart and my pain. They pave the way for love and laughter once again in my life. My heart will forever be empty from the loss of my precious child. But the sparkling sunlight spreads light around that hole in my heart. Gentle healing is beginning; springing anew from the ashes of grief. Lovingly Lifted from TCF We Need Not Walk Alone, Spring/Summer 2015 IN MEMORY SEPTEMBER LOVE GIFTS Gifts Given In Loving Memory Of Children Merle and Mimi Bauer In loving memory of our daughter Heidi Lynn Bauer Please send Love Gifts to: Love Gifts—Wake County Chapter, The Compassionate Friends, P. O. Box 6602, Raleigh, NC 27628-6602; and please send pictures and articles to be published in the newsletter to Pattie Griffin, e-mail [email protected] and phone # 919-829-1982. Where are the pictures and stories for the newsletter??? A Grandparent’s Point of View The death of a child is the most tragic thing that can happen to anyone. It affects so many lives— family, friends, and even strangers. I lost my grandchild through death, and only a grandparent can understand the love a grandparent has for a grandchild and the loss that is felt when the child dies. For a grandparent, it is a double loss. Not only is your grandchild gone, but you also watch your child die each day. The smile that was always on her face is no longer there. The hurt is so deep and the questions so many. You feel helpless as a parent. You can’t kiss the hurt away as you did when she was a child. You have no answers for the questions for you don’t understand the many feelings that you are experiencing yourself. Each day you hope and pray for a little ray of sunshine to show on her face. You search for a little something to say or do that will comfort her. It seems there is no end to the suffering. As time slowly goes by, the healing process begins. In time, a ray of hope will show on her face and a smile will make her eyes light up again. She will turn to you for what little comfort you can give her. There will always be a part of you that is gone, but in time you can learn to live with the part that is still there. —Ruth Easton, Savannah, GA Don’t Forget: Registration Deadline is Friday, September 4 Sibling Loss Workshop For children and teens (ages 5-14) who are grieving the death of a sibling Thursday, September 10, 2015 6-7:30 pm Transitions GriefCare 250 Hospice Circle Raleigh, NC 27607 919-719-7199 www.transitionslifecare.org/grief Registration Deadline is Friday, September 4 This workshop is specifically for children and teens (ages 5-14) who have experienced the death of a sibling. This workshop will offer children and teens the time to connect with others who understand sibling loss, share about their loss and about their sibling (if desired), and learn more about the special grief feelings and reactions that come with the death of a sibling. Children will be divided into groups by age, as appropriate. The workshop will incorporate expressive arts, information on grief and coping, and group activities. No artistic skill or talent needed. Snacks will be offered from 5:45-6pm. Participants are invited to bring a photo and/or special mementos of their deceased sibling(s). All items will be returned at the end of the workshop. 2 A Message from the Executive Director Some of my favorite quotes come from author Rita Mae Brown. She coined the clever phrase, "I think the reward for conformity is that everyone likes you except yourself." My favorite quote is, "Happiness is pretty simple: someone to love, something to do, something to look forward to." This quote means so much to me because it relates so well to our lives before and after the death of someone we love. Most grieving parents, grandparents and siblings talk about their lives in terms of before or since their loved one died. Those who are new in their grief commonly express that their loss has taken away their someone to love, their something to do and their something to look forward to. I was one of those people after my daughter Ashley died in August of 2001. Like many of you reading this I could never imagine how life could be good again or how I could possibly recapture any of those three important components to happiness. The Compassionate Friends and the support of others walking this journey have helped me and tens of thousands of others discover that there is hope and there can be happiness once again after a deep loss. The journey is long and takes a lot of hard work but our organization is effective because it helps us address and reclaim each one of these three elements of happiness. One of the first things we learn from each other is the love for our children, grandchildren and siblings did not die when they died. We can continue to express that love by saying their name, telling our love story, reaching out to others and honoring their lives by living ours. Together we learn to hold on tightly to the love while supporting each other in letting go of some of the pain. Our shared experiences and memories of our children give us the courage to stop saying "I had," but rather, "I have." The Compassionate Friends has helped me boldly proclaim that I have a daughter Ashley, and I love her very much. When we continue to fully express the deep love, it opens doors for us to have something to do. Grief is often misunderstood in that many people view it as something that we merely feel. In truth, those of us who have walked this path for very long understand that grief is actually something very important that we do. Grief is a process, it requires action. Of course we feel it, we also breathe it. Grief and what we do with it is a fuel which can propel us into actions which help us take positive steps forward. Look around any TCF chapter and you will see those who are busy doing. TCF members are advocates for causes dear to them and they serve as volunteers at all levels in a wide variety of organizations. Our members share their talents as organizers, leaders, creators of art, crafts, and writings. Our TCF family is filled with huggers, listeners and ambassadors of love and compassion for others which makes our world a better place. Perhaps the most difficult component for some of us to obtain is something to look forward to. We were looking forward to witnessing their lives as they watched us grow old. What is left for us to look forward to now? Our credo says it well when it states that "some of us find hope in our faith," which makes us look forward to seeing our loved ones again one day. Some of us have difficulty embracing faith yet find hope and look forward to the discovery of gifts left behind by our loved ones. The outside world must think many of us are crazy for looking for signs anywhere which connect us to our children, grandchildren and siblings. There is also something quite amazing and transformational that I see every day which also gives many of us something to look forward to. We discover that our loss and the grief we have experienced has brought a new set of priorities, values, opportunities and friendships into our lives. We find a deeper understanding of how fragile life is and how important relationships are. We Need Not Walk Alone magazine is all about hope. Hope is difficult to comprehend when the pain is so great that taking the next breath seems like a monumental challenge. If you are new in your grief, please understand that those of us who have found our way were once where you are. Lean on us, trust in the process of fully grieving your loss with the comfort and support of others who have walked through our doors feeling hopeless and helpless but who now can be there for you. I hope this issue of the magazine is inspiring and touches your heart. I will leave you with one final quote by Rita Mae Brown, "Loving is pretty easy, it's letting someone love you that's hard." Blessings, Alan Alan Pedersen, TCF Executive Director Lovingly Lifted from TCF We Need Not Walk Alone, Spring/Summer 2015 When our special sadness comes to call — when we remember more than we can bear. When courage falters — shadows everywhere: Then let us reach and touch and share — We, who are friends. ~ Author Unknown ~ 3 As you interact with friends, here are some important things to avoid: 1. Avoid saying "I'm okay" or "I'm fine." If this is not true, it will impair their ability to care for you. If it is true, give them more information about what is going better so they can join in your encouragement. 2. Don't feel like your answers have to be a little better every time you see them. Change doesn't occur on an uninterrupted incline. Don't give in to the temptation of thinking you're going to disappoint them if you admit you're not doing as well as you were last time. THE FINAL FLIGHT To fly, what excitement it brings! 3. Pray honestly; not "spiritually." Prayer is an easy time to become fake and cliché. It can be refreshing and strengthening to pray honest prayers to God. That is what a large number of the Psalms are—honest, public prayers during seasons of suffering. To control the wheel and panel Flying into the setting sun, Through stormy cloud, And back home again. 4. Avoid those who think they can cheer you up. The journey through grief is about more than being happy again. If that is someone's primary focus at this stage, then they are likely not the best companion for this journey. Letting go of the earth And it’s hold on you. Gravity has no power Over God-made or man-made wings. Loving to soar Above everything that held you captive, Looking at the world, and saying, “No more will you have me!” 5. Don't hurry yourself. Structure so that you have an idea of what is "next" but it contains no pacing guide. Trying to measure the process is most often counterproductive. If you "gave yourself" two months to grieve, how would you know if you were half way there in one month? Chances are, pace would become a distraction from the process. Love for the freedom to fly into eternity…. If only we could Make the flight, too. Taking the Journey of Grief with Hope by Nancy Yates, TCF Augusta GA Brad Hambrick, M.Div. Th.M (In cherished memory of her cousin & friend Steve Evans) When my daughter Kellie died I felt like I was dying too—the pain and emptiness paralyzed me. Eventually another mom found and took me to Children’s Hospital grief group. I felt like I wasn’t alone. The problem was within two years everyone from when I joined was ready to move on. Move on—what is that? It was a big disappointment even though some of us stayed in touch. But I had my son, family and friends and I just tried to get through each day. Then Mitchell died from a brain aneurism. There are no words. My lifesaver has been Compassionate Friends. I felt like I was the only person that ever had a multiple loss. I found that many others had too. I always knew that there were people there for me and they would never go away—ever! Over the years I have given workshops and panels at Compassionate Friends Conferences and try to share my pain, hope and love with others. Joannie Kemling, Kelly & Mitchell’s grateful mom St. Paul Chapter, St. Paul, Minnesota Lovingly Lifted from TCF We Need Not Walk Alone, Spring/Summer 2015 4 When Suffering Visits by Steve Goodier We are changed, sometimes in unexpected ways, by the problems of life. One of Canada's most famous physicians was Dr. William Oster. Many stories are told of this beloved doctor, but one of the most revealing comes from World War I. Friends recalled the day when Oster was working in one of Britain's military hospitals during the war. He was called out of the wards during his daily rounds to be given an important message; his own son had been killed on the fields of France. My Child Still Has a Name !!! People don't know what to say … they apologize for bringing up your child's name. Or, even worse, they just never mention his or her name or them at all. I am angry that it seems my family and friends want to bury Chris's name and all of the wonderful memories of him in the cemetery with his bodily remains. I want to shout, "Hey! Chris is still my son! He is alive in my heart and my head. I want to hear his name. I want to talk about him, and if, while we're talking, I cry, it's OK. But, please talk about him with me. Affirm his life. Speak his name." I understand that those who haven't lost their child and who care about me just don't get it! They think talking about Chris hurts me. They just want to avoid anything they deem uncomfortable to talk about. Thank goodness I have TCF … a place to hear his name, to talk about him, to affirm his life! How does it make you feel to hear your child's name? How does it make you feel when the outside world wants to apologize for speaking that wonderful name, or, worse yet, avoids the subject of your child completely? Let's hear it for the names of our children! Come out this month and let's talk about our children and say their names as often as we please in a safe place to do just that. Hope to see you soon! Stunned by the news, he still came back to pick up his rounds. For a long period afterward he was noticeably different. And those who knew him best said that he changed as a physician that day. The cheerful note was gone from his voice and never again did friends hear the tune which he so often whistled as he went from ward to ward. Though these things never returned, something eventually came to take their place. Everyone noticed a new compassion in his care of the soldiers who each day streamed in from the battlefield. Before, he had the professional concern of the physician, so important to the practice of medicine; now there was an added discernible note of a personal compassion, like that of a father for his son.... Like most people who have experienced such losses, Oster must have spent considerable time in grief. But as he healed and integrated the loss into his life, it left him a different person. Pain will do that. It changes us, often in unexpected ways. It can leave us angry and broken, or, as in the case of Oster, it can bring forth qualities such as compassion or tenderness. It is as if the physician channeled his pain into energy and love for others, caring for them as he would care for his own child. In "Christian's" love, Tony Stagliano Helen Keller, who found a way to thrive though she went through life both sightless and deaf, knew plenty about suffering. She wisely said, "The struggle of life is one of our greatest blessings. It makes us patient, sensitive, and Godlike. It teaches us that although the world is full of suffering, it is also full of the overcoming of it." There Is A Grief There is a grief that ages the face And hardens the heart Yet softens the spirit… A grief that casts shadows on the eyes Yet broadens the mind… A grief that keeps the pain and has no words But increases the understanding… There is a grief that breaks the heart And wounds the soul, That lasts and lasts and can shatter in a minute But will inspire for a lifetime. Yes, the world is full of suffering. We can't avoid it no matter how hard we try. But it is also full of examples of people, like you and me, getting through it. Those who overcome great challenges will be changed, and often in unexpected ways. For our struggles enter our lives as unwelcome guests, but they bring valuable gifts. And once the pain subsides, the gifts remain. These gifts are life's true treasures, bought at great price, but cannot be acquired in any other way. ~Author Unknown~ 5 Another School Year Begins Written by Elizabeth Brady on Tuesday, August 19, 2014 We hosted a college graduation party at our house for our nephew last weekend. My husband’s family was here, including our 95-year-old greatgrandmother, all four grandparents in various levels of physical health. This made five generations gathered to hear my brother-in-law speak of his three children, who have now all graduated from college, and we toasted their accomplishments. I sat on the porch with my beautiful daughter Izzy, 16, listening to the toasts and thinking that it won’t be too long before she is graduating high school and heading to college. But our sweet Mack, who died suddenly of sepsis on New Year’s Eve 2012, was not there. Mack, hilariously funny, silly, and determined, just two weeks shy of his 9th birthday when he died, is always missed. It is a real tension, and one that those of us who are bereaved understand. We are keen to celebrate the joys of life with family and friends — we are all allowed to live! But I have grown another eye that senses another space and time. It is with Mack, in the eternal. As I prepared the flowers and the buffet table, filled the pitcher with ice cubes, I could sense Mack’s presence. He loved when we entertained. I recalled a sentiment written by Martha Whitmore Hickman, who lost her daughter to sudden death in a horseback riding accident. “Keep your spirit open” to your beloved, she wrote. Whitman’s book, Healing After Loss, is a daily meditational book that I carry in my purse. The cover has ripped off, the pages are dirty, tearstained, and full of notes, but I come back to it for a little courage everyday, throughout the day. I felt Mack’s joy and smiled through my tears remembering how he skipped around the house, complained about having to dress up, filled up bowls of Fritos and munched on the extras, and would huff that lighting candles was still the realm of his big sister. I laughed out loud at one point remembering when he told me guests would be “personally offended” if I served them stuffed grape leaves for appetizers. “I miss you,” I whispered out loud to him. “I love you, Mackie.” Once the last guest left, I was exhausted and had to rest on my bed. My daughter curled up next to me reading funny stories from Buzzfeed. I chuckled to encourage her to read more, but I really just like the sound of her voice. As Facebook posts fill up again with photos of the first day of the new school year, it is easy for each post to be a poignant reminder that there are no new photos of Mack. Every milestone is an opportunity for self-pity. After I have shed some tears, I have to take the emotional reins back, log off from Facebook for a few days, and center myself again. Open to Hope August 2015 Newsletter 6 Healing Grief Through Laughter Interview of Christa Scalies on Monday, August 10, 2015 Christa Scalies is interviewed by Drs. Gloria and Heidi Horsley during this special episode of The Open to Hope Radio show. Scalies lost two friends to suicide, which is the foundation for her book Suicide Sucks, available to download for free. In her book, Scalies outlines ten steps to help with holistic recovery after losing a loved one to suicide, including mental, spiritual and physical nurturing. Scalies is adamant that learning to laugh once again is paramount, but that’s an occurrence that can make survivors feel guilty. She established the website GiggleOn to help others recover from their grief. She uses humor and laughter to transcend guilt and “what if’s.” Sadly, Scalies notes that the man who encouraged her to start the site, and gave her the name, later killed himself— following in the footsteps of Scalies other friend who took his own life. Gloria asks Scalies for key advice on helping to cope with losing someone to suicide, and Scalies says “There has been no death that has ripped my heart out… like a death by suicide,” she says. Doing the Best You Can It’s difficult to accept that you’ve done everything you can and say “this is not my fault,” but the person who committed suicide made their own choice. It’s critical to separate yourself from any feelings of guilt, she says. “Don’t live in the past with that pain,” instead start looking forward to joy and hope. “It’s horrible, and I’m so sorry,” she says, but you have to find the ability to move forward. She suggests connecting yourself to nature, which can help battle negative energies. She’s also a big supporter of working out if possible. Grief can kill, making people physically ill—but sometimes light exercise can help stave off these risks. Download Scalies book for more tips and to get on a better track to healing. Open to Hope August 2015 Newsletter TCF's Transformation: As these caring strangers described their individual survival paths, an amazing bond formed. Stu Schippereit never anticipated his parking lot rescue would drastically change our lives. Kathy and I began attending meetings at every chapter within reasonable driving distance. Each time we were amazed by the sheer compassion we received. From Giving Up to Giving Back by Chuck Collins Tiffanie Amber I have been honored to serve as President of The Compassionate Friends' National Board of Directors. After six years of service, I now leave this all-volunteer board confident in our leadership's commitment to expand TCF's outreach to grieving families nationwide. Every dedicated board member I have been privileged to serve with understands the agony of grief, having suffered heartbreaking losses of their own precious children and/or siblings or grandchildren. Each year Chapter Leaders, delegates, and Regional Coordinators across the country elect board members from a slate of approved candidates. Any bereaved parent, sibling and/or grandparent is eligible for consideration as a candidate in board elections. This process ensures TCF's leadership has a constant infusion of creative ideas and fresh perspectives. It seems like yesterday when our beautiful nineteen-year-old daughter, Tiffanie Amber, died of bacterial meningitis. Having just finished her exams, she looked forward to her junior year challenges at Clemson University. Tiffanie loved her family, friends, and was excited about her future. After graduation, she hoped to continue her studies with aspirations of becoming an occupational therapist. As a newly licensed aerobics instructor, Tiffanie kept herself in great physical condition. She never hesitated to lecture her father about my poor eating habits. Like so many TCF families we've met over the years, our hopes and dreams for our daughter were limitless. Those dreams were crushed over one torturous weekend. Prior to leaving campus, Tiffanie was treated at the school clinic for a sore throat. She seemed vibrant and healthy after arriving home, but the next morning Tiffanie began experiencing flu-like symptoms. She was taken to a local hospital and admitted into the Intensive Care Unit. Tiffanie's inexplicable death two days later from bacterial meningitis left our family shocked, devastated, and emotionally suffocating. It seemed impossible to imagine our lives or our family without Tiffanie. As my wife, Kathy, searched for ways to comfort our young sons, David and Christopher, she grew increasingly depressed and withdrawn. While I did my best to comfort my family, privately I struggled with persistent thoughts of suicide. Logical thinking offers little deterrence when dying seems preferable to living with such intense anguish. After being referred to a local Compassionate Friends chapter, Kathy expressed a sudden willingness to venture away from the isolation of our home for a meeting. My long police career shaped many of my attitudes, especially the view that "cops don't do support groups." No matter how traumatic a police officer's experiences, my generation of law enforcement was taught to "just suck it up!" Kathy and I soon found ourselves in a church parking lot discussing whether "she" could attend a TCF meeting alone. Suddenly a young man knocked on my car window inquiring, "Are you here for the Compassionate Friends meeting?" When I reluctantly acknowledged we were, Stu Schippereit, the Chapter Coleader, introduced himself and coaxed us into the building. Inside we were met by his wife, Marianne, and a group of caring people who understood our pain and openly shared their heartbreaking experiences. I was struck by the realization these parents had also suffered the tragic deaths of their children. Yet somehow they had managed to survive. They discussed many issues Kathy and I were struggling to comprehend. We asked one question so often posed by newly grieving parents: "Does it ever get any better?" Their answer was an unequivocal "Yes!" 7 Those early TCF meetings gradually helped us to rediscover hope in our lives. We began to understand that while we will never "get over" Tiffanie's death, we could learn to better manage our grief. We slowly grew stronger in the months and years that followed, thanks to emotional support from so many people. We began trying to pay that compassion forward by attending meetings to support other struggling families. Each time we comforted another devastated family, we felt closer to our daughter. Five years after Tiffanie's death, when a local TCF Chapter was near closure, Kathy and I joined Mary Ann Noble (Sean Stephen's Mom) to become Chapter Co-leaders. We attended special workshops at the National Conference to prepare ourselves. When our first TCF meeting attracted only one person, we intensified our efforts to publicize the chapter. Our meeting size gradually increased along with our male participation. Whenever we brewed coffee, worked on a newsletter or performed a variety of other Chapterrelated responsibilities, we discovered what every good Chapter Leader knows. These tasks are small acts of love dedicated to families struggling after the loss of their children, siblings or grandchildren. TCF Chapters are the backbone of this organization. While every Chapter-related responsibility is important, three are especially critical. The first is having someone reliable answering or promptly returning phone calls. Whoever handles those initial inquiries must communicate hope and reassurance in his or her voice or callers may lose hope the meetings will help them. Equally important are the volunteers positioned just inside each meeting room welcoming newly bereaved attendees. It takes a combination of desperation and courage for a grieving parent, sibling or grandparent to walk into their first TCF meeting. Whether they stay or leave may be influenced by how they are received once inside. (continued on next page) (continued from page 7) Lastly, it is crucial to have trained meeting facilitators, who ensure participants are given an opportunity to share their feelings, if and when they feel able to do so. Most Chapter Leaders perform some or all of these duties, at least initially. Kathy, Mary Ann, and I strived to become proficient in all of them. One year after becoming a Chapter Co-leader, I volunteered as an internet chat moderator in TCF's Online Support Community. After some training, I was paired with Nicole Rinehart of Warner Robins, Georgia. Nicole was a vibrant Chapter Leader who volunteered in memory of her beloved nine-month-old son Chase Preston Rinehart. We worked together on Monday nights for over four years to create a meeting-like experience for chatroom visitors. These heartbroken people often had limited opportunities to attend an actual TCF meeting. Nicole and I hope we comforted as many people online, as those who touched our hearts along the way. It was a wonderful, challenging, and emotional experience. By 2006, Mary Ann had relocated to Texas and started another Chapter. Our meeting attendance had increased to 35-40 people each month and our finances had improved, due mostly to Kathy's fundraising efforts. We then attended a Chapter Leadership Training Program, where we were advised that five years is a critical point in managing a Chapter. The concern was that after five years, the membership begins to identify the Chapter personally with the individual leader. Since this can deter potential future leaders from stepping forward, it was recommended that five years was a good time to transition new leadership into a chapter. To this day, I question the wisdom of this advice, but I relied on it nonetheless. I immediately stepped down as chapter co-leader, while Kathy remained to assist as two volunteers assumed leadership roles. We were surprised when invited to become Regional Coordinators for twenty Chapters in Virginia and the District of Columbia. Working with other Chapter Leaders to resolve a variety of issues proved to be a particularly rewarding experience. In that role, Regional Coordinators have the opportunity to witness as their dedicated Chapter Leaders touch the hearts of bereaved people in their communities. Grieving families honor their loved ones in a multitude of meaningful ways including planting trees, creating foundations or participating in TCF events. There is no greater example of this than TCF Executive Director Alan Pedersen. After the death of his beautiful daughter Ashley Marie, Alan sought comfort from a TCF Chapter in Littleton, Colorado. As a singer and songwriter, Alan began creating heartfelt lyrics capturing the pain and emotions of losing a child. Over the next decade, he personally visited over 300 TCF Chapters and other grief organizations bringing his message of love, hope, and survival to families across the country. Alan honored his beloved Ashley and the loved ones of every family he met along the way. I vividly remember the absolute horror of the early days after Tiffanie's death. This fueled my obsession to find some way to comfort struggling families during the worst times of their lives when desperation and hopelessness can seem overwhelming. I began drafting a survival guide to prepare grieving parents for the challenges they will face. My experience as a Chapter Co -leader, chat moderator, and Regional Coordinator provided keen insights into many issues facing newly bereaved families. In 2009, I published Holding Onto Love: Searching for Hope When a Child Dies with all profits to be donated to TCF. If I eventually sold a few books, I hoped to raise a few hundred dollars for TCF in the process. To my surprise, nearly eight hundred copies have been sold, raising more than three thousand dollars for TCF. As Tiffanie used to say, "Go figure!" In 2009, I was elected to serve as a member of TCF National Board of Directors. Kathy and I also agreed to chair the 2010 National Conference in Arlington, Virginia. We were blessed to have a group of dedicated volunteers sharing our commitment to create a safe, healing experience for the 1,350 people who would attend. The relationships formed during that planning process will last a lifetime. In 2012, I was reelected for a second board term culminating last July, when I became president. Over the years, The Compassionate Friends has helped my family in many ways. In over 690 communities across this nation, dedicated Chapter Leaders and steering committee members volunteer their time, energy, and resources to comfort grieving families. Like police officers and firefighters, our Chapter Leaders really do save lives. I remember one in Virginia who definitely saved mine! I have held many titles during my nineteen years in TCF, but the most important one is "Tiffanie's Dad." That cherished relationship drove me to get involved in this organization. It motivates me each day to do something ensuring our daughter is remembered. Bereaved families often worry their loved ones will be forgotten. Throughout the year, TCF provides many opportunities at the local, regional, and national level to honor our loved ones. Whether we are setting up meeting chairs or sponsoring a conference workshop, everything we do to support our Compassionate Friends families honors our own loved ones as well. A few years ago I spotted a man in an amusement park wearing a tee shirt bearing photos of two teenage girls. The caption read, "My two beautiful angels." I immediately approached and assured him they were beautiful. I then inquired, "Are they really angels?" He openly shared the tragic deaths of his beloved daughters in a car accident a few years earlier. He had attended TCF meetings for emotional support. We were surrounded by people laughing and having a great time, oblivious to two bereaved fathers standing on a corner. Although we were strangers, a special bond formed as we openly shared the heartaches and joys of our daughters' lives. We were just two members of this amazing Compassionate Friends family ensuring that neither of us had to grieve alone that afternoon. An amazing transformation often happens as part of the TCF experience. Instead of attending support group meetings to help themselves, our members keep coming back to comfort others. After Tiffanie's death, Kathy and I considered TCF a "place" we went for help in desperation. In the years that followed, "compassionate friends" became an integral part of who we are. When that happens, the meaning of "compassionate friends" goes beyond meetings, conferences, or walks. Rather, it affects how we live our lives comforting other grieving families. That really is the miracle of The Compassionate Friends. Lovingly Lifted from TCF We Need Not Walk Alone, Spring/Summer 2015 8 TCF Closed Facebook Pages: An Extra Level of Support and Understanding for Our Bereaved Families by Cathy Seehuetter When it came to connecting to the Facebook world, I was a late bloomer. While Facebook was all the rage and others raved about how they found old friends, great new recipes, and shared photos with family from afar, I just wasn't that interested. However, one day I was looking over my son-inlaw's shoulder as he perused his Facebook page and saw the shared photos from one of his Facebook friends who lived on the other side of the country. The ability to keep in contact with my friends from all over the USA was very appealing to me, especially those I had met while attending The Compassionate Friends (TCF) National Conferences throughout the years; friends that I only saw each summer at the next conference. Suddenly, it was very appealing. My son-in-law put a Facebook page together for me and I haven't looked back! The advent of Facebook opened new doors for organizations such as The Compassionate Friends, giving them an extraordinary opportunity to be able to reach out in new ways to bereaved parents, siblings and grandparents through the convenience and speed of the Internet. It is particularly advantageous for bereaved families who live too far from a TCF chapter meeting site and therefore had little to no communication with other bereaved parents, siblings or grandparents. Through TCF/ USA Facebook page, bereaved families could connect with others who truly understood this most difficult journey; one that only another grieving heart could understand. They now had empathetic friends 24/7 to bring comfort, understanding, support and hope with the knowledge that they do not walk alone. As Barbara Reboratti, a TCF Facebook group moderator stated, "In the darkness of grief, no matter day or night, there is always someone listening, sharing and caring." Our first closed Facebook group, Loss to Substance Related Causes, began in August of 2014. Closed Facebook groups differ from the main TCF/USA open page (which presently has over 154,000 "friends") since you must request to join the group. From there, the moderator of that group will ask that person a few simple questions, and then approve them if they qualify for that particular closed group. Once they are a member of a closed Facebook group, only they and the other approved members of that closed group can see the contents of what is responded to, posted and shared. What seems particularly important to the closed Facebook members is that if someone is an approved member of a closed Facebook group, the Facebook friends from their personal page cannot view or read anything that they have posted in that closed group. This makes the group virtually private and thereby making them feel freer and more comfortable to share what is on their minds. One of TCF closed group moderators, Kathleen Willoughby, said, "I think the closed Facebook groups have brought together people sharing a loss who would never in a million years meet in person. We have members from all over the USA and several different countries. We often don't seem to have much in common, but we all speak a common language and a genuine compassion for each other. We share photos and stories of our loved ones; we share hard days and hard-won smiles. Members come to the site daily for support and inspiration?' TCF presently has 13 closed Facebook groups which include child, sibling and grandchild loss and varying causes of death such as Loss to Suicide, Loss to Homicide, Grandchild Loss, Sounds of the Siblings (bereaved siblings), Infant and Toddler Loss, Loss to Miscarriage and Stillbirth, Loss to Cancer, Loss to Drunk/Impaired Driver, Loss to Substance Related Causes, Sibling-Loss to Substance Related Causes, Only Child/All of Your Children, Regional Coordinators and Chapter Leadership. It is particularly helpful to be a 9 part of a group that shares the same relationship with the child that died, such as the death of a grandchild. Betty Farrel, one of the moderators of the Grandchild Loss closed group, shares, "Grandparents are very appreciative of a closed group where other grandparents can respond to their concerns because grandparent's grief is unique; they are grieving for their grandchild and hurting for their child, and feel helpless." To which, Jeanne Hale, another moderator of that same group, adds, "The grandparents group gives them a chance to express their feelings without having to worry about how what they are saying affects their children." The following comment came from a bereaved mom: "Being a part of the closed group, TCF— Loss to Suicide, has helped me in so many ways. I am able to talk about my child and the tragic circumstances of his death without judgment or any stigma attached because they all have gone through this much maligned cause of death. They truly understand my intense pain and sorrow, the shock and the constant ‘whys’, and offer me comfort and support. It is a safe haven where these people, who are now my dear friends, are all in this together. And I believe that many of the friendships I have made from being a part of this closed TCF Facebook group—though I may never meet them in person—will continue to be my cherished friends for many years to come." We are extremely pleased to bring our members of The Compassionate Friends another means to connect with other bereaved families around the country (and sometimes the world) in order to give support and bring hope to each other through the digital world of Facebook. The link to the most current TCF closed groups is http://www.compassionatefriends.org/ F i n d _S u p p o rt / On l i n e -C o m mu n i ty / Closed_Facebook_Groups.aspx and we look forward to continuing to develop new closed Facebook groups in the coming weeks. Lovingly Lifted from TCF We Need Not Walk Alone, Spring/Summer 2015 PERMISSION TO LAUGH After our son died, I was able to cry and get my sorrow and heart-wrenching feelings out from inside of myself. What I couldn't do was to laugh and not feel "pangs of guilt". I thought, how can I laugh again—my child cannot laugh anymore!? I'll never hear his one-of-a-kind laugh again on this earth. My son will, somewhere, think I do not love him. Others will think I don't love him. Many reasons ran through my mind each time a small laugh could come out. Into my second year of grief, I was sitting at a banquet at our National Conference. A bereaved father was our speaker for the evening. In his message to us that first evening, he said, "I give you permission to laugh" in referring to our weekend and beyond that time. There it was—someone out of love and their own grief, gave me permission. It has stuck with me to this day. It was as if our son had given me that right to laugh again, because he was such a humorist as a little boy. So, I pass this on to you for all our children who have died. We "give you permission to laugh". In loving memory of Donald L. Trimmer by his mother, Linda Trimmer Friends Supporting Friends — Telephone and E-Mail Contact List Betsy Allen, 18 year old daughter, fire suffocation ........................... [email protected] ................. 919-981-0767 Kati Bourque, 2 day old daughter, diaphragmatic hernia ................... [email protected] ......... 919-637-9544 and 38 year old brother, heart attack ........................ [email protected] ......... 919-637-9544 Debbie & Steve Brady, 31 yr old son, accidental prescription drug toxicity .. [email protected] .............................. 919-441-0967 Kathleen Breland, 17 year old son, suicide ..................................... [email protected] ..................... 919-463-9409 Mechelle Champion, 1 month old son, congenital heart failure ........... [email protected] .................... 919-753-7511 Mary Lou Clarkson, 21 year old son, leukemia................................. ..................................................... 919-501-7769 Elise Cope, 15 year old son, auto accident ...................................... [email protected]................................ 919-656-5005 Rebecca Creech, 14 day old daughter, heart defect.......................... [email protected] ............... 919-803-5889 Chris Crosier, 25 year old son, motorcycle accident ......................... [email protected] ........................ 440-223-1765 Teresa Cyr, 24 year old son, complications from drug overdose ......... [email protected] ....................... 919-215-2641 Kimberly Edens, 16 year old daughter, auto accident ....................... [email protected] ................... 919-971-6975 LaTonya Ellis, 18 year old daughter, sickle cell anemia ..................... [email protected] ................. 919-706-2348 Cate Forrester, 21 year old son, undiagnosed heart defect ................ [email protected] ................... 919-621-9666 Susan Gray, 27 year old daughter, auto accident ............................ [email protected] ...................... 919-757-1664 Mary Chris Griffin, 44 year old son, heart disease ............................ [email protected] .................... 919-552-4440 Diane Haddon, 26 year old daughter, metastatic melanoma .............. [email protected]........................ 919-363-9721 Nan Hamilton, 5 year old daughter, accident .................................. ..................................................... 919-605-5557 Diane and Robert Harkness, 47 year old daughter, cancer ................ [email protected] ............. 919-803-1134 Sosan Harlan, 30 year old son, drug overdose ................................ [email protected] ...................... 508-789-0839 Becky Hart, 16 year old son, auto accident ..................................... [email protected] Denise Johnson, 18 year old daughter, suicide ................................ [email protected] ............. 919-815-5501 D. Marie Jones, 13 year old son, struck by hit & run driver ............... [email protected] ........................... 919-218-0754 Cathy Joostema, 28 year old son, stroke ........................................ [email protected] ................... 919-341-8434 Christi (Cathy’s daughter) 28 year old brother, stroke ................. [email protected] .......... 919-880-8135 Gloria Jusino, 28 year old son, heart attack .................................... [email protected] ....................... 919-208-7360 Ellen King, infant son .................................................................. [email protected] ................ 919-740-8799 Debra Lamberis, 25 year old son, drug overdose ............................. [email protected] .................... 919-693-9922 Mara Lewis, 15 year old son, osteosarcoma .................................... [email protected] ....................... 919-655-5659 Cindy McLeod, 23 year old son, blunt force trauma .......................... [email protected] ................. 330-926-7771 Sue Mellott, 21 year old son, suicide ............................................. [email protected] ..................... Jen Menard, 4 year old daughter, genetic illness ............................. [email protected] ................... 919-610-6781 Malissa Obonyo, 18 year old son, murder ....................................... [email protected] ...................... 919-798-2831 Charlene Peacock, 22 year old son, congenital heart tumor ............... [email protected] ........................ 919-706-9176 Faira Pearce, 3.5 month old son, pneumonia .................................. [email protected] ..................... 919-427-7169 Ora Riggs, 30 year old son, primary brain tumor ............................. [email protected] ....................... 919-274-2769 Ann Riddick, 33 year old daughter................................................. [email protected] ..................... 252-939-0295 Cori Rochford, 20 day old son, kidney failure .................................. [email protected]................... 919-701-5066 Ron & Cindy Salyer, 21 year old son, motorcycle accident ................ [email protected]...................... 919-868-7542 Angie Selvia, 25 year old daughter, murder .................................... [email protected] ................ 910-893-9607 Carol Shelton, 40 year old son, .................................................... [email protected] ................... 919-460-0694 Amber Silvers, stillborn daughter .................................................. [email protected] ................... 919-400-3077 Linda Strother, 15 year old son, colon cancer.................................. [email protected]....................... 919-294-6842 Barbara Thorp, 40 year old son, flue complications .......................... [email protected] ............................... 919-847-7787 Rita Tolley, 23 year old son, auto accident ..................................... [email protected] ............... 919-215-0401 Lisa Tucker, 26 year old daughter, suicide ...................................... [email protected].................... 919-938-9651 Nancy Turlington, 19 year old son, car accident .............................. [email protected] ......................... 919-553-4995 Edith Weiner, 30 year old son, murdered ....................................... [email protected] ............. 919-559-0194 Risa Wolfzahn, 23 year old son, gun shot ....................................... [email protected] ................. 984-232-0055 10 Our September Children ~ Loved ~ and Always Remembered Birthday Heidi Lynn Bauer William R Wheless Jr. Kyle Kozlowski Nathan Pribble Michael Shannon Larry M. Hemmingway Brandon Lowery Brett Coleman Eric Brady Glenn Vick Devin Grose Devin Grose Shane Leach Kimberly Johnson Eric Reid Vick Beth Szczepanski Blake Tolley Thomas Anthony Weiner Nicholas Joseph Miracola Lyric Kincaid Shiloh Brock Mike Helfant Michael William Bernstein Chris Cardozo Jr. Joey Ward Jonathan Dail Joshua Riggs Cathy Messler Owens Blake Carroll Martha Williams Derrick S. "Dee" Davis II Anniversary Veronica Marie Gutt-Estes Jack Roberts Ryan Hill Michael Alley, Jr. Jackson Edward Griffin Brett Coleman Steven Vick Brian Dixon Jonathan Latham Brandon Lewis Tucker "Rives" Mann Mark Hardison Lanway Blake Lemaster Keith W. Jones Clare Whitenack Cameron Firebaugh Daughter Son Son Son Son Son Son Son Son Son Son Grandson Son Daughter Son Daughter Son Son Son Son Daughter Son Son Son Son Son Son Daughter Son Daughter Son Mimi & Merle Bauer Gail B. & Wm. Randall Wheless Sr. Kimberly & Chris Kozlowski Robin & Bill Pribble Robin Shannon Gloria & Michael Jusino Susan Lowery Claudia & Doug Campbell Debbie & Steve Brady Sue & Melvin Vick Stacy & Tim Grose Michael & Cecelia McCarron Russ & Kathy Leach Denise Johnson Reggie & Faye Vick Adam Szczepanski & Sunie Stanton Rita Tolley Edith Weiner Francesca & Joseph Miracola Faira Pearce Peter Brock Susan & Larry Helfant Larry Bernstein Chris & Pam Cardozo Merle Ward Diane & Ralph Zeuner Dennis & Ora Riggs Ann Messler Susan & Ricky Carroll Charlotte & Berry Williams YoLanda Davis Daughter Son Son Son Son Son Son Son Son Son Son Son Son Son Daughter Daughter Carolyn Gutt Carolyn & David Roberts Deborah & King Hill Michael & Karen Alley Pattie & Jack Griffin Claudia & Doug Campbell Sue & Melvin Vick Keith & Wanda Dixon Catherine (Cate) Forrester Marty & Paula Lewis Karen & Tucker Mann Selma H Lanway Saundra & J.B. Lemaster Keith & D. Marie Jones Sarah & Kevin Whitenack Jamie & Aaron Firebaugh Love cures people — Both the ones who give it — And the ones who receive it. Dr. Karl Menninger 11 The Compassionate Friends, Inc. Wake County Chapter PO Box 6602 Raleigh, NC 27628-6602 THE COMPASSIONATE FRIENDS, INC. Wake County Chapter PO Box 6602 Raleigh, NC 27628-6602 Chapter Co-Leaders: Dennis Riggs…919-740-6387 (e-mail: [email protected]) Chap Haddon...919-363-9721 (e-mail: [email protected]) Bereavement Letters: Mara Lewis...919-655-5659 (e-mail: [email protected]) Treasurer: Gary Yurcak...919-847-1780 (e-mail: [email protected]) Pattie Griffin...919-829-1982 (e-mail: [email protected]) Website: www.TCFWake.com (e-mail: [email protected]) Wake TCF Phone Line Cathy Joostema...919-833-4022 (e-mail: [email protected] Newsletter Editor & Membership Info: National Office Information: 1000 Jorie Blvd, Suite 140, Oak Brook, IL 60523 Toll-Free: 877-969-0010 / Ph: 630-990-0010 Website: www.compassionatefriends.org Email: [email protected] 12